Photo of the Week

On Wednesday, May 13, Scleroderma Support Group Leader Lisa Somers and patient volunteer Nicki Latimer met with Congresswoman Debbie Halvorsen's (D-IL) chief of staff, regarding the "Scleroderma
Research and Awareness Act." The meeting went very well, with the staff person promising to get the information to the Congresswoman and report back to Lisa. Thank you Lisa and Nicki for taking the time to schedule this meeting.

Stepping Out to Cure Scleroderma Walks Gearing Up

Find a walk near you!

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma.
We need your help!

Friday, May 22, 2009– Issue #297

eLetter Archive

National Conference Hotel Rate Extended to June 22!

Excitement is building for the 2009 National Patient Education Conference being held in St. Louis, and we are happy to report that the Hyatt Regency St. Louis Riverfront has extended its group rate of $139/night through June 22, 2009. This rate is available for rooms booked July 15–July 20, 2009. BOOK EARLY before this rate disappears!

Kathleen Randolph

National Conference: Linda Lee Wells Memorial Workshop Series Speaker Update

"Yoga for Scleroderma" and " Assisted Yoga for Scleroderma," presented by Kathleen Randolph.

Sjögren's Syndrome – Topic Overview

What is Sjögren's syndrome?

Sjögren's syndrome (say "SHOW-grins") is a disorder in which the immune system attacks the body's moisture-producing glands, such as the tear glands and the saliva glands. These glands may become scarred and damaged, and extreme dryness in the eyes and mouth (sicca syndrome) may develop. Sjögren's syndrome may also cause fatigue, pain in the joints, and, in rare cases, problems with the function of vital organs, such as the lungs, kidneys, and nerves.

Experts Are Thinking About What You Eat. Maybe You Should Join Them.

By Jennifer Huget

A few weeks ago I wrote about how challenging it was for even a registered dietitian to plan a day's meals based on the federal government's dietary guidelines. If a pro found it hard to wrestle all those Recommended Dietary Allowances and Adequate Intakes into a reasonable meal plan, how on Earth are we amateurs supposed to incorporate them into our lives?

Federally-funded health centers care for you, even if you have no health insurance.

Find one near you.

National Resource Directory

The National Resource Directory (NRD) is an online tool for wounded, ill and injured Service Members, Veterans, their families, and those who support them. The NRD provides access to more than 11,000 services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration.

Deadline for 2009 National Patient Education Conference Scholarships Is May 28

Thanks to the generous support of Scleroderma Foundation chapters to the Walter A. Coyle Memorial Scholarship Fund and a grant from MediQuest, scholarships will be available to the 2009 National Patient Education Conference in St. Louis.

Upcoming Events

Memorial Day Holiday Schedule for National Office

In observance of Memorial Day, the National Office will be closed on Monday, May 25. We will reopen on Tuesday, May 26.

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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