The 2010 National Conference Is Coming!
New Funds Available to Scleroderma Researchers
Rheumatology
Pipeline Is Focus of Global Thought Leader Panel and Analysis
Find
Out If Your BENADRYL® Product Has Been Recalled
Blue
Fingers Linked With Breathlessness
Juvenile
Systemic Sclerosis (Scleroderma)
"Will
New Tax Laws Affect My Estate Plan?"
PHOTO
OF THE WEEK
Walkers enjoyed a sunny day at the 2009 "Stepping Out to Cure Scleroderma" walk in Clemson, S.C.
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Scleroderma
Student Essay Contest
Choosing scleroderma as a
research topic helps to not only spread the word about the disease,
but also helps to inform others about how they too can join
the fight against scleroderma. You can win a Wii system or even
a trip to Boston! |
Needymeds
Drug Discount Card
A
way to save on your prescription medications. |
Scleroderma
Legislation
Help
us pass these bills.
S. 1545
H.R.
2408 |
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Come to historic Boston for the Scleroderma Foundation’s 2010 National Patient Education Conference, "Where Revolutionary Ideas Begin," July 30–August 1. Located in beautiful downtown Boston at the Sheraton Boston Hotel, the three-day event will feature a variety of workshops and seminars hosted by leading scleroderma researchers and medical professionals. Keynote speakers include National Institutes of Health, Stephen I. Katz, M.D., Ph.D., who is Director of NIH's National Institute of Arthritis and Musculoskeletal and Skin Diseases. |
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Scleroderma Selected for 2010 Department of
Defense Research Funds
The Fiscal Year (FY) 2010 Department of Defense
Appropriations Act, approved by the President on
December 19, 2009, stipulates
it will provide “$50 million
to the Department of Defense
Peer Reviewed Medical
Research Program (PRMRP).”
The program awards funding
to “the best medical research
to protect and support
warfighters, veterans, and all
beneficiaries and to eradicate
diseases that impact these
populations.” This year,
scleroderma was selected
as one of 19 congressionally
approved diseases for research
funding—a great triumph
for the scleroderma community. The Department of
Defense Appropriations Bill offers additional funding
opportunities for research beyond those provided by
the National Institutes of Health.
The Scleroderma Foundation asks all members of the
Foundation to spread the word about this new funding
opportunity and encourages all national researchers to
apply for these grants. |
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 Find
Out If Your BENADRYL® Product Has Been Recalled
To
find out if your BENADRYL® product has been recalled,
please enter its LOT # here. |
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 Ms.
O had always been active. She made it a point to exercise
at least three times a week — not only for her health
but also because she enjoyed the feeling it gave her. She
jogged, rode her bicycle, and played tennis in warm weather.
Employed as an editorial assistant, she usually walked up
the four flights of stairs to her office every day. At 28,
Ms. O was a nonsmoker and had never had any health problems.
In general, she felt extremely fit.
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INTRODUCTION
Although scleroderma is a spectrum of disorders that can
occur at any stage of life, the clinical patterns of childhood
sclerosis differ from that of adulthood. |
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It's an extraordinarily uncertain time—tax wise, that
is. This is the first year in decades that American tax law
repealed the federal estate tax. As of Jan. 1, 2010, federal
estate taxes are repealed for any deaths that occur during
this calendar year, regardless of the size of that person's
estate (state estate/inheritance taxes will still apply). It used to be that you could own $3.5 million in assets before federal estate taxes were assessed against your estate. For this year only, you can die with any amount of wealth and avoid estate taxes. That sounds like a good thing for everyone, doesn't it? Actually, it could be a double-edged sword. Read on to find out why.
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