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Greetings!
The Scleroderma Foundation has discovered the "Make A Powerful Difference" contest, presented by Pine Sol. This contest is open to individuals within the United States who are dedicating their time to make a difference in their communities. One grand prize winner will receive $10,000 along with a notable mention in "Ebony" magazine, and nine other finalists will each receive $1,000 to be used towards their community initiatives. The deadline to enter is March 22, so don't delay! Learn more. |
| H.R. 2408: "Scleroderma Research and Awareness Act" -- The Final Push -- ACT NOW! |
 The Foundation and the scleroderma community need your help to secure an additional 20 co-sponsors for H.R. 2408, the scleroderma-specific bill that is now up for consideration in the United States House of Representatives. Our deadline for securing these 20 co-sponsors is July 31st, the start of our annual National Patient Education Conference.
I encourage all of you to read the important message below written by the Foundation's National Advocacy Chair, Brian R. Adams. As Brian notes, the chances of getting H.R. 2408 passed will increase dramatically through your direct involvement in advocating for lawmakers' support of the bill. Learn more. |
| The Scleroderma Foundation Is Excited to Announce: Dame Dr. Carol Black Is the Opening Keynote Speaker at the National Conference |
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Carol M. Black, DBE, FRCP, FMedSci., will be the opening keynote speaker at the 2010 Scleroderma Foundation National Patient Education Conference being held in Boston, July 30-August 1.
Dame Carol Black (UCL Honorary Fellow 2003) is Director of the UCL Centre for Rheumatology and Connective Tissue Disease, where she has been a professor since 1994. Her involvement with UCL began in 1989, as Consultant Rheumatologist at the Royal Free Hospital, where she held the position of Medical Director 2001-2002. Learn more about Dr. Black.
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| "Why I Am Attending the Conference" |
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"The National Conference is a "must" for every scleroderma patient. You only thought you were alone in your journey until you step into the world of scleroderma at conference and meet people just like you who are "smart patients" and live well with their disease. You owe it to yourself and you are worth it! See you in Boston!"
-- Cindi Brannum, Texas Bluebonnet Chapter President |
| Your Guide to Stress Management |
It's actually accurate that too little sleep makes us accident-prone (as well as extra-stressed), and many people get too little sleep when we "spring forward." This newsletter brings sleep and stress management resources that are helpful any time of year, but especially before and after Daylight Saving time. Learn more. |
| Scleroderma - Systemic Sclerosis |
Clinical Background
Systemic sclerosis is a chronic multisystem autoimmune disorder characterized by thickening of the skin and accumulation of connective tissue in various organs. Learn more. |
| The Internet as a Drug Information Resource |
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The Internet has evolved vastly since its precursor, ARPANET, a large wide-area network created by the United States Defense Advanced Research Project Agency (ARPA), was developed in 1969.1 Originally developed as a networking experiment, the Internet is currently being used as a health information research tool by the majority of U.S adults.1-3 One survey revealed that 61% of U.S. adults use the Web for health-related questions.3 Further, 45% of U.S. adult Internet users reported using this medium for retrieving drug information (prescription or OTC).3 The number of patients using the Internet for drug information is on the rise. Since 2002, the percentage of adult Internet users searching for drug information has increased from 34% to 45%.3 Learn more. | |
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The Department of Defense (DoD) has announced that its National Resource Directory (NRD) Web site recently received a comprehensive system upgrade to provide users with easier access. This Web site compiles federal, state, local, and non-profit resources for Wounded Warriors, Veterans, family members and caregivers in a single, searchable site. The site's new "bookmark and share" feature allows visitors to alert others to the resources they find most helpful through social bookmarking, Facebook, Twitter, and other social networking tools. Visitors can also subscribe to Really Simple Syndication (RSS) or e-mail updates about new information that has been added to the site. The NRD is a collaborative effort among the Departments of Defense, Veterans Affairs (VA) and Labor (DOL). Learn more.
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2010 National
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