Scleroderma Foundation

In This Issue

Nonprofit Funds Essential for Researchers

Imatinib Can Reverse Fibrosis in Models of SSc

New Site Helps Researchers Find Non-federal Funds

Caregiving Youth

Bad Breath and Halitosis Cause and Remedy

Cold Hands?

We Need Your Help

February 28 Is Rare Disease Day

Photo of the Week

Spring Swing Deadline to Enter: March 15

Stepping Out Walks

Commemorative Stamp for Scleroderma

Rare Disease Day Logo

February 28 Is Rare Disease Day!

To raise awareness of rare diseases and the need for safe, effective treatments, people around the world will join together to observe the 2nd Annual Rare Disease Day on the last day of February (Feb. 28, 2009).

Photo of the Week
The Scleroderma Foundation extends its congratulations to Lucy Leonard (left) of Lake Havasu City, Arizona. Lucy recently received Special Recognition (physical limitation) and the People's Choice award at the Northern Arizona V.A. Health Care System Veterans Creative Arts Festival this past February.
The Scleroderma Foundation extends its congratulations to Lucy Leonard (left) of Lake Havasu City, Arizona. Lucy recently received Special Recognition (physical limitation) and the People's Choice award at the Northern Arizona V.A. Health Care System Veterans Creative Arts Festival this past February.

Spring Swing 2009

DEADLINE TO ENTER: MARCH 15

Register today for the Spring Swing Women's Doubles Tennis Tournament at the fabulous, AAA Four Diamond PGA National Resort & Spa in Palm Beach Gardens, Florida, March 21.

More...

Stepping Out to Cure Scleroderma Walks Gearing Up

Find a walk near you!

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma.
We need your help!

Scleroderma Foundation eLetter

Friday, February 27, 2009– Issue #285

eLetter Archive

Nonprofit Funds Essential for Researchers

Maureen Mayes, M.D. is a member of the Scleroderma Foundation's Medical Advisory Board

Maureen Mayes, M.D. is a member of the Scleroderma Foundation's Medical Advisory Board

By Maureen Mayes, M.D.

As I hear about charitable institutions losing funding this year due to the economic climate, I think back to 1983 when I received my first research grant.

That grant ultimately decided my career path, my research interest and perhaps, if my colleagues and I are correct in our hypotheses, the course of treatment of an incurable disease.

I received my first grant as a young medical doctor deciding between academic medicine and private practice from the Scleroderma Foundation to study scleroderma, a rare, incurable autoimmune disease.

Imatinib Can Reverse Fibrosis in Models of Systemic Sclerosis

Medscape Today LogoNEW YORK (Reuters Health) –- Imatinib mesylate (Gleevec/Glivec) not only prevents the development of fibrosis in systemic sclerosis but actually reverses established fibrosis in an animal model of the disease.

You will need a login and password to Medscape.com in order to read this article. You can get them free here.

New Site Helps Researchers Locate Non-federal Funds

Julie Koh, Ph.D., Director of Development for Biomedical Research

Julie Koh, Ph.D., Director of Development for Biomedical Research

Thanks to “FIND Grants,” a new Web site that helps Vanderbilt Medical Center faculty, clinicians, and scientists find sources of non-federal funding, the days of inefficient Google searches are over.

FIND Grants, short for Foundation INitiatives Database, allows researchers to hone search criteria by factors such as experience level, citizenship, award amount and deadline to find the funding opportunities for which they are best suited.

Caregiving YouthCaregiving Youth

The face of caregivers in the United States today represents every race, ethnicity and religious sect. They can be found in virtually every zip code. And yet, there is still a population of caregivers that often remains invisible. It is estimated that 1.4 million children in the United States participate in the care of a family member or loved one who is either critically or chronically ill. Either living in the same home or nearby the ailing person, these children partake in a wide variety of activities of daily living including everything from bathing to shopping.

Bad Breath and Halitosis Cause and Remedy

Bad Breath Cause and Remedy Halitosis Causes and CureCategories include:

  • bad breath causes
  • bad breath cures
  • bad breath remedies
  • bad breath remedy
  • bad breath treatment

Cold Hands?Cold Hands?

Don't blame it on the weather: How icy fingers could be a sign of something more serious...

Cold hands are not only a sign that the weather's bitter—they could be a symptom of something more serious.

There are at least a dozen conditions which cause chronic cold hands, including peripheral vascular disease and ME.

WE NEED YOUR HELP

How Do You Generate Awareness for Scleroderma?

The Scleroderma Foundation is asking community members nationwide to share their own creative and unique ways of generating awareness for scleroderma. All responses received will be reviewed by the Foundation’s staff and eligible for inclusion in the upcoming June issue of the "Scleroderma Voice" magazine. Interested individuals may submit their responses (100 words or less) via e-mail at shall@scleroderma.org or by mail: Communications Department, c/o Scleroderma Foundation, 300 Rosewood Drive Suite 105, Danvers, MA 01923. Please be sure to include your contact information with your response. All responses must be received by March 31, 2009 to be eligible for publication.

Upcoming Events

March 6 (Fri.) 2nd Annual "Swing for a Cure" Golf Tournament (Boynton Beach, Fl.)
March 14 (Sat.) "A Morning with Dr Maureen Mayes" (Odessa, TX.)
March 14 (Sat.) 8th Annual Cheri Woo Scleroderma Education Seminar (Portland, OR.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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