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Last week the Scleroderma Foundation's e-Letter featured a press release on a clinical study of Gleevec® for treatment in scleroderma. The Foundation's Medical Advisory Board discussed this issue and has provided the Foundation with the following additional information about Gleevec®.
The Scleroderma Foundation takes very seriously its responsibility to provide its members and subscribers with the latest and most accurate news and information about advances in medical treatments and research. We are fortunate to have the expertise of our Medical Advisory Board, which frequently assists us with the intricacies of scientific advancements, and we appreciate their time and effort to provide this additional information.
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2010 National Conference Heads to Boston 
Mark your calendars! The Scleroderma Foundation recently released the dates for its upcoming 2010 National Conference: July 30th-August 1st, 2010 at the Sheraton Boston Hotel located in downtown Boston! Discounted hotel rooms are already being set aside at the Sheraton for conference attendees and you can start making reservations within the "Scleroderma Foundation" room block now. Further information regarding conference registration and other details will be announced in upcoming E-letters as well as on the Foundation’s website.
 The 2010 National Conference will also precede 11th International Workshop on Scleroderma Research at Boston University. This international gathering, which begins on August 1st, is open only to physicians and researchers and not to the public. This coincidental convergence of both conferences provides a great opportunity for the Foundation to seek out even more medical professionals and researchers from all over the world to speak at the national conference!
So don't wait – plan your trip today! Visit Boston and attend the conference while enjoying all historical and cultural sights the city has to offer! For more information about Boston’s many attractions, or to begin planning your trip, visit: http://www.10best.com/Boston,MA/. |
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At its most benign, the autoimmune disease scleroderma can discolor parts of the skin of its sufferers. |
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Handout on Health: Rheumatoid Arthritis
This booklet is for people who have rheumatoid arthritis, as well as for their family members, friends, and others who want to find out more about this disease. |
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 Patient Advocate News
A publication of NeedyMeds
The newsletter is now sent to nearly 14,000 people—advocates, health care providers, social workers, people in the pharmaceutical industry, and others who want to learn what's new in the patient assistance world. |
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This tool helps you create personalized booklets to start conversations about health in your family and community.
The sooner we understand the link between our family's health and
our own, the sooner we can make changes and take steps to live longer, healthier lives. A peek into the past can reveal a lot about your future. |
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By William Check, Ph.D.
Many years ago there was a television commercial for a popular light beer in which two groups of football players shouted out what they liked about the product. “Tastes great!” one team yelled. “Less filling!” the other said. What was so wondrous, the advertisement implied, was that one beer could satisfy both groups.
In laboratory medicine, satisfying everyone’s requirements with one product is not so easy. Take antinuclear antibody (ANA) testing to aid in the diagnosis of autoimmune diseases such as systemic lupus erythematosus, or SLE. |
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5 Tips to Optimize the Financial Sustainability of the Gluten-free Diet
Gluten-free (GF) diets can be costly. The availability of GF foods in the marketplace is on the rise, however, the market prices of many of these products make them inaccessible to those on a budget. |
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Taking the wrong medication or the wrong dose can be an easy mistake to make. It can also be life threatening. In this Consumer Update video, FDA Drug Safety Expert, Cindi Fitzpatrick, R.N., provides tips on avoiding medication mistakes. |
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Support Group Leader Interviewed about  Scleroderma
Cynthia Maxwell of Johns Island, Ga. was recently featured as a guest interviewee for the online muscHERO campaign, a project that "promotes greater awareness and understanding of participating in clinical research and the role it plays in improving human health." Cynthia, a support group leader and advocate committed to raising awareness for the disease, spoke about her scleroderma as well as her experience participating in a local clinical trial. You can watch a recording of Cynthia's interview online at: https://sctrweb2.musc.edu/clinical_trials |
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