|
Greetings!
Don't forget that thanks to the generous support of many donors, scholarships will be available to the 2010 National Patient Education Conference in Boston, Massachusetts, July 31-August 1, 2010. Apply now! |
| A Report on the 2010 Systemic Sclerosis World Congress |
 by Robert J. Riggs, Scleroderma Foundation CEO
In February, I attended the 1st World Congress on Systemic Sclerosis in Florence, Italy. The three-day medical conference was attended by more than 1,400 physicians and other medical professionals involved in scleroderma clinical research. In all, representatives from 64 countries were in attendance to participate in lectures and scientific presentations focused on the state of systemic sclerosis research, as well as initiatives to benefit clinical care and increase awareness of the disease. (Pictured in photo: Martine Clozel, M.D., Co-Founder of Actelion Pharmaceuticals US, Inc. and Robert J. Riggs, Scleroderma Foundation CEO.) Learn more. |
| Two More Conference Speakers Announced! |
 |
 "Dental Issues Related to Scleroderma," by David Leader, D.M.D.
Scleroderma may contribute to unique problems related to the mouth and the teeth. Learn more.
 "Scleroderma 101: An Overview," by Maureen Mayes, M.D.
Receiving a diagnosis of scleroderma can certainly be a confusing and anxiety-provoking experience. What is scleroderma? Learn more.
|
| "Why I Am Attending the Conference" |
 "I thought the speakers at National Conference would be a repeat of information I've heard from support group and state sponsored chapter events/meetings. Well, I was wrong! Not only were the speakers and topics informative and inspiring, but I really enjoyed meeting other support group leaders, other patients, and the wonderful staff at National that makes this Conference possible!"
-- Emily Woods, North Dallas Support Group Leader and winner of the 2009 Messenger of Hope Award see 2009 Conference Award photos. |
| Life Stages With Rheumatoid Arthritis |
|
Workforce Guide
Tell Them How You Feel
How can you explain that you feel bad when everyone says you look OK? Try these tactics with important people in your life. Learn more. |
| Keeping Bones Strong and Healthy |
 Let's Talk about Osteoporosis
Our bones are alive. We might not think of them that way--but to keep themselves strong and usable, our bones are always changing.
"Bone is living, growing tissue," says Dr. Joan McGowan, a scientist at NIH. "It's constantly breaking down and building up. It keeps refreshing itself." Learn more. |
| Don't Let Auto-Immune Diseases Ruin Your Life |
Twelve Steps to Help You Live Well and Cope with Your Diseases
Auto-immune diseases are those where the person has an overactive immune response against tissues and organs normally present in the body. I simply say, "my body is attacking my own cells." Auto-immune diseases include Crohn's disease, Guillain-Barre syndrome, Rheumatoid Arthritis, Systemic Sclerosis, Psoriatic Arthritis, plus many, many others. Learn more. | |
| What is a Pediatric Rheumatologist? |
 If your child has complaints of pain in the musculoskeletal system (joints, muscles, bones, or tendons), other symptoms of arthritis, or an autoimmune disorder, your pediatrician may recommend a pediatric rheumatologist. Learn more. |
| H.R. 2408: "Scleroderma Research and Awareness Act" -- The Final Push -- ACT NOW! |
 The Foundation and the scleroderma community need your help to secure an additional 20 co-sponsors for H.R. 2408, the scleroderma-specific bill that is now up for consideration in the United States House of Representatives. Our deadline for securing these 20 co-sponsors is July 31st, the start of our annual National Patient Education Conference.
I encourage all of you to read the important message below written by the Foundation's National Advocacy Chair, Brian R. Adams. As Brian notes, the chances of getting H.R. 2408 passed will increase dramatically through your direct involvement in advocating for lawmakers' support of the bill. Learn more. | |
|
|
|
|
2010 National
Gold Sponsor |
|
| |
| Donate Now! |
 |
|
|
