Scleroderma Foundation

In This Issue

Have You Experienced a Lifetime Cap on Your Health Insurance?

Musculoskeletal Rehabilitation in the Person with Scleroderma

Safe Treatment Options for Raynaud's

Tips for Low-cost Health

Take Charge of Your Health

Small Intestine Bacterial Overgrowth (SIBO)

Health Info 2010 Pocket Bone Planner

Your Health: Winter Can Be Tough on the Body

Why Does the Cold Make Our Joints Hurt?

What's Added to Your Food

FREE Scleroderma Window Decal

Scleroderma Student Essay Contest

Upcoming Events

Drug Discount Card

Advocacy Update

PHOTO OF THE WEEK

Lake Geneva, Wis.Lake Geneva walkers. Walkers at the Partners For A Cure Walk, Lake Geneva, Wisconsin.

Window Decal with Cookbook Purchase

Our cookbooks make great gifts. The first 100 people to order one or more get a FREE window cling. Shop here!

Scleroderma Student Essay Contest

Choosing scleroderma as a research topic helps to not only spread the word about the disease, but also helps to inform others about how they too can join the fight against scleroderma. You can win a Wii system or even a trip to Boston!

Needymeds Drug Discount Card

A way to save on your prescription medications.

Scleroderma Legislation

Help us pass these bills.

S. 1545

H.R. 2408

 
Scleroderma Foundation eLetter

Friday, January 8, 2010– Issue #330

eLetter Archive

URGENT!

Have You Experienced a Lifetime Cap on Your Health Insurance?

The Scleroderma Foundation is interested in speaking with scleroderma patients who currently have lifetime cap insurance policies and/or who have experienced a cap limiting their access to healthcare.  Individuals who fit the description(s) above are asked to contact Sondria Berman toll free at 1-800-722-4673 ext. 48 or by email at sberman@scleroderma.org to discuss a possible media opportunity.  Please note that this is a time-sensitive request, and all candidates should contact the Foundation on or before Tuesday, January 12th.

Janet L. Poole, Ph.D., OTR/L

Janet L. Poole, Ph.D., OTR/L.

Musculoskeletal Rehabilitation in the Person with Scleroderma

Janet L. Poole, Ph.D., OTR/L

Abstract

Purpose of review: The purpose of this review is to examine current evidence for the efficacy of rehabilitation techniques for musculoskeletal impairments in persons with scleroderma.

Recent findings: The current literature on rehabilitation techniques consists of studies evaluating the effectiveness of paraffin wax treatment, hand and face stretching exercises, connective tissue massage and joint manipulation, splints, and aerobic exercise and resistance training. Only four randomized controlled trials were found and except for those studies, the majority of studies involved small sample sizes and no control groups. However, except for splints, these studies show improvement in joint motion, hand function, and cardiopulmonary endurance.

Summary: Although the results from these small studies are promising, larger, randomized controlled studies are needed to fully determine the effectiveness of rehabilitation techniques for persons with scleroderma.

Keeping Warm with Raynaud's

With the recent cold spells that have developed across most of the country, it's important that individuals living with Raynaud's protect themselves from the perils of winter weather.  Below is an article that offers some helpful insights on how to stay warm during these blustery days.  For more tips on how to manage Winter gloves.Raynaud's symptoms during the winter season, visit the Scleroderma Foundation Web site (www.scleroderma.org), as well as the Web site of the Raynaud's Association (www.raynauds.org). 

Safe Treatment Options for Raynaud's

Simple and inexpensive home remedies or lifestyle changes may help prevent cold hands and feet associated with Raynaud's Disease or Phenomenon.

Woman paying bills.Tips for Low-cost Health

L.A. Times

For 2010, we'd like to offer a few free health suggestions, aimed at giving you a healthier, and more affordable, year. It's easy to save on wellness. Our advice is free, and so are many of the options.

A couple biking.Take Charge of Your Health

AARP Magazine

Patients with diabetes, heart disease, and arthritis are embracing a self-management plan that dramatically improves their lives. So why won't insurers pay for it?

Small Intestinal Bacterial Overgrowth (SIBO)

Small intestinal bacterial overgrowth (SIBO) refers to a condition in which abnormally large numbers of bacteria (at least 100,000 bacteria per ml of fluid) are present in the small intestine and the types of bacteria in the small intestine resemble more the bacteria of the colon than the small intestine.

NIAMS 2010 Bone Planner

Health Info 2010 Pocket Bone Planner

2010 Pocket Planner with tips and resources for healthy bones for life from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS.) Order a FREE copy from the NIAMS website.

Man bundled up for winter weather.Your Health: Winter Can Be Tough on the Body

Kim Painter, USA Today

Happy winter. It's cold in much of the country and a perfect time for a brisk walk, a bracing run or a giddy trip down a ski slope. But winter also can be hazardous to health — and may be especially tough on hearts, hips, hands and hides (your skin).

Woman rubbing aching knee.Why does the cold make our joints hurt?

Chicago Tribune

If your joints are groaning loudly these days, go ahead and blame the cold weather. In some people, the changes that bring frigid temperatures may worsen inflammatory conditions such as arthritis and joint pain, affecting the hips, knees, elbows, shoulders and hands.

What's Added to Your Food?Woman checking food label

Phil Lampert, Supermarket Guru, AARP Magazine

These days, people need to follow specific diets for many reasons—from chronic conditions to allergies to a simple desire for better health and fitness. That means more and more of us—especially as we get older—want to know exactly what’s in the food we're eating.

Upcoming Events

Feb. 10–12, 2010 (Wed.–Fri.) 1st World Scleroderma Congress (Florence, Italy)
Mar. 9 (Sat.) 9th Annual Cheri Woo Education Seminar (Hillsoboro, Ore.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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