Scleroderma Foundation

In This Issue

Conference Photos

Safe Sun Protection

Yoga Off the Mat: At Your Desk

Some Bacteria Can Be Good For Your Stomach And Digestion

Take PHA Survey!

1st Systemic Sclerosis World Congress

Upcoming Events

Photo of the Week

Stepping Out Walks

H.R. 2408 – 31 Cosponsors

Photo of the Week

Alexander, Harrison, and Nicholas Murray (brothers of Teen Ambassador Samantha Murray) enjoyed the 2009 National Conference!
Alexander, Harrison, and Nicholas Murray (brothers of Teen Ambassador Samantha Murray) enjoyed the 2009 National Conference!

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

US Capitol Building
Scleroderma Bill H.R. 2408

We now have 29 representatives who have signed on!

Pfizer, Inc. Logo

2009 Communications Sponsor

Scleroderma Foundation eLetter

Friday, July 31, 2009– Issue #307

eLetter Archive

Ashley Smith and Ernie Ross of Actelion Pharmaceuticals US, Inc.

Ashley Smith and Ernie Ross of Actelion Pharmaceuticals US, Inc.

National Conference – Photos from Entire Weekend Are Up!

Are you still basking in the glow of Conference? We are, too! Keep that feeling alive by taking a trip down memory lane and viewing one or all of our comprehensive photo slideshows. We've captured many candid moments throughout the weekend in St. Louis! Take this opportunity to re-live all the excitement by looking over pictures taken of special events, family, friends and colleagues!

If there is a photo you'd like, let us know by e-mailing webmaster@scleroderma.org.

Information for Those Living with Pulmonary Arterial Hypertension

PAH Pathways/Sure Steps Connect

August 6 and 13
Are you one of the many people who are living with systemic sclerosis and also with pulmonary arterial hypertension? If so, and if you are taking an Actelion Pharmaceuticals PAH therapy, a new interactive Web-teleconference series offered by Actelion may be of help.

SunglassesSafe Sun Protection

By now, most people know it’s a bad idea to head out in the sun for hours of sunbathing to earn a golden tan. But there’s more to sun protection than just dabbing on any old sunblock. And, particularly for people with specific autoimmune disorders, protection from the sun should be a serious perennial consideration.

Yoga Off the Mat: At Your DeskYoga Off the Mat: At Your Desk

The beauty of yoga as a way to balance all aspects of your mental and physical health is that you really don’t need any equipment nor do you need to designate separate time to practice. In fact, some would say that the very purpose of yoga is that it can be taken off the mat and integrated into your everyday life.

BacteriaSome Bacteria Can Be Good For Your Stomach And Digestion

Irritable Bowel Syndrome (IBS) is one of the most common gastrointestinal disorders. The condition, with symptoms including abdominal pain, constipation and/or diarrhea, affects up to one in five Americans and is second only to the common cold as a leading cause of workplace absenteeism in the U.S.

PHA LogoPatient and Family Member Focus Groups

TAKE THE SURVEY!
Closing date: July 31

Thank you for your interest in helping PHA identify new programs for specific groups of PH patients and caregivers. The survey should take you less than five minutes to complete.

1st Systemic Sclerosis World Conference
February 11–13, 2010

1st Systemic Sclerosis World Conference

With the Support of:
EUSTAR
FESCA
Scleroderma Foundation

Co-Chairs
DE Furst & M Matucci-Cerinic

An interdisciplinary conference for cardiologists, dermatologists, nephrologists, pulmonologists and rheumatologists.

The aim of the congress is to foster outstanding research into the cause(s) and understanding of systemic sclerosis and to improve clinical care and awareness of scleroderma, worldwide. A special focus will be put on young investigators with a programme fostering direct contact with the experts.

Upcoming Events

July 31 (Fri.) The Kathleen Basile Memorial Golf Tournament (Lilburn, Ga.)
July 31 (Fri.) "Broadway's After The Show" (Lilburn, Ga.)
Aug 1 (Sat.) WNBA Chicago Sky Benefit Game Chicago, Ill.)
Aug 8 (Sat.) Oregon Chapter Board Meeting Portland, Ore.)
Aug 15 (Sat.) "Stepping Out to Cure Scleroderma" Walk York, Pa.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

© Copyright 2001–2009 Scleroderma Foundation. All Rights Reserved.
Disclaimer. Privacy Policy. Webmaster


Donate Contact Us. eLetter Magazine Medical Archive
Online Support Community National Conference SF Store Home

Email Marketing by