Scleroderma Foundation
Scleroderma Foundation eLetter
eLetter #351

Greetings!

Advocates of the Texas Bluebonnet Chapter
Advocacy
Did you know that scleroderma bills H.R.2408 and S.1545 are continuing to gain support from lawmakers on Capitol Hill?  
 
Join us in our efforts to promote both bills in the House and Senate!  Click here to learn more.
Foundation Announces 2010 Scholarship Fund Awards
 
2009 Scholarship Fund Award Winners
Some of the 2009 National Conference Scholarship Winners
The Scleroderma Foundation is proud to announce that 29 deserving applicants representing three countries and 17 states will receive full and partial scholarships to the 2010 National Patient Education Conference in Boston. 
 
 
The 2010 National Conference Scholarship Fund demonstrated an overall growth in applications received, funds raised, and scholarships awarded compared to 2009. Read more.
"Surgical Options for Hand Involvement" and "Lung Transplantation" Newest Workshops Added
2010 National Conference
 
"Surgical Options for Hand Involvement," with Dr. Charles P. Melone, JR., M.D. Learn more. 
 
"Lung Transplantation," with Hilary J. Goldberg, M.D. Learn more.
"Why I Am Attending the Conference"
Sister Mary Rose Noonan, CSJ
Mary Rose CSJ
"This year's event in Boston will be my third National Patient Education Conference. If I could, I would go every year! Being in a room with so many persons who share the common bond of scleroderma is such a hope-filled experience. The Conference provides opportunities for education, support, advocacy, and fun! Sharing and making connections with so many individuals who have a similar vision and hope for a cure and who cope with many of the same daily issues is both exhilarating and humbling."
- Sister Mary Rose Noonan, CSJ; Latham, New York
United Therapeutics Launches Living PAH Program for Patients with Pulmonary Arterial Hypertension
United Therapeutics Corporation LogoSILVER SPRING, MARYLAND (May 25, 2010) - United Therapeutics Corporation and Lung Rx, LLC announced today the launch of a nationwide support program for patients who are currently prescribed a United Therapeutics therapy, which includes Remodulin (treprostinil) Injection, Adcirca (tadalafil) tablets or Tyvaso (treprostinil) Inhalation Solution. Learn more.
Intestinal Pain
Intestinal pain can be defined as aching or swelling experienced in the lower part of the abdomen. Intestinal pain should not be confused with abdominal pain. Abdominal pain is a general term and is caused due to the problems in the organs present in the stomach cavity and intestinal pain is the pain caused due to dysfunction or problems of the intestinal organs, that include, the small intestine and the large intestine. The intestinal pain can be acute to chronic, sharp or dull. There are various health conditions that can lead to pain in the intestine and given below is a brief discussion on various possible causes of intestinal pain. Learn more.
Barrett's Esophagus
By Ijeoma A. Azodo and Yvonne Romero, M.D.
EsophagusIn order to understand Barrett's esophagus it is useful to  understand the normal appearance of the esophagus. In the normal esophagus, the tissue lining appears pale pink and smooth. These flat square cells, called "squamous" (Latin for square) cells, make up the normal lining of the esophagus. Learn more.
2010 National
Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor
 
2010 Platinum Conference Sponsor
Pfizer, Inc., 2010 Platinum Conference Sponsor
Donate Now! 
Donate Now!
Quick Links
Join Our Mailing List