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Greetings! STUDENTS! You have just 30 days left to enter the Scleroderma Foundation's Student Essay Contest. Who is eligible? Students in grades 4-12 are eligible to submit a written paper on scleroderma. This could be your chance to show off your work, make a difference for a worthy cause, and win a fabulous prize! Apply now! |
| A Clinical Trial Opportunity for Adults with Scleroderma |
 DISTOL-1 Trial Digital Ischemic Lesions in Scleroderma Treated with Oral Treprostinil Diethanolamine: A randomized, double-blind, placebo-controlled, multicenter research study
Purpose of the Study
The purpose of this research study is to determine if treprostinil diethanolamine (UT-15C SR) is effective at healing your digital ulcers. Digital ulcers (ulcers on your finger tips) often develop in people with a condition called systemic sclerosis (scleroderma). We are recruiting males and females, 18 years and older, with systemic sclerosis who have ulcers on their fingertips.
Download study:
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| Workshops Added for National Conference |
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 "Occupational Therapy/Physical Therapy," by Janet Poole, OTOccupational and physical therapy practitioner will provide exercise programs and suggestions for accomplishing tasks of daily living. Learn more at: www.scleroderma.org/national_conference/2010/ national_conference_program2.shtm#poole
"Yoga for Scleroderma and Assisted Yoga for Scleroderma" by Kathleen Randolph
A therapeutic program of yoga poses and breathing techniques selected to benefit people who have symptoms of scleroderma. Learn more at:
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| "Why I Am Attending the Conference" |
 "I have been to the last four National Conferences, and each has been very important to me. While attending, I've had great experiences, met new friends, and felt a sense of community. The workshops are always good and filled with new information. Being able to learn about the latest research and new treatments has been invaluable, giving me the knowledge to decide on treatments for myself. Networking with professionals as well as support groups members and leaders is so helpful. I cannot say enough about the volumes of information that is there to glean! I am planning on going to Boston this summer. I hope to see all of my acquaintances there from the past years and hope to make new ones!"
- Karen Lovinger, Northeast Missouri Support Group Leader |
| Improving Doctor/Caregiver Relationships |
 Tips for Doctors from Caregivers
Allow yourself to feel for the caregiver and be in support of their role.
Be as up front as possible with any health conditions or diagnoses of loved ones.
Do not be afraid to ask how the caregiver is doing, and think of their needs even when tending to a loved one. Learn more at:
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| 11 Tips for Living With Chronic Pain |
 1. Learn deep breathing or meditation to help with chronic pain.
Deep breathing and meditation are techniques that help your body relax, which eases pain. Tension and tightness seep from muscles as they receive a quiet message to relax.
Although there are many to meditate, the soothing power of repetition is at the heart of some forms of meditation. Focusing on the breath, ignoring thoughts, and repeating a word or phrase -- a mantra -- causes the body to relax. While you can learn meditation on your own, it helps to take a class. Learn more at:
http://www.webmd.com/pain-management/11-tips-for-living-with-chronic-pain |
| Get a Caring.com To-Do List |
 Take better control over your loved one's care. Get a To-Do list to help you make better care decisions.
If you're caring for an elderly loved one, you may encounter situations that you're not fully prepared to handle -- leaving you with questions just when you need to take action.
That's why Caring.com has developed a series of To-Do lists that make it easier for you to take control of your loved one's care. Get a To-Do List at: http://www.caring.com/ | |
| Pain Common in Systemic Sclerosis |
| Pain is common and can be severe in patients with systemic sclerosis, a cross-sectional analysis found.
Among patients enrolled in the multicenter Canadian Scleroderma Research Group Registry, 83% experienced pain, more than one-third of them reporting pain in the moderate-to-severe range, according to Orit Schieir, MSc, and colleagues from McGill University in Montreal. Learn more at:
www.medpagetoday.com/Rheumatology/GeneralRheumatology/18892 |
| Three Camps Your Child Could Attend |
 Camp Sunshine
Supporting children with life threatening illnesses and their families. www.campsunshine.org
 Camp Wonder
Camp Wonder is an incredible camping experience being offered to children with skin disease, ages 6-16, at no cost to the family or child. http://csdf.org/latest/camp-wonder-for-kids.html.
 Camp Discovery
The American Academy of Dermatology (Academy) is proud to offer four camping sessions this year for young people with skin conditions who are between the ages of 8 and 16. www.campdiscovery.org | |
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2010 National
Gold Sponsor |
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