|
Greetings!
 Having the right basic information about scleroderma at your fingertips is an important resource for many individuals.
That's why the Foundation provides over 12 different informational brochures on scleroderma available to download for FREE off of the Foundation's Web site!
The brochures, which are available in three languages, can be found online under the Foundation's Education section. Click here to browse. |
| Scleroderma Patients with Painful Foot Problems in New Clinical Trial |  May 2010- Researchers are hoping to provide a simple, inexpensive solution to the painful foot problems experienced by people with scleroderma, a rare but serious connective tissue disorder.
Arthritis Research UK senior lecturer in the Foot and Ankle group at Chapel Allerton Hospital in Leeds, Dr Tony Redmond, is co-ordinating a clinical trial of 140 patients, from Leeds, Manchester and London, to test the effectiveness of a cushioning, warming insole in people whose feet are badly affected by their condition. Read more. |
| Panel on "Advances in Basic and Clinical Research" and "How to Cope with Chronic Pain and Scleroderma" Newest Workshops Added |
Panel on "Advances in Basic and Clinical Research" with Carol Feghali-Bostwick, Ph.D. Et al. Learn more.
"How to Cope with Pain and Scleroderma" with Jim Lemons, EdD. Learn more. |
| Additional Hotel Rooms Now Available! |
 The Sheraton Boston Hotel group rate has sold out. In an effort to accommodate the increasing number of individuals attending the 2010 National Conference, the Foundation has reserved an additional block of discounted hotel rooms at the Hilton Boston Back Bay Hotel!Located across the street from the conference hotel (Sheraton Boston Hotel), the Hilton hotel provides ideal accommodations for attendees at a group rate of $159.00 per night (not incl. tax/gratuity). There are only 27 days left to register for the 2010 National Conference! To register, click here. To learn more about the Hilton Back Bay Hotel or to book your stay, click here. |
| "Why I Am Attending the Conference" |
Josephine Battyany |
"Even though I have attended many National Conferences in the past, each year I attend I always find something new to bring back to our patients and caregivers on the west coast and all over the country. Whether it is a bit of new information about treatments or creative coping skills, I always feel I learn something worthwhile! It feels good to attend the National Conference each year, because I am reunited with friends and surrounded by helpful information."
- Josephine Battyany of the Southern California Chapter |
| Can Foods Trigger Arthritis Pain? |
 Q: Are there foods that can cause arthritis pain to be worse? A: If you are overweight and affected with one of the symptoms of arthritis (pain, limited range of motion, others), the answer is yes: Unhealthy food choices may be contributing to the extra pounds stressing your joints and causing pain (arthralgia). Additionally, if you have been diagnosed with gouty arthritis-foods high in purines such as bacon, liver, turkey or even alcohol may cause a flare-up-or reactive arthritis (due to an infection from bacteria in contaminated food), the answer may also be yes. While genetics, autoimmune disorders and injury are the most likely causes of pain from most other types of arthritis, sometimes there is no clear reason. Read more. |
| It Takes Two to Tango: Become an Active Partner in Your Health Care |  by Robin Warshaw
You're sitting on the cold table in the medical examining room. You've been staring at the walls for what seems like eons. Finally, your health care professional enters, flips open your chart, asks some "yes or no" questions, examines you quickly, writes a few notes and is gone again. You get dressed and leave. You and your medical professional (doctor, nurse-practitioner or nurse) have just missed an important opportunity to safeguard and improve your health. Because the two of you are partners in your care, or should be, you both need to participate actively in that relationship. Learn more. |
| ABILITYJobs |
 The goal of ABILITYJobs and JobAccess is to enable people with disabilities to enhance their professional lives by providing a dedicated system for finding employment. By posting job opportunities, or searching resumes, employers can find qualified persons with disabilities as well as demonstrate their affirmative action and open door policies. Learn more. |
| National Office Holiday Schedule |
 In observance of Independence Day, the Scleroderma Foundation national office will be closed Monday, July 5, 2010 and will re-open on Tuesday, July 6. Have a wonderful holiday weekend! |
|
|
|
|
|
2010 National
Gold Sponsor | |
|
|
2010 Platinum Conference Sponsor | |
|
|
|
2010 Bronze Conference Sponsors | |
|
|
| Donate Now! |
 |
|
|
