Scleroderma Foundation
Scleroderma Foundation eLetter
eLetter #345

Greetings!

May 7 is the deadline to apply for a scholarship to the 2010 National Patient Education Conference in Boston, July 31-August 1, 2010. Apply now!
2010 National Gold Sponsors News!
Actelion Pharmaceuticals US, Inc.Actelion Pharmaceuticals Announces Commercial Availability of Epoprostenol for Injection for the Treatment of PAH
 
South San Francisco, CA - April 22, 2010 - Actelion Pharmaceuticals US, Inc. announced the commercial availability of Epoprostenol for Injection, an improved formulation of epoprostenol that is stable at room temperature, for the treatment of primary pulmonary hypertension and pulmonary hypertension associated with scleroderma spectrum of disease in NYHA Class III and Class IV patients. Learn more.
Exercising With Arthritis: Prescription for Health
Medscape logoAn estimated 40 million people have some form of arthritis. The two most common forms are osteoarthritis, a degenerative joint disease characterized by a progressive loss of cartilage, and rheumatoid arthritis, a chronic condition causing the lining of the joints to become inflamed. Learn more. (Must have free login and password to read this story.)
"Pulmonary Fibrosis" and "Are Clinical Trials Right for You" Newest Workshops Added
2010 National Conference
"Pulmonary Fibrosis," by Robert Lafyatis, M.D. Learn more.
 
"Are Clinical Trials Right for You," by Robert Simms, M.D. Learn more.
"Why I Am Attending the Conference"
Jane Brandenstein"I attended the 2009 National Conference and found it to be enlightening because so many people with scleroderma were able to share their stories with each other. I would recommend others to attend because it is both informative and inspiring."
- Jane Brandenstein, of Pittsburgh, Pa.
New Book in the Scleroderma Foundation Store - "Be Your Best Advocate"
"Be Your Best Advocate," by Jan E. Knoll, MPA, BS, MCT ASCP
Manage your health care treatment and learn how to take care of yourself living with an autoimmune disease. Here is a reference workbook for hand, face, body and skin care with maintenance techniques for mobility. You will use this workbook over and over again. Learn more.
My MedSchedule.com - Get reminders to "take your meds"
My Med Schedule Logo 
 
MyMedSchedule.com is a component of the innovative MedActionPlan.com, LLC, developed by Tim Peters. For over 25 years Peters has created a wide variety of medical education programs and materials for doctors and their patients. These products are designed to benefit patients directly and to help improve their understanding of their medical conditions.
 
One way to improve patients' medical conditions is to help them organize their medicines. It may be extremely confusing to take more than one medicine or vitamin on schedule. This confusion can have serious medical consequences if doctors' directions regarding times, dosage, or special instructions are not properly followed. MyMedSchedule.com was designed to give patients an easy, flexible method for getting their medicines organized so they can obtain the greatest possible benefit from their medications. Learn more.
Patient Advocate Foundation
The National Underinsured Resource Directory
 
Some of the 2009 National Conference Scholarship WinnersThe National Underinsured Resource Directory is intended to help underinsured individuals and families locate valuable resources and seek alternative coverage options or methods for better reimbursement. Learn more.
2010 National
Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor
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