Photo of the Week

From left: Dr. David Burack, Pedro (group mascot), and Sherron Coleman from the Piedmont S.C. Support Group. Twenty-five patients and family members from nearby towns of Charlotte and Shelby, N.C. and Rock Hill, York, and Blacksburg, S.C. attended the group meeting, which was held on June 1st.

National Conference Hotel Rate Extended to June 29!

more.

Stepping Out to Cure Scleroderma Walks Gearing Up

Find a walk near you!

Scleroderma Bill H.R. 2408

Please help us promote the first bill in Congress promoting research and awareness of scleroderma.

Friday, June 12, 2009– Issue #300

eLetter Archive

300, and Still Going Strong!

Today the Scleroderma Foundation celebrates its 300th e-Letter! Created in 2004, the weekly online publication has delivered prudent information on scleroderma to individuals across the globe. Starting with just 2,000 subscribers, the e-Letter has grown to include over 9,000 members to date. The increased popularity of the Foundation's e-Letter has indeed mirrored the progress of the Foundation's overall mission of support, education, and research, and promises to become an even greater resource to members in the future!

REGISTER NOW FOR THE NATIONAL PATIENT EDUCATION CONFERENCE IN ST. LOUIS!

You don't have to wait for the "Scleroderma Voice" (in the mail now) to arrive in your mailbox, you can register TODAY for the National Patient Education Conference by clicking here.

Read about the conference and the newest workshops in the next story.

Susan A. Nyanzi

Robert Lafyatis

Linda Lee Wells Memorial Education Workshops – Speaker Update

"Public Health and Preventive Screenings – We Still Have to Do Them," by Susan A. Nyanzi, Dr.PH, M.P.H., C.H.E.S., A.C.S.M. and "Pulmonary Fibrosis," by Robert Lafyatis, M.D.

Walter Coyle

Walter A. Coyle Memorial Scholarship Fund Recipients Named

This week, 20 applicants from 17 states were selected to receive National Conference Scholarships for the 2009 National Patient Education Conference in St. Louis, Missouri. The scholarships, which included both partial and full scholarship funding, were distributed by the newly created Walter A. Coyle Scholarship Memorial Fund. The Fund, which is expected to become an annual program, was developed in honor of the late Walter A. Coyle's longstanding efforts to promote support and education services for scleroderma patients and their families. Sponsor support from MediQuest coupled with national, chapter, and individual donations, allowed the scholarship program to award over $16,000 in funds to needy individuals from across the nation.

Co-Sponsorship of Pulmonary Fibrosis Research Enhancement Act 2009 Increases to 27 Members

SAN JOSE, Calif., PRNewswire-USNewswire – The CPF announced that the Pulmonary Fibrosis Research Enhancement Act (PFREA) (H.R. 1079) – which would authorize $16 million in new federal funding for pulmonary fibrosis (PF) research – has now gained the support of 27 Members of the U.S. House of Representatives.

Americans with Disabilities Act (ADA) & Civil Rights Update: Disability Law Handbook from the DBTAC Southwest ADA Center

Provides information on rights and obligations under several federal disability laws, including an overview of the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act. The entire publication can be downloaded in PDF format.

This information has recently been updated, and can be read by visiting this link: www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=219

Follow DisabilityInfo.gov updates at http://twitter.com/Disabilitygov.

FDA Approves ADCIRCA(TM) (Tadalafil) Tablets for the Treatment of Pulmonary Arterial Hypertension

United Therapeutics Corporation (Nasdaq: UTHR) announced today that the United States Food and Drug Administration (FDA) has approved ADCIRCA(TM) (tadalafil) tablets for oral administration, with a recommended dose of 40 mg, as the first once-daily phosphodiesterase type 5 (PDE5) inhibitor for the treatment of pulmonary arterial hypertension (PAH).

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