Scleroderma Foundation

In This Issue

National Conference Online Registration Info

National Conference Speaker Update

Limited Scleroderma (CREST Syndrome)

Systemic Sclerosis

HUD to Offer Housing Assistance to 4,000 Americans with Disabilities

Can You Protect Your Job Working with a Chronic Illness?

Nominate a Woman of Worth

H.R. 2408 – 24 Cosponsors Now Signed on!

Upcoming Events

Photo of the Week

Stepping Out Walks

Photo of the Week

Oregon Scleroderma Awareness team helped to inform and educate the general public on the set of Portland KATU Channel 2s “AM Northwest” live morning program. Chapter member Gaye Moye Jacobs (left), Support Group Leader Donna Stone, and Dr. Lauren H. Kim, M.D., exchanged news and views with host Dave Anderson on June 29 during national awareness month.
Oregon Scleroderma Awareness team helped to inform and educate the general public on the set of Portland KATU Channel 2s “AM Northwest” live morning program. Chapter member Gaye Moye Jacobs (left), Support Group Leader Donna Stone, and Dr. Lauren H. Kim, M.D., exchanged news and views with host Dave Anderson on June 29 during national awareness month.
(Fay Maushard photo)
.

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

Scleroderma Bill H.R. 2408Update!

We now have 24 representatives who have signed on!

Pfizer, Inc. Logo

2009 Communications Sponsor

Scleroderma Foundation eLetter

Friday, July 10, 2009– Issue #304

eLetter Archive

ONLINE REGISTRATION FOR THE NATIONAL PATIENT EDUCATION CONFERENCE ENDS SUNDAY, JULY 12

Are you planning to attend the National Patient Education Conference and want to register online? Please do so BY Sunday, July 12 at 11:59 p.m. For registrations after Sunday, please call our office at 800-722-4673 and your registration will be taken over the phone. Walk-in registrations are also welcome in St. Louis.

Register online.

What to Wear at the National Conference.

Information for Those Living with Pulmonary Arterial Hypertension

PAH Pathways/Sure Steps Connect

Are you one of the many people who are living with systemic sclerosis and also with pulmonary arterial hypertension? If so, and if you are taking an Actelion Pharmaceuticals PAH therapy, a new interactive Web-teleconference series offered by Actelion may be of help.

Murali Chakinala, M.D.

Murali Chakinala, M.D.

John Varga, M.D.

John Varga, M.D.

Linda Lee Wells Memorial Education Workshops – Speaker Update

"Lung Transplantation – Is It an Option?" by Murali Chakinala, M.D. and "Scleroderma Tests and What They Mean" by John Varga, M.D.

Limited Scleroderma (CREST Syndrome)

Mayo Clinic Logo

Definition
By Mayo Clinic staff

Limited scleroderma, or CREST syndrome, is one subtype of scleroderma — a condition that literally means "hardened skin."

The Pronounced Th17 Profile in Systemic Sclerosis (SSc) Together with Intracellular Expression of TGFβ and IFNγ Distinguishes SSc Phenotypes

Abstract

Background

Systemic sclerosis (SSc) is an autoimmune disease where controversy on Th1/Th2 balance dominates. We investigated whether the recently discovered Th17 pattern was present in SSc.

This article is a technical article.

HUD to Offer Housing Assistance to 4,000 Americans with Disabilities

HUD LogoWASHINGTON – The U.S. Department of Housing and Urban Development joined President Obama's commemoration of the tenth anniversary of the Supreme Court's Olmstead decision by announcing that it will offer rental assistance to 4,000 non-elderly families with disabilities, including 1,000 vouchers specifically targeted to those transitioning out of nursing homes and other care facilities.

Rosalind Joffe

Rosalind Joffe

Can You Protect Your Job Working with a Chronic Illness?

Check out the very useful information in "The New York Times," Patient Money column, Protecting Your Job When You Live with Chronic Illness by Lesley Alderman.

And, yes, there are several quotes from me.

Nominate your Woman of Worth!

Upcoming Events

July 11 (Sat.) "Hugs for Hope" Fundraiser (Cranbrook, B.C. CANADA)
July 11 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Portland, Ore.)
July 12 (Sun.) "Stepping Out to Cure Scleroderma" Walk (San Diego, Calif.)
July 12 (Sun.) Car Wash Fundraiser (North Bergen, N.J.)
July 17–19 (Fri.–Sun.) Scleroderma Foundation National Patient Education Conference (St. Louis, Mo.)
July 27 (Mon.) Seventh Annual Golf Classic To Cure Scleroderma (Peabody, Mass.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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