Scleroderma Foundation

In This Issue

What's New in Pulmonary Arterial Hypertension?

Extra Help with Medicare Prescription Drug Plan Costs

Researchers Revisit Pulmonary Arterial Hypertension Survival

Blissing Out: 10 Relaxation Techniques To Reduce Stress On-the-Spot

Eating for Longevity

PHOTO OF THE WEEK

The Binghamton, N.Y. "Stepping Out to Cure Scleroderma" walk was one of 12 walks sponsored by the Tri-State Chapter in 2009
The Binghamton, N.Y. "Stepping Out to Cure Scleroderma" walk was one of 12 walks sponsored by the Tri-State Chapter in 2009.

Scleroderma Student Essay Contest

Choosing scleroderma as a research topic helps to not only spread the word about the disease, but also helps to inform others about how they too can join the fight against scleroderma. You can win a Wii system or even a trip to Boston!

Needymeds Drug Discount Card

A way to save on your prescription medications.

Scleroderma Legislation

Help us pass these bills.

S. 1545

H.R. 2408

Scleroderma Foundation eLetter

Friday, January 22, 2010– Issue #332

eLetter Archive

What's New in Pulmonary Arterial Hypertension?
Update on the 4th World Symposium on Pulmonary Hypertension

by David B. Badesch, MD, FCCP

American College of CHEST Physicians - LogoProgram Description
This summary will provide an update on pulmonary arterial hypertension (PAH) based on proceedings from the 4th World Symposium on Pulmonary Hypertension published in June 2009. Participants will watch a video summary (near the end of the page) and/or read an executive summary of the educational highlights of the program, answer review questions, and complete an activity evaluation.

Extra Help with Medicare Prescription Drug Plan Costs
Slide presentation – 2010 Changes to Medicare Extra Help

SSA LogoUnder a new law, more Medicare beneficiaries could qualify for Extra Help with their Medicare prescription drug plan costs because some things no longer count as income and resources. The Extra Help is estimated to be worth an average of $3,900 per year. To qualify for the Extra Help, a person must be on Medicare, have limited income and resources, and reside in one of the 50 states or the District of Columbia.

Researchers Revisit Pulmonary Arterial Hypertension Survival
Survival improves but prognostication tool sorely outdated

The University of Chicago Medical Center - LogoSetting out to determine the survival of patients with pulmonary arterial hypertension (PAH), researchers at the University of Chicago Medical Center and their colleagues also discovered that an equation used for more than 20 years to predict survival is outdated. Accordingly, they developed and recently published a new survival prediction equation that will impact clinical practice and the drug development process.

Blissing Out: 10 Relaxation Techniques To Reduce Stress On-the-Spot
If your hectic lifestyle has got you down, experts say relaxation techniques can bring you back into balance -- some in five minutes or less.

Woman meditatingThe kids need a ride to school, your husband can't find his shorts, your boss has just scheduled an online meeting, and your best friend desperately needs your help—all at the same time.

Is it any wonder that you can't find a minute for relaxation? In fact, if you're like most women, you may have even forgotten how to relax.

Woman with saladEating for Longevity
Foods to keep your heart, brain, and bones healthy.

Is there such a thing as a longevity diet? Increasingly, studies suggest the answer is yes.

Around the world, certain groups of people enjoy exceptionally long lives. Consider the lucky people of Okinawa: These Pacific Islanders have an average life expectancy of more than 81 years, compared to 78 in the United States and a worldwide average of just 67. Closer to home, members of the Seventh Day Adventists, who typically eat vegetarian diets, outlive their neighbors by four to seven years on average.

Upcoming Events

Feb. 10 (Wed.) Eat Out and Support the Scleroderma Foundation Delaware Valley Chapter (Collingswood, N.J.)
Feb. 10–12, 2010 (Wed.–Fri.) 1st World Scleroderma Congress (Florence, Italy)
Mar. 13 (Sat.) Scleroderma Symposium (Ft. Meyers, Fla.)
Mar. 13 (Sat.) 9th Annual Cheri Woo Education Seminar (Hillsboro, Ore.)
Mar. 27 (Sat.) Second Annual Crop for Scleroderma (Trenton, N.J.)
Complete SF Calendar

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Phone 978-463-5843 · 800-722-HOPE (4673)

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