Photo of the Week

The Omaha Support Group went to "Estherville Sweet Corn Days." They had a float in the parade and sold root beer floats. Their parade float was a big hot air balloon to represent their "Float Away Scleroderma" theme.

DID YOU KNOW?

Sending an Email to Multiple Recipients – Cc: and Bcc:

Use Cc and Bcc to send an email to more than one person easily and fast!

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

Scleroderma Legislation

Learn more about these bills.

S. 1545

H.R. 2408

Friday, August 28, 2009– Issue #311

eLetter Archive

Tracleer Receives Label Extension in the U.S. for the Treatment of Patients with Mildly Symptomatic WHO Functional Class II Pulmonary Arterial Hypertension

ALLSCHWIL, SWITZERLAND – Actelion Ltd (SIX: ATLN) announced that the U.S. Food and Drug Administration (FDA) has approved the company's supplemental New Drug Application (sNDA) for Tracleer® (bosentan) to treat patients with mildly symptomatic WHO Functional Class II (FC II) pulmonary arterial hypertension (PAH). The U.S. FDA has also approved Actelion's Risk Evaluation and Mitigation Strategy (REMS) for Tracleer®.

Ventavis (Iloprost) in Pulmonary Arterial Hypertension Receives U.S. Approval for Increased 20 mcg/ml Strength Formulation

ALLSCHWIL, SWITZERLAND – Actelion Ltd (SIX: ATLN) announced that the U.S. Food and Drug Administration (FDA) has approved a new 20 microgram per milliliter (mcg/ml) formulation of Ventavis® as a therapy for New York Heart Association Class III and IV pulmonary arterial hypertension (PAH). This new increased 20 mcg/ml strength formulation will deliver the same dose in half the volume which is expected to reduce inhalation time and further support patient compliance.

Support the Foundation's Advocacy Program

One of the most significant advances to increase funds to support scleroderma-related research at the national level is happening right now in the halls of the United States Congress.

Scleroderma Survey

Evelyn, a high school senior from New York, is looking for individuals with scleroderma to participate in an anonymous online survey for her upcoming research project on "Depression and Scleroderma."

Be Your Own Advocate

One of the crucial issues facing us today is how to improve health care quality, access, costs and coverage for all Americans.You can improve your odds of getting the care you need by advocating on your own behalf. Here are some tips to get you started.

Slideshow: Rheumatoid Arthritis (RA) Pictures

What is rheumatoid arthritis?
Rheumatoid arthritis (RA) is an autoimmune disease that causes chronic inflammation of the joints. Rheumatoid arthritis can also cause inflammation of the tissue around the joints, as well as in other organs in the body.

There are 22 photos with descriptions to help you understand more about arthritis.

Enter the Girlshealth.gov Be Heard! Sounding Board Contest

DEADLINE EXTENDED TO 9/30!

Are you outgoing, passionate, and active in school or your community? Do you stay on top of what’s going on in your world and love to talk to others about it?  Want a chance to make your opinions count in a place where you can really BE HEARD?!

Girlshealth.gov is giving you a chance to be a member of our Sounding Board — a group of girls who share their opinions about everything from what’s going on in their lives to what’s new on the Girlshealth.gov Web site. They’re expanding their "Sounding Board" to 100 girls and we want to invite you to submit your application to be a part of this exciting event.

For an entire year, you will be a part of girls-only blogs, chats, and e-mails where your opinions matter and your voice will be heard.  Win great prizes like backpacks, t-shirts, and baseball hats for participating in these activities!

Upcoming Events

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