Scleroderma Foundation
Scleroderma Foundation eLetter
eLetter #352

Greetings!

Woman at Computer
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Actelion Introduces First PAH Multimedia Mobile Application for Healthcare Professionals
Chef from the 2009 National Conference Welcome ReceptionPR Newswire
SOUTH SAN FRANCISCO, Calif., June 10 --
Actelion Pharmaceuticals US, Inc. is announcing the availability of the Pulmonary Arterial Hypertension (PAH) Mobile Reference Guide, the first multimedia smart phone application that provides information on PAH disease, pathology, diagnosis, and treatment guidelines to healthcare professionals. Read more.
"Sexuality & Scleroderma" and "Scleroderma Tests and What They Mean" Newest Workshops Added
2010 National Conference
 
"Sexuality & Scleroderma," with Elaine Furst, R.N., B.S.N., M.A. Learn more. 
 
"Scleroderma Tests and What They Mean" with Dr. John Varga, M.D. Learn more.
"Why I Am Attending the Conference"
Cathy Eddy, R.N.
Eddy, Cathy
"I will be attending the Scleroderma Foundation's National Conference for the 8th time! From my first conference in Atlanta as an anxious, newly diagnosed person, to last year in St. Louis as a chapter president and support group leader, I have grown in many ways. I learned that I am not alone and that there are excellent doctors and researchers working to make our lives better. I have become educated and proactive about my disease- therefore getting the best possible medical care.  I have met many wonderful people that I look forward to seeing at the conference.  This is a great opportunity to meet and share with others who understand the challenges of living well with scleroderma!
- Cathy Eddy, R.N., Northern California Chapter President
Eating Right on the Road
Today's CaregiverBy Rita Miller-Huey 
Remember the good old days when you and your companions could go traveling and not worry about what, when or where you were going to eat? Over the years our bodies and our needs change, and we must pay closer attention to the food we eat, as well as when we eat. With some simple pre-planning for meals and snacks, you can still enjoy a trip away from home. Learn more.
Polymorphism Influences Susceptibility to Systemic Sclerosis Phenotypes
NIH logoObjective
To investigate the possible role of the FAS −670A>G functional polymorphism in the genetic predisposition to systemic sclerosis (SSc) susceptibility or clinical phenotype.
Learn more.
Alternative Therapies for Raynaud's
Fredrick Wigley, M.D.
Photo of Fredrick Wigley, M.D.
Q&A with Dr. Fredrick Wigley, M.D.
Can biofeedback, fish oils, dietary supplements or other remedies ease the feelings of coldness, numbness and tingling in the fingers and toes of people with Raynaud's disease? Those are among the questions posed by readers in a recent posting on the Consults blog. Here, Dr. Fredrick Wigley of Johns Hopkins Medical School responds to readers asking about alternative therapies for Raynaud's phenomenon.  Learn more.
2010 National
Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor
 
2010 Platinum Conference Sponsor
Pfizer, Inc., 2010 Platinum Conference Sponsor
2010 Bronze Conference Sponsors
United Therapeutics Corporation Logo
 
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