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Gary Barg |
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Edward Lally, M.D. |
For Caregivers Only – Gary Barg
For Male Patients Only – Edward Lally, M.D. |
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Clinical trials test potential treatments in human volunteers to see whether they should be approved for wider use in the general population. A treatment could be a drug, medical device, or biologic, such as a vaccine, blood product, or gene therapy. |
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Date: April 27, 2009 7:30 AM - 5:30 PM
Location: HSF II Auditorium at the
University of Maryland Baltimore |
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Staying physically fit is a constant struggle for Stephanie Horgan, who, like millions of Americans with gastrointestinal disorders, has to plan her diet, her exercise routines, and her entire life around her condition. |
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Objective. To determine factors that influence 6-minute walk distance (6MWD) in patients with scleroderma (systemic sclerosis, SSc)-interstitial lung disease (ILD), SSc-pulmonary hypertension (PH), and idiopathic pulmonary fibrosis (IPF). |
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When advanced care means  living apart
from your spouse
Marriages that last for a lifetime are rare and precious. Older couples have experienced joys, weathered many storms and have endured the tests of time. Understandably, the impact on the marriage relationship can be overwhelming when advanced care forces one spouse to move to a care facility, causing a separation. |
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Living in the Rockies can produce dry and itchy skin. Lotion will often do the trick. However, for some people dry skin can mean something else…Sjögren’s syndrome. Sjögren’s syndrome is an autoimmune disease in which the body’s immune system attacks the moisture-producing glands, causing inflammation and dryness of the eyes, mouth and other tissues. |
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The Coalition for Pulmonary Fibrosis (CPF) today launched a new public service announcement (PSA) to increase awareness of PF, which affects more than 128,000 Americans. |
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2009 National Patient Education Conference
Scholarships
Are Available
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Walter A. Coyle
1922–2009 |
Thanks to the generous support of Scleroderma Foundation chapters to the Walter A. Coyle Memorial Scholarship Fund and a grant from MediQuest, scholarships will be available to the 2009 National Patient Education Conference in St. Louis.
Conference scholarships are intended for people who would not be able to attend without outside financial assistance. We regret we are unable to assist all those who apply for conference scholarships; however, the Foundation will use the resources our of scholarship funds to assist as many applicants as we are able.
A patient-led committee will administer the award process based on available funds. Download the application here. The application deadline is May 28, 2009.
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