|
Greetings!
 Wondering how to cope with scleroderma? Looking for more information about how to improve your nutrition and/or health?
Visit the Foundation's FAQ page to peruse and get answers to a variety of common questions about scleroderma and other related topics. Click here for more info. |
| Understanding Clinical Trials |
What is a clinical trial?
Although there are many definitions of clinical trials, they are generally considered to be biomedical or health-related research studies in human beings that follow a pre-defined protocol. ClinicalTrials.gov includes both interventional and observational types of studies. Interventional studies are those in which the research subjects are assigned by the investigator to a treatment or other intervention, and their outcomes are measured. Observational studies are those in which individuals are observed and their outcomes are measured by the investigators. Read more. |
| "Pain Management: A Holistic Approach" and "The Oral Complications of Saliva Hypofunctions Experienced in Autoimmune Patients" Newest Workshops Added |
"Pain Management: A Holistic Approach," with JoAnna Harper, PharmD, RPh Learn more.
"The Oral Complications of Saliva Hypofunctions Experienced in Autoimmune Patients" with Athena Papas, D.M.D. Learn more. |
| "Why I Am Attending the Conference" |
Ann Peterson |
"Having attended most of the previous conferences in years past, and looking at this years agenda, I would highly recommend attending the conference in Boston. The keynote speakers, workshop lineup and seminars look to be extremely interesting and valuable to patients, family members and interested friends. The National Conference is one of the best ways to build support networks, become empowered and hear the latest updates on research information. Hope to see you in July!" - Ann Peterson, Greater Chicago Chapter Executive Director |
| Tips to Avoid a Flip-Flop Fiasco |
 Donning flip-flops to enjoy warm weather? Follow these "do's" and "don'ts" from the American Podiatric Medical Association (APMA).
|
| Characterization of Connective Tissue Disease Associated Pulmonary Arterial Hypertension from the Reveal Registry... |
Abstract BACKGROUND:
REVEAL is the largest U.S. cohort of patients with pulmonary arterial hypertension confirmed by right heart catheterization (RHC), providing a more comprehensive subgroup characterization than previously possible. We used REVEAL to analyze the clinical features of connective tissue disease-associated pulmonary arterial hypertension (CTD-APAH) patients. Learn more. |
| Is Anybody Out There? Finding the Care You Need |
Q&A with Micke Brown, RN, BSN, Past President, American Society of Pain Management Nurses.
One of the greatest challenges people with pain face is finding a healthcare provider who knows how to treat pain. Pain management nurse, Micke Brown, offers some advice. Read more. |