2010 Research Grant Announcements
Do You Have Pulmonary Hypertension and Scleroderma?
Scientists Are Available to Comment on Autoimmune and Autoinflammatory Diseases
Slideshow: 15 Immune Boosting Foods
Telangiectases in Scleroderma: A Potential Clinical Marker of Pulmonary Arterial Hypertension
Coping with Chronic Illness
Give Your Skin Relief from the Winter Weather
PHOTO
OF THE WEEK
A tired youngster from the 2009 Corpus Christi, Texas "Stepping Out to Cure Scleroderma" Walk
|
Scleroderma
Student Essay Contest
Choosing scleroderma as a
research topic helps to not only spread the word about the disease,
but also helps to inform others about how they too can join
the fight against scleroderma. You can win a Wii system or even
a trip to Boston! |
Needymeds
Drug Discount Card
A
way to save on your prescription medications. |
Scleroderma
Legislation
Help
us pass these bills.
S. 1545
H.R.
2408 |
|
|
 |
|
|
Andreea Bujor, M.D., M.S., recipient of The Walter A. Coyle Memorial Research Grant Award |
Throughout its 12-year history, the Scleroderma Foundation has always placed emphasis on the importance of research. As a part of the Foundation’s mission, research-related initiatives continue to be the Foundation’s largest single budgeted expense each year. It is the ultimate hope of the Foundation that with each proposal funded, the world is one step closer to finding a cure.The Research Grant Funding Program, established in 1989, has awarded funding to 193 proposals on scleroderma since its inception.
|
|
Do You Have Pulmonary Hypertension and Scleroderma?
 If you’re juggling multiple conditions and the symptoms, specialists and medications that accompany each, you’re not alone. Many patients and caregivers in the pulmonary hypertension community understand the uncertainty and stress that go hand-in-hand with a diagnosis of PH related to scleroderma. The Pulmonary Hypertension Association (PHA) now offers an e-mail group for PH patients managing multiple illnesses, PH Plus. This forum is your chance to ask questions and share information with people who understand what it’s like to live with not just one but two life-changing illnesses.
Join PH Plus, PHA’s e-mail group for patients living with multiple illnesses. (Membership requires a free Google account.) |
|
|
Autoimmune and autoinflammatory diseases ar e a major health issue. The National Institutes of Health reports that up to 23.5 million Americans are afflicted. The American Autoimmune Related Diseases Association reports the number is closer to 50 million. Scientists and clinicians at The University of Texas Health Science Center at Houston can address the diagnosis and treatment of these conditions, as well as the latest advances in research.
|
|
1. Elderberry
An old folk remedy, extract from these dark berries appears to block flu viruses in test tube studies. And a few small studies done in people show it may help you recover more quickly from flu. But scientists caution that further study is needed. The fruit itself is rich in antioxidants and may also have the ability to fight inflammation. |
|
|
Abstract
Objective. Clinical markers are needed to identify scleroderma patients at risk for pulmonary arterial hypertension (PAH) since early therapy may improve survival. We investigated whether increased numbers of telangiectases in scleroderma associate with measures of pulmonary vascular disease. |
|
|
This information was prepared to help patients and their families cope with chronic illness. It contains quotes from adult Clinical Center patients who face a variety of medical problems.
Some of their reactions may echo your own feelings; others may not. Regardless of the differences, however, these comments may assist you, and those who care about you, to respond to your concerns. |
|
|
 Whether you spend the winter hibernating inside or braving the chill of the great outdoors, chances are your skin is suffering during the coldest months of the year. For people with lupus who may already be dealing with photosensitivity, skin rashes or lesions, and side effects from medication, winter's freezing temperatures, low humidity, and wind exposure just make things worse. It's no surprise that people find themselves battling dry, cracked skin and "winter itch."
|
|
|
