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Senator Kirsten Gillibrand (D-NY) |
Last week Senator Kirsten Gillibrand (D-NY) introduced scleroderma-specific legislation in the U.S. Senate. S. 1545, the “Scleroderma Research and Awareness Act” is a companion bill to H.R. 2408, the “Scleroderma Research and Awareness Act,” which is being considered in the U.S. House of Representatives. The text included in both bills is the same. Each bill calls for significant increases in scleroderma research funding at the National Institutes of Health (NIH) and for significant increases in funding for public awareness of scleroderma by the Centers for Disease Control and Prevention (CDC). |
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Are you one of the many people who are living with systemic sclerosis and also with pulmonary arterial hypertension? If so, and if you are taking an Actelion Pharmaceuticals PAH therapy, a new interactive Web-teleconference series offered by Actelion may be of help.
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PHA on the Road presentation materials are now available online! Please check out their Session Slides, Handouts and Recordings page to view handouts and slides on PH and associated conditions, healthy eating habits, lifestyle modifications, exercise and much more! |
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 Find information on:
- Support Groups
- Non-Profit Resources
- Financial Aid
- Products and Services
- Rural Caregiver Resources
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Dr Henrik Sjogren first described Sjogren’s syndrome hence its name. Sjogrens is a chronic autoimmune disorder in which immune cells attack and destroy the glands that produce tears and saliva. The hallmark symptoms of the disorder are dry mouth and dry eyes. Sjogren’s syndrome can occur in two ways: primary and secondary. Both forms affect roughly an equal number of people. |
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Peruse a calendar of events (conference, meetings, etc.) in which you can learn more about the Ticket to Work Program. This is also an opportunity to meet others with disabilities and those engaged in disability and work related activities. |
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Vitamin D deficiency has been linked to a host of age-related health conditions such as high blood pressure, osteoporosis and even overall mortality. Vitamin D is fast on its way to becoming the “number one vitamin.” |
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