Scleroderma Foundation

In This Issue

People With Scleroderma Needed for Research Study on Challenges to Keep Working

"Newly Diagnosed" Section on SF Website

New and Emerging Therapies

Traveling with Dietary Restrictions

Camp Discovery Accepting Applications for 2009

A Silent Crisis: Working Caregivers Are Begging For Help

Photo of the Week

Stepping Out Walks

National Conference

Commemorative Stamp for Scleroderma

Photo of the Week
Scleroderma Awareness: Tennessee Chapter board member Evette Britton met with Caroline Diaz-Barriga, a staff person in the home district office of Tennessee Rep. Bart Gordon.
Scleroderma Awareness: Tennessee Chapter board member Evette Britton met with Caroline Diaz-Barriga, a staff person in the home district office of Tennessee Rep. Bart Gordon.

Stepping Out to Cure Scleroderma Walks Gearing Up

Find a walk near you!

2009 National Conference registration open

2009 National Patient Education Conference in St. Louis

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma.
We need your help!

Scleroderma Foundation eLetter

Friday, March 20, 2009– Issue #288

eLetter Archive

People with Scleroderma Needed for Research Study on Challenges to Keep WorkingWoman at work

Researchers from the University of New Mexico are seeking participants for a study to identify challenges and adaptations made by persons with scleroderma to continue working.

"Newly Diagnosed" Section on Foundation Web site

New and Emerging TherapiesDermatology Times

While all doctors face the challenge of wanting to be on the cutting edge, it’s important to think about evidence-based support for therapies, says Joseph L. Jorizzo, M.D., professor and founding chairman, department of dermatology, Wake Forest University School of Medicine, Winston-Salem, N.C.

Traveling with Dietary Restrictions

Plate of foodAnyone who has food allergies or follows a special diet (such as kosher or vegan) knows that sticking to your food regimen can sometimes be tricky. But your dietary restrictions don't have to keep you stuck at home and chained to your own kitchen.

Camp Discovery Accepting Applications for 2009

Camp DiscoveryFor young people with a serious skin condition, Camp Discovery offers a summer camping experience unlike any they’ve had before. Every year, the American Academy of Dermatology sponsors a week of fishing, boating, swimming, water skiing, arts and crafts, and just plain fun.

Camp Knutson – Teen Camp
Crosslake, MN
July 510, 2009
Camp Knutson – Junior Camp
Crosslake, MN
July 1117, 2009
Camp Dermadillo
Burton, TX
August 914, 2009
Camp Horizon
Millville, PA
August 1522, 2009

Application can be located at campdiscovery.org.

A Silent Crisis: Working Caregivers Are Begging For Help

By Gema G. Hernandez, D.P.A.

Today's Caregiver - LogoAt a time when private enterprises are trying to increase productivity, reduce costs and enhance the quality of their products or services there is a growing crisis in corporations today that is preventing them from achieving their corporate goals. Few companies realize the implications working caregivers have on their internal costs and their bottom line. Still fewer companies even know where to look for these hidden costs. Only one in seventy midsize to larger companies knows how to address this issue.

Upcoming Events

March 21 (Sat.) Spring Swing Tennis Tournament (Palm Beach Gardens, Fl.)
March 28 (Sat.) Spring Education Day (Whittier, Cal.)
March 28 (Sat.) 2nd Annual Crop for Scleroderma (Allentown, NJ)
April 4 (Sat.) Vertical Cure Ski Event (Mammoth Lakes, Cal.)
April 4 (Sat.) Quest for CREST 5K Walk/run (Hattiesburg, Miss.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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