Scleroderma Foundation

In This Issue

REGISTER FOR THE NATIONAL CONFERENCE NOW!

Linda Lee Wells Memorial Education Workshops – Speaker Update

FDA Promotes Openness and Transparency to Public

Tips and Techniques for Dealing with Stress

Dysphagia in Children

Three Pool Exercises That Won't Embarrass You

Botulinum toxin ("Botox") Alert

H.R. 2408 – 24 Cosponsors Now Signed on!

Upcoming Events

National Conference Hotel Update

Photo of the Week

Stepping Out Walks

Photo of the Week

Little baby Luke prepares for the Missouri walk coming up in October!
Little baby Luke prepares for the Missouri walk coming up in October!

National Conference Hotel Rate Extended to June 29!

more.

Stepping Out to Cure Scleroderma Walks – There Are More Left!

Find a walk near you!

Scleroderma Bill H.R. 2408Update!

We now have 24 representatives who have signed on!

Pfizer, Inc. Logo

2009 Communications Sponsor

Scleroderma Foundation eLetter

Friday, June 26, 2009– Issue #302

eLetter Archive

YOU MUST REGISTER TODAY FOR THE NATIONAL PATIENT EDUCATION CONFERENCE TO SAVE $50!

If you want to attend the National Patient Education Conference, register today. If it is after 5 p.m. EST, you can register online and receive the discounted registration rate.

Thomas J. A. Lehman, M.D.

Linda Lee Wells Memorial Education Workshops – Speaker Update

"Juvenile Scleroderma – Medical Aspects," by Thomas J. A. Lehman, M.D.

Questions for Stem Cell Panel Discussion

Last year we introduced the "Stem Cell Panel Discussion," which was well received. Due to popular demand, we are again offering this workshop. In this stem cell panel discussion, different types of stem cell transplant procedures will be discussed. We would like to collect your questions relating to this topic and present them to the moderator.

FDA LogoFDA Promotes Openness and Transparency to Public

What is the Food and Drug Administration (FDA) announcing?

FDA is announcing the formation of a Transparency Task Force to recommend ways to improve the openness and transparency of the agency’s information. This will help make useful and understandable information about FDA activities and decision making more readily available.

Tips and Techniques for Dealing with Stress
By Dr. Rita Nachen Gugel

Today's Caregiver Logo

Change is an expected part of our daily lives today. Dealing with it so that YOU control IT rather than vice versa is an important and positive force in controlling your life. Try a few of these tips.

Dysphagia in ChildrenDysphagia in Children

Dysphagia or difficulty in swallowing, is a common disorder in children. The child is unable to eat food properly, which leads to other problems.

We usually think that swallowing is a simple and uncomplicated process. Contrary to this belief, swallowing is a fairly complex process, that involves almost 50 pairs of muscles and nerves.

Woman swimming in a pool.

Three Pool Exercises That Won't Embarrass You

You've heard it time and again: water exercise is a great way to build fitness, flexibility and strength without straining your joints. But, let's face it, some of us feel a little self-conscious about working out in a pool.

MouthBotulinum toxin (“Botox”) Alert

Discovery that botulinum toxin when injected at selected sites in the face could temporarily eliminate wrinkles and other signs of aging has led to the commercial success of cosmetic “Botox” type products. But the toxin, produced by the bacterium Clostridium botulinum is a powerful neurotoxin used medically to treat muscle spasticity in children and adults and also as an alternative to surgery in treating a relatively rare condition called masseter muscle hypertrophy. In that condition one or both masseter muscles, which are used in chewing, swells in the area near the angle of the lower jaw, the mandible. The swelling may be disfiguring and also cause pain. Injection of the neurotoxin into the muscle inhibits the action of neurotransmitters causing selective paralysis and subsequent atrophy of the muscle. 

Upcoming Events

June 27 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Syracuse, Utah)
June 27 (Sat.) "Stepping Out to Cure Scleroderma" Walk (Dallas, Texas)
June 28 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Plymouth, Mass.)
June 28 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Highland Park, Ill.)
June 28 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Stamford, Conn.)
June 28 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Willoughby, Ohio)
July 11 (Sun.) "Stepping Out to Cure Scleroderma" Walk (Portland, Ore.)
July 11 (Sun.) "Stepping Out to Cure Scleroderma" Walk (San Diego, Calif.)
July 17–19 (Fri.–Sun.) Scleroderma Foundation National Patient Education Conference (St. Louis, Mo.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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