PHOTO OF THE WEEK

Members of the "We Got This One for Cathie" team from the recent New England walk in Topsfield, Mass.

Scleroderma Student Essay Contest

Choosing scleroderma as a research topic helps to not only spread the word about the disease, but also helps to inform others about how they too can join the fight against scleroderma. You can win a Wii system or even a trip to Boston!

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

Scleroderma Legislation

Learn more about these bills.

S. 1545

H.R. 2408

Friday, September 25, 2009– Issue #315

eLetter Archive

2009-2010 Seasonal Influenza Vaccines

The influenza vaccine for the 2009-2010 influenza season is set. Now it's up to you to make sure that you and your loved ones are protected.

Commonly called "the flu," influenza is a contagious respiratory illness caused by influenza viruses.

2009 National Conference Handout Available

Murali Chakinala, M.D., FCCP, Associate Professor of Medicine at Washington University, has given us his PowerPoint presentation from the 2009 National Patient Education Conference. His topic was "Challenges of Pulmonary Hypertension in Scleroderma."

Systemic Sclerosis

Reliability and validity of the University of California, Los Angeles Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument

Abstract

Objective
To refine the previously developed scleroderma (systemic sclerosis [SSc]) gastrointestinal tract (GIT) instrument (SSC-GIT 1.0).

Lowering Salt in Your Diet

Everyone needs some salt to function. Also known as sodium chloride, salt helps maintain the body's balance of fluids. Salt also functions in many foods as a preservative, by helping to prevent spoilage and keeping certain foods safe to eat. But nearly all Americans consume more salt than they need, according to the 2005 Dietary Guidelines for Americans.

WELCOME to Advocacy for Patients with Chronic Illness, Inc., where patients can get free information, advice, and advocacy services in areas including but not limited to the following:

• How to get your own medical records.
• How to get and keep health insurance.
• How to get health insurance coverage for particular treatments, drugs, and/or therapies.

And more!

Generic Drugs: Questions and Answers

What are generic drugs?

A generic drug is identical--or bioequivalent--to a brand name drug in dosage form, safety, strength, route of administration, quality, performance characteristics and intended use.  More about generic drugs.

September "VOICE" Is on Its Way!

The September "VOICE" is being mailed out next week, so be sure to check your mailboxes for its arrival! Features include a wrap-up of the 2009 National Patient Education Conference and photos of the 2009 Conference Award Winners, along with many other scleroderma stories, articles, and reports! Read about how Jessica Ferguson battled her scleroderma and emerged a champion, or how Rosemarie Campaña’s artistic talents helped her to cope with scleroderma. Learn more about the basics of estate planning with Heidi Klippel, Esq., as she explains how and why legal forms can benefit you and your loved ones both now and in the future! And don’t forget to check out the Bulletin Board and Faces & Voices sections to find out the latest news from the Foundation and scleroderma community members!

Upcoming Events

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

© Copyright 2001–2009 Scleroderma Foundation. All Rights Reserved.
Disclaimer. Privacy Policy. Webmaster

Donate Contact Us. eLetter Magazine Medical Archive
Online Support Community National Conference SF Store Home