Scleroderma Foundation
Scleroderma Foundation eLetter
eLetter #354

Greetings!

Hilton Boston Back Bay HotelIn an effort to accommodate the increasing number of individuals attending the 2010 National Patient Education Conference, the Foundation has reserved an additional block of discounted hotel rooms at the Hilton Boston Back Bay Hotel!
 
Located across the street from conference hotel (Sheraton Boston Hotel), the Hilton hotel provides ideal accomodations for attendees at a group rate of $159.00 per night (not incl. tax/gratuity).
 
To learn more about the Hilton Back Bay Hotel or to book your stay, click here.
Raynaud's Disease/Vascana Confirmatory Clinical Study Completes Patient Screening
MediQuest LogoBothell, WA-
Today MediQuest Therapeutics, Inc., a specialty pharmaceutical company, announced the completion of patient screening for its clinical study of Vascana, a non-systemic, topical application designed to treat Raynaud's Disease. This clinical trial is being carried out in accordance with the Complete Response letter from the US FDA. A total of 284 patients were screened. Read more.
"Assessing Patient Assistance Programs/ NeedyMeds" and "Biofeedback Therapy" Newest Workshops Added
2010 National Conference
 
"Assessing Patient Assistance Programs/NeedyMeds" with Richard Sagall, M.D. Learn more.  
 
"Biofeedback Therapy" with Inna Khazan, Ph.D. Learn more.
"Why I Am Attending the Conference"
Erion Moore, II
Moore, Erion Cropped
"I would like to attend the Conference to gather information so I can get a better understanding of scleroderma and spread the correct information to my family, friends and strangers who are interested in the disease. There are workshops that are pertinent to issues that I have questions about, such "African-Americans and Scleroderma," "For Male Patients Only," "Nutrition and Your Immune System," and many others. Also, like everyone else attending, it will be great to meet the other people dealing with the same life and body changes.  It will be great to talk with people who understand what you're going through."
- Erion Moore, II of Tigard, Oregon
Find Help When Living With Chronic Pain
Doctor and Patient CoupleBy Dr. William Schiff - Walton Rehabilitation Health System
Most of us can't imagine living in constant pain. But according to the American Academy of Pain Management, for more than 50 million Americans, there is no imagining-that is their reality.
Chronic pain impacts a person's ability to work, sleep, concentrate, socialize and their overall quality of life. Depression and anxiety follows, and a vicious cycle is created-depression can actually worsen pain conditions, which can lead to more depression and so on and so on. Those living with this condition may feel all alone, but it's important they realize that help is available and that they take that first step-whether it's speaking with a psychologist, joining a support group, or simply learning more about chronic pain. Learn more.
Choosing Medical Treatment
American Pain Foundation Logoby Isadora B. Stehlin 
Medical treatments come in many shapes and sizes. There are "home remedies" shared among families and friends. There are prescription medicines, available only from a pharmacist, and only when ordered by a physician. There are over-the-counter drugs that you can buy--almost anywhere--without a doctor's order. Of growing interest and attention in recent years are so-called alternative treatments, not yet approved for sale because they are still undergoing scientific research to see if they really are safe and effective. And, of course, there are those "miracle" products sold through "back-of-the-magazine" ads and TV infomercials. Learn more.
Heat Safety Tips 
Photo of Fredrick Wigley, M.D.Be prepared for warmer weather by following these helpful recommendations:
-  Increase your intake of non-alcoholic, non-carbonated, caffeine free beverages such as water and juice. 
-  Wear clothing that is light in color and loose fitting. 
-  Avoid the outdoors during extreme heat. Stay out of the sun. 
-  Stay in an air-conditioned environment if possible. Shopping malls offer relief if your home is not air-conditioned. Read more.
2010 National
Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor
 
2010 Platinum Conference Sponsor
Pfizer, Inc., 2010 Platinum Conference Sponsor
2010 Bronze Conference Sponsors
Gilead Logo 
United Therapeutics Corporation Logo
Lung Rx, LLC Logo 
 
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