| Greetings!
Thank you for subscribing to the weekly Scleroderma Foundation eLetter. We appreciate your interest in and support of the Foundation.
Don't forget to tell your friends about the Scleroderma Foundation's Student Essay Contest! Students in grades 4-12 are eligible to submit their essay on scleroderma by May 3, 2010! Select winners will receive a choice of three possible prizes! Learn more. |
| Comprehensive Report on the Global State of Autoimmune Diseases Released for National Autoimmune Disease Awareness Month |
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Milestone Report Addresses Increasing Prevalence, Skyrocketing Costs, New Treatments and Possible Causes of 100+ Diseases
 WASHINGTON, March 3 /PRNewswire-USNewswire/ -- A groundbreaking new report from the American Autoimmune Related Diseases Association (AARDA), examining the current state of autoimmune disease (AD) and its economic and social impact globally and in the U.S., was released today at the "National Autoimmune Diseases Summit: The Global State of Autoimmunity Today," held to kick-off National Autoimmune Disease Awareness Month. Learn more. |
| The National Family Caregivers Association's Tip Sheets and How-To Guides |
 NFCA's Tip Sheets and How-To Guides help family caregivers deal with the emotional and practical sides of caregiving. Family caregivers will also find special web sites tools offering specific help with issues such as locating senior housing, communicating with family and friends, or information on Medicare drug plans. Learn more. |
| Reporting Problems to FDA (video) |
 Reports of problems submitted to FDA by consumers are an important part of the agency's strategy for identifying risks with products after they've reached the market. These reports help FDA protect the health and safety of all Americans-and can ultimately save lives. In this Consumer Update video, Norman Marks, FDA's MedWatch Medical Director, explains how the public can submit reports and how the agency uses this information. Learn more. |
| Study Findings from University of Medicine Broaden Understanding of Autoimmune Diseases |
Data detailed in "Anti-endothelial cell antibodies in systemic sclerosis" have been presented. "Anti-endothelial cell antibodies (AECA) are a heterogeneous class of antibodies whose role in the pathogenesis of autoimmune diseases with vascular involvement has been extensively studied. Systemic sclerosis (SSc) is one of the systemic autoimmune diseases in which endothelial dysfunction is well defined and important in the development of the disease," investigators in Bucharest, Romania report. Learn more. |
| Cincinnati Researchers Awarded Grant to Study Interstitial Lung Disease |
The National Heart, Lung and Blood Institute has awarded a grant to researchers at the University of Cincinnati (UC) Interstitial Lung Disease (ILD) Center to study ways ILD first appears in certain patient groups with autoimmune diseases and to better diagnose and treat it. Interstitial lung disease is a group of diseases that affect the tissues of the lungs instead of the airways, like asthma and emphysema do. It causes lung scarring, is more difficult to diagnose and treat than other kinds of lung diseases, and is often fatal. Learn more. |
| How to Prepare for a Doctor's Appointment |
In today's managed care environment the time you spend face-to-face with your physician is limited. To get the most from your health care providers (HCPs) you'll need to meet them halfway, and preparation is the key. If you come prepared with the details and history of your problem, anticipate questions, know your medications, and bring medical records you increase the likelihood of an accurate diagnosis. And if you are anxious about doctor appointments, good preparation will go a long way to alleviate that anxiety. The following tips can help you make the most of your appointment. Learn more. |
| New York Teen Wins First Place at JSHS for Her Scleroderma Research Project |
 Last year, the Scleroderma Foundation received a request from New York high school student Evelyn (Eva) Rajon. Eva needed help getting statistics about scleroderma patients for her Intel Science Research project on "The Correlation between Depression Symptoms and Length of Disease in Scleroderma Patients." Dr. Ann Impens, a research investigator at the University of Michigan Scleroderma Program, was Eva's project and research advisor. At Eva's request, the Scleroderma Foundation created an online survey to help Eva gather additional data on the scleroderma population. The survey was distributed to over 9,000 men and women via the Scleroderma Foundation's weekly eLetter. Survey responses were anonymously compiled and sent directly to Eva. Learn more. |
| National Patient Education Conference - Update |
| Are you wondering what it is like to attend the Scleroderma Foundation National Patient Education Conference? Take a photo tour of last year's Conference in St. Louis. |
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| "Why I Am Attending the Conference" |
 "Going to the National Conference is a wonderful experience. It makes you feel so connected. It is a golden opportunity to meet people from across the country, all gathered for one reason--to learn more about scleroderma. I highly recommend attending!" --Carol Hilf, Michigan Chapter Patient Services Coordinator, Farmington Hills, Michigan | |
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