PHOTO OF THE WEEK

Missouri Chapter Advocacy Efforts. From left: Tom Lindner, Missouri Chapter member; Crystal Quade (Senator McCaskill's staff assistant); Emilie Lindner (Tom's wife); and Mary Blades, Missouri Chapter President.

Scleroderma Student Essay Contest

Choosing scleroderma as a research topic helps to not only spread the word about the disease, but also helps to inform others about how they too can join the fight against scleroderma. You can win a Wii system or even a trip to Boston!

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

Scleroderma Legislation

Learn more about these bills.

S. 1545

H.R. 2408

Friday, October 2, 2009– Issue #316

eLetter Archive

NeedyMeds Drug Discount Card
A way to save on your prescription medications

Have you taken advantage of the new Needy Meds drug discount card? If not, there's no reason to delay! Simply download and print the discount card directly from our Web site, free of charge! There is no registration or enrollment fee. Take your discount card with you each time you visit your local pharmacy to pick up your prescriptions. Present the card to the pharmacist and he/she will scan the discount card to let you know how much you saved! It's that easy!

You can also share the card with your family members and friends. A copy of the card (both sides) works as well as the original. To order a laminated card, please call Kerri Connolly at the Scleroderma Foundation: 1-800-722-HOPE ext. 46.

Scleroderma
This multisystem disease can cause fatigue, disfigurement and depression.

CME Study

Learning Scope #308
1.5 contact hours
Expires June 8, 2011

The goal of this continuing education offering is to educate nurses about the principal manifestations of systemic sclerosis. After reading this article, you should be able to:

1. Define and discuss scleroderma in terms of its diagnosis, treatment, acuity and progression.
2. Discuss the pathogenesis of scleroderma.
3. Plan the nursing care for a patient with scleroderma according to the patient's symptoms.

Vaccines Approved for H1N1 Influenza Virus

The U.S. Food and Drug Administration (FDA) has approved four vaccines for use against the 2009 H1N1 influenza virus.

Scientists Identify New Genetic Risk Factor for Rheumatoid Arthritis

Researchers supported by grants from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) have identified a new genetic risk factor for rheumatoid arthritis (RA). Peter K. Gregersen, M.D., head of the Robert S. Boas Center for Genomics and Human Genetics at the Feinstein Institute for Medical Research, and his collaborators in the North American Rheumatoid Arthritis Consortium (NARAC), identified a gene dubbed REL as being involved in the signaling pathway that can lead to RA.

New NIH Tool Makes Funding Data, Research Results and Products Searchable

Comprehensive funding information for NIH grants and contracts is now available on the NIH Research Portfolio Online Reporting Tool (RePORT) thanks to a new, user-friendly system called the RePORT Expenditures and Results, or RePORTER. RePORTER combines NIH project databases and funding records, PubMed abstracts, full-text articles from PubMed Central, and information from the U.S. Patent and Trademark Office with a robust search engine, allowing users to locate descriptions and funding details on NIH-funded projects along with research results that cite the NIH support.

Longterm Survival Among Patients with Scleroderma-associated Pulmonary Arterial Hypertension Treated with Intravenous Epoprostenol

Badesch DB et al. – This study reports longterm survival rates for patients with scleroderma-associated PAH treated with IV epoprostenol. Although comparisons to historical data should be made with caution, this study reports a better survival outcome than natural history data on patients with scleroderma-associated PAH.

Digestive Health Tips

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