| Greetings!
 Thank you for subscribing to the weekly Scleroderma Foundation eLetter. We appreciate your interest in and support of the Foundation.
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| NORD Rare Disease Day 2010 Survey |
 NORD and Inspire created this survey to learn about your experiences with rare diseases in conjunction with Rare Disease Day. Rare Disease Day is observed on the last day of February and was created to inform and remind the public of the special attention that rare diseases require. Your responses will contribute to a better understanding of the lives and needs of rare disease patients everywhere. Read more. |
| Diet & Food Tips |
 [Editor's note: This Self-Help booklet was written in first-person by Sjögren's syndrome patient Dona Frosio]
Your physician will tell you if you need a special diet. If not, most of us can safely follow the diet guidelines of the American Heart Association or the American Cancer Society.
Many patients have special dietary needs such as:
- Avoiding spicy foods
- Choosing soft, smooth items
- Avoiding alcohol and wine
- Avoiding acidic juices, fruits and vegetables
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| Hydrotherapy: Using Water to Heal |
 Ever taken a hot bath to relieve sore muscles, use an ice pack to reduce swelling or a humidifier to moisturize the air? If so, then you are already familiar with the practice of hydrotherapy.
Though it may sound fancy, hydrotherapy is simply the use of water, ice or steam for healing purposes. From early Roman bath houses to Native American "sweat lodges," hydrotherapy has been used for centuries to offer relaxation and symptom relief for a host of conditions. Read more. |
| Twenty Ways To Care for Caregivers |
| Twenty of the best tips and ideas collected from Caregivers and care managers of the Medicare Alzheimer's Project in Broward and Dade Counties, Florida. Read more. |
| Adcirca Now Available in Canada for Treatment of Pulmonary Arterial Hypertension |
| Adcirca(TM) (tadalafil) is now available in Canada for the treatment of pulmonary arterial hypertension (PAH). Adcirca represents an important new and convenient option for the estimated 2,000 to 10,000 Canadians with this rare but progressive and serious disorder. Characterized by an elevation of pressure in the pulmonary (lung) arteries, PAH can lead to shortness of breath, fatigue, heart failure and often leads to death within four years of diagnosis. Read more. |
| Abdominal Cramps |
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Abdominal cramps is a very common symptom seen in many diseases. Read on to know all about the various causes and treatment options for abdominal cramps.
 Abdominal cramps is one of the most common complaints that patients present with. Although it is merely a symptom and not a disease in itself, it is important to diagnose the underlying condition responsible for causing abdominal cramps, so that the treatment meted out is specific and effective. However, diagnosing this underlying disease is not an easy task, as cramping in the abdomen is a very general symptom which maybe due to a problem either in the stomach, or the intestine, or even problems in the bladder and the uterus, as are seen during bladder infections or during menstrual pain respectively. So given below are the causes and treatment options for dealing with abdominal cramps. Read more.
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| Survey for the Scleroderma Foundation Community |
 We are excited about inviting you to participate in a new online survey for Scleroderma Foundation members, others battling scleroderma, and their families.
Created in collaboration with Traitwise, an online health survey company, the survey asks questions about symptoms, treatments, quality of life, and more. Any answers you give will be completely anonymous, and not sold or traded to any outside entity. Once cleared of any personally identifying information, the data will be made available to scleroderma researchers across the country. By completing the survey, you'll be pushing forward research aimed at improving and understanding treatments for you and other patients like you.
READ WHAT OTHERS ARE SAYING ABOUT THIS SURVEY
"The very first survey I have taken, was very glad to participate. There wasn't anything I disliked about the survey. [I am] always wanting to learn more about my condition, and maybe help some one else." "Excellent. Extremely easy to use. This is one of the best designed surveys I've taken." Read more and take the survey. |
| National Patient Education Conference |
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Make your hotel reservations now! You can reserve your room online or by calling 800-325-3535. The group rate is $149 per night. Space is limited, so reserve early! Room rate is not guaranteed after July 7, 2010. Room rate is available only for July 24-August 4, based upon hotel availability. |
| "Why I Am Attending the Conference" |
 "I attended last year's conference for the first time and I want to attend the 2010 conference because it's the only place where I can meet other people just like me--scleroderma patients--who are all looking to improve their health by learning more about scleroderma from research and medical experts."
- Victoria Chavez of Sacramento, California | |
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2010 National
Gold Sponsor |
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