2009 National Patient Conference
American Recovery & Reinvestment Act
Foundation Has Scleroderma Channel on ICYou.com
TWO DAYS left to Register for Spring Swing
Connective Tissue Disease–associated Pulmonary Arterial Hypertension in the Modern Treatment Era
arGentis Receives Orphan Drug Designation for European Union
10 Questions You Need to Ask About Colonoscopy
AAD: Novel Therapy Effective for Scleroderma Skin Ulcers
Photo of the Week
Stepping Out Walks
Commemorative Stamp for Scleroderma
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DEADLINE TO ENTER: MARCH 15
YOU HAVE TWO DAYS LEFT to register for the Spring Swing Women's Doubles Tennis Tournament at the fabulous, AAA Four Diamond PGA National Resort & Spa in Palm Beach Gardens, Florida, March 21. More...
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Photo of the Week
From left: Congressman Ralph Hall of Texas; Greater North Dallas Support Group
Leader
Emily Woods; Darren Webb of HMCW the Foundation's advocacy consultants; and Texas Chapter President Cindi Brannum. This photo was taken during a recent visit by the chapter members. |
Stepping Out to Cure Scleroderma Walks Gearing Up
Find a walk near you! |
Commemorative Stamp for Scleroderma
The Scleroderma Foundation
is pursuing a commemorative stamp for scleroderma.
We
need your help! |
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 2009 National Patient Conference
The 2009 National Conference is quickly approaching and for scleroderma community members nationwide, the time has finally come to book your reservations! New workshops and other exciting events are continually being added to this year's three-day conference, beginning on July 17, 2009 in St. Louis, Missouri. Seminars and workshops include topics on "Nutrition," "Dental Issues Related to Scleroderma," and "Male Patients and Scleroderma" and many others. To find out more information about the conference, hotel, or to register, call 800-722-HOPE or visit the National Conference webpage at:
www.scleroderma/org/national_conference.htm |
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Letter from Dr. Stephen I. Katz, Director, National Institute of Arthritis and Musculoskeletal and Skin Disease
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Dr. Stephen I. Katz |
Dear Colleagues:
I want to provide information about the tremendous opportunity the NIH has as the recipient of $10.4 billion in stimulus funds as part of the American Recovery and Reinvestment Act (ARRA), signed into law by President Obama on February 17, 2009. This opportunity reflects the Obama Administration's, the U.S. Congress', and, indeed, the nation's, interest in medical research, and demonstrates the important role of medical research funding in the country's economy. The NIH's research funding at universities and research centers across the U.S. supports jobs at these institutions, as well as at the companies, large and small, with products used in medical research. Both of these sectors—academic and commercial—generate patents, technologies, and start-up companies that contribute to new knowledge, discoveries, and better healthcare. |
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 Our "About the Foundation" video is now listed on www.icyou.com. The icyou Web site is the Web’s only destination focused solely on bringing you the whole world of healthcare video. From important medical breakthroughs to the latest diets, from recipes for people with diabetes to vlogs from cancer patients, icyou is healthcare video. They make it simple to find any health-oriented video you seek from hundreds of certified medical and health professionals, as well as regular people dealing with the same issues you are, and much more!
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 Rationale: Pulmonary arterial hypertension in association with connective tissue disease (CTD-PAH) has historically had a poor prognosis, with a 1-year survival rate among patients with systemic sclerosis–associated pulmonary arterial hypertension (SSc-PAH) of 45%. However, more therapies have become available.
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 MEMPHIS, Tenn. — arGentis Pharmaceuticals, LLC announced that the European Medicines Agency (EMEA) accepted the company’s product candidate ARG201 (native type 1 bovine collagen) for the treatment of diffuse systemic sclerosis, also known as systemic scleroderma (SSc) for designation as an orphan medicinal product in the European Union.
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By DOUGLAS K. REX, M.D.
Colorectal cancer is the second leading cause of cancer death in the United States, it affects both men and women and it almost always starts in a benign growth called a polyp. Polyps originate in the inner lining of the colon, where they may be visible during the popular screening test known as colonoscopy |
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Vincent Falanga, M.D. |
Speaking at the 67th Annual Meeting of the American Academy of Dermatology (Academy), dermatologist Vincent Falanga, M.D., F.A.A.D., professor of dermatology and biochemistry at Boston University in Boston and chairman of the department of dermatology and skin surgery at Roger Williams Medical Center in Providence, R.I., presented his study findings in which cultured stem cells and bioengineered skin were used to successfully treat skin ulcers of three scleroderma patients and discussed how bioengineered skin plays a critical role in this procedure. |
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