Scleroderma Foundation

In This Issue

Jefferson Awarded Multi-Million Dollar NIH Grant To Create A Center Of Excellence For Autoimmune Diseases

Researching Morphea: UV-A1 Phototherapy Recommended for Darker-Skinned Patients

Childhood Arthritis and Rheumatology Research Alliance (CARRA)

Patients Turn To Online Community For Help Healing

What Is a Colonoscopy?

Urinary Tract Conditions: Examining the Evidence on Cranberry and Saw Palmetto

PHA Conference Scholarship Applications Available

7th International Congress on Autoimmunity, Ljubljana, Slovenia, May 5–9, 2010

FREE Scleroderma Window Decal

Scleroderma Student Essay Contest

Upcoming Events

Drug Discount Card

Advocacy Update

PHOTO OF THE WEEK

Promoting the "Scleroderma Awareness Act" – Annie Valle, Board member of the Michigan Chapter meets with Congressman John D. Dingell (15th District, MI) and Jeffrey P. Lamarand, Mayor of Taylor, Mich.
Promoting the "Scleroderma Awareness Act" – Annie Valle, Board member of the Michigan Chapter meets with Congressman John D. Dingell (15th District, MI) and Jeffrey P. Lamarand, Mayor of Taylor, Mich.

Scleroderma Foundation CookbookWindow Decal with Cookbook Purchase

Our cookbooks make great holiday gifts? The first 100 people to order one or more get a FREE window cling. It is never too early to shop!

Scleroderma Student Essay Contest

Choosing scleroderma as a research topic helps to not only spread the word about the disease, but also helps to inform others about how they too can join the fight against scleroderma. You can win a Wii system or even a trip to Boston!

Needymeds Drug Discount Card

A way to save on your prescription medications.

Scleroderma Legislation

Help us pass these bills.

S. 1545

H.R. 2408

Scleroderma Foundation eLetter # 275

Friday, December 11, 2009 – Issue #326

eLetter Archive

Abdolmohamad Rostami, M.D. Ph.D.

Abdolmohamad Rostami, M.D. Ph.D.

Jefferson Awarded Multi-Million Dollar NIH Grant To Create A Center Of Excellence For Autoimmune Diseases

The Department of Neurology at Jefferson Hospital for Neuroscience has been awarded a multi-million dollar grant from the National Institutes of Health (NIH) for the creation of a center of excellence to study autoimmune diseases from basic science research to its translation into clinical applications. The five-year grant initially totals over $4 million, but could be as much as $10 million by the end of award period.

Heidi Jacobe, M.D.

Heidi Jacobe, M.D.

Researching Morphea: UV-A1 Phototherapy Recommended for Darker-Skinned Patients

World report — Darker-skinned patients with morphea and related diseases are as likely to benefit from ultraviolet (UV) light therapy as patients with lighter skin. Some clinicians had speculated that the increased level of melanin found in darker skin might impede UV-A1, but that does not appear to be the case.

Heidi Jacobe, M.D., assistant professor of dermatology at the Southwestern Medical School, in Dallas, undertook the study because most evaluations of UVA therapy are conducted in Europe with fair-skinned Fitzpatrick type I and II patients. Furthermore, the speculation of muted response to therapy did not seem to correlate with what she was seeing in the clinic.

Childhood Arthritis and Rheumatology Research Alliance (CARRA)Childhood Arthritis and Rheumatology Research Alliance (CARRA)

Fact Sheet

What
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) is a North American organization of pediatric rheumatologists who have joined together to answer critical clinical research questions. We are committed to advancing the health and quality of life of children living with rheumatic disease and arthritis. We have developed an ambitious scientific agenda that identifies critical clinical science needs and opportunities in our field. CARRA has created a multi-center network of pediatric rheumatology research centers across North America that is working together on investigations.

Patients Turn To Online Community For Help HealingPatients Turn To Online Community For Help Healing

When Americans go looking for information on health, they turn to the Internet as one of their first sources. According to a recent survey by the Pew Internet and American Life Project, 61 percent of adults say they look online for health information. There's a term for them: e-patients.

What Is a Colonoscopy?What Is a Colonoscopy?

Colonoscopy is a procedure used to see inside the colon and rectum. Colonoscopy can detect inflamed tissue, ulcers, and abnormal growths. The procedure is used to look for early signs of colorectal cancer and can help doctors diagnose unexplained changes in bowel habits, abdominal pain, bleeding from the anus, and weight loss.

CranberriesUrinary Tract Conditions: Examining the Evidence on Cranberry and Saw Palmetto

Patients with urinary tract infections (UTIs) or benign prostatic hyperplasia (BPH) often ask health care providers about using complementary and alternative medicine (CAM) to relieve symptoms or prevent recurrences.

Conference Scholarship Applications Available for PHA's 9th International Pulmonary Hypertension Conference and Scientific Sessions

Conference Scholarship Applications Available for PHA's 9th International Pulmonary Hypertension Conference and Scientific Sessions

PHA's 9th International Pulmonary Hypertension Conference and Scientific SessionsRiding the Wave to a Cure is the largest meeting of PH patients and PH treating medical professionals in the world providing education, networking opportunities and, above all, hope for a cure.

7th International Congress on Autoimmunity, Ljubljana, Slovenia, May 5–9, 2010

Call for Abstracts Extension
Due to the high level of interest from participants, we are pleased to announce that the abstract submission deadline for the 7th International Congress on Autoimmunity has been extended until Monday, December 21, 2009.

Participants wishing to submit abstracts for oral or poster presentation at the congress are invited to do so via the congress Web site.

Upcoming Events

Dec. 12 (Sat.) Oregon Chapter Board Meeting (Portland, Ore..)
Dec. 25 (Fri.) Happy Holidays! Office closed for Christmas (Danvers, Mass..)
Jan. 1, 2010 (Fri.) Happy New Year! Office closed for New Year's Day (Danvers, Mass.)
Feb. 10–12, 2010 (Wed.–Fri.) 1st World Scleroderma Congress (Florence, Italy)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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