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Greetings!
TODAY IS THE DEADLINE TO APPLY FOR NATIONAL CONFERENCE SCHOLARSHIPS!
Thanks to the generous support of many donors, scholarships will be available to the 2010 National Patient Education Conference in Boston, Massachusetts, July 30-August 1, 2010. Apply now.
Please help support the Scleroderma Foundation National Conference Scholarship Program by making a gift today. The more dollars we can raise together, the more opportunities we can create for new and aspiring attendees. Donate to Scholarship Fund. |
| Study Reveals New Genetic Link to Scleroderma |
Maureen Mayes, M.D. | DNA research seen as critical to finding cure
HOUSTON - (April 28, 2010) - An international research consortium including scientists from The University of Texas Health Science Center at Houston (UTHealth) has identified a new genetic link to the systemic form of scleroderma. Researchers believe a thorough understanding of the genetic nature of the disease is crucial to developing a cure. Learn more. |
| Scleroderma Foundation Announces Call for Proposals for 2011 Research Grant Program | | The Scleroderma Foundation fosters the development of innovative, high-quality research by new and established investigators in fields related to systemic sclerosis (SSc, scleroderma). To accomplish this goal, two distinct research grants are being offered, "Scleroderma Foundation New Investigator Grant," and the "Scleroderma Foundation Established Investigator Grant." Learn more. |
| Newly Diagnosed with PAH? What You Need to Know |
Glenna Traiger, R.N., M.S.N. | If you or someone you know was recently diagnosed with pulmonary hypertension, this free webinar is for you. This webinar is hosted by Glenna Traiger, R.N., M.S.N., who has been working with pulmonary hypertension patients for over a decade. During the call, she will review the basics of what every pulmonary hypertension patient should know about PH, treatment, and coping with this disease. PH patient and Helpline volunteer Merle Reeseman will review PHA's patient services to help new patients benefit from ongoing education and support as they adjust to life with PH. Learn more. |
| "Making Pharmacy Fun" and "Talk to Who About What? Discussing your traditional and complementary care with your primary care physician" Newest Workshops Added | 
"Making Pharmacy Fun," with JoAnna Harper, PharmD, RPh.
"Talk to Who About What? Discussing your traditional and complementary care with your primary care physician," with Simon Mittal, M.D. Learn more. |
| "Why I Am Attending the Conference" |
"Whether you are newly diagnosed or have been living with scleroderma for some time, you will find that attending the Conference is an experience like no other. Your weekend will be filled with education, information, social gatherings, and good food--not to mention the many medical specialists you'll get to meet! Because scleroderma is so rare, this disease can make you feel like you are floating / bobbing aimlessly in a vast ocean with nothing to grab hold of. This annual Conference 'throws you a life jacket,' so to speak, because it gives you a sense of belonging and stability. The support and care from other patients, families, staff, and the medical community is incredible. Spending time with other scleroderma patients--patients who know first hand what it is like to live with this disease--sharing their experiences, and hearing their stories is one of the best weekends you can give yourself. I hope to see you there! - Linda Murray, Easton, Mass., Grandmother of Samantha Murray, Scleroderma Foundation Youth Ambassador |
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John L. Stump, D.C., Ph.D., Ed.D. |
By John L. Stump, D.C., Ph.D., Ed.D.
Did you know there are foods that have been proven to either speed up, or slow down, your thyroid function? One of the foods that has been shown to inhibit thyroid function is soy, one of the largest grown crops in America. Learn more. |
| Active Isolated Stretching: Empowerment Through Flexibility |
Massage therapists are expected to alleviate stress, help with relaxation, and relieve pain caused by injuries, repetitive use and physical limitations. A therapist's success in doing so often leads clients to view their massage therapist as a "cure-all." Sooner or later, however, a massage therapist might be faced with questions from their clients such as: "Why does the pain keep coming back?" or "I feel better, but I am afraid to do anything that might start the pain again." Learn more. |
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2010 National Gold Sponsor | |
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2010 Platinum Conference Sponsor | |
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| Donate Now! |
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