Scleroderma Foundation

In This Issue

Spring Swing Deadline: March 15

Caring for the Caregiving Chat

Introducing RCDC

ACG's Digestive Health Tips

Getting Help With Medicare Prescription Drug Plan Costs

Landmark Day for Pulmonary Fibrosis Patients and Researchers as Positive Data From Study May Lead to First FDA Approved Treatment

Photo of the Week
Team Mimi At South Carolina walk in 2008
Team Mimi, "Stepping Out to Cure Scleroderma" in South Carolina, June, 2008.

Stepping Out to Cure Scleroderma Walks Gearing Up

Find a walk near you!

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma.
We need your help!

Scleroderma Foundation eLetter

Friday, February 13, 2009– Issue #283

eLetter Archive

Spring Swing Doubles Tennis Tournament

Spring Swing Women's Doubles Tennis TournamentDEADLINE TO ENTER: MARCH 15

Register today for the Spring Swing Women's Doubles Tennis Tournament at the fabulous, AAA Four Diamond PGA National Resort & Spa in Palm Beach Gardens, Florida, March 21.

This one-day elimination tournament will offer tennis aficionados the rare opportunity to play at one of the nation’s premiere tennis and golf resorts, the PGA National Resort & Spa, which is usually accessible only to resort guests and members.

Kris RobinsonCaring for the Caregiver Chat, Tuesday, February 17 at 8 p.m. ET

Online chat with Kris Robinson Ph.D., FNPbc, R.N., Interim Assistant Dean, Graduate Program and Associate Professor, School of Nursing at the University of Texas

Please join Kris Robinson Ph.D., FNPbc, R.N. and the American Pain Foundation’s PainAid Community for this Live On-Line Chat about the role of caregivers and the importance of self care on Tuesday, February 17, 2009 at 8 p.m. ET. In addition to her professional expertise, Kris is also a caregiver for her husband who has chronic pain.

LIMITED SPACE - MAKE YOUR RESERVATION TODAY!!

Introducing RCDC

The Research, Condition, and Disease Categorization Process

The National Institutes of Health (NIH) is the Nation’s medical research agency. Funded by U.S. tax dollars, the NIH supports researchers throughout the country and around the world as they work to improve people’s health.

The NIH recognizes the importance of keeping the American people informed about how their tax dollars are spent to support medical research. To enhance public accessibility to reports, data, and analyses of NIH research activities, the Research Portfolio Online Reporting Tool (RePORT) Web site gives the public a single access point to quickly and easily find data, including information on NIH expenditures and the results of NIH-supported research.

In January 2009, the NIH added the new Research, Condition, and Disease Categorization (RCDC) reports to the RePORT site.

American College of Gastroenterology LogoAmerican College of Gastroenterology

Take a look through the ACG's Digestive Health Tips. There are loads of tips, for example:

8 Tips on Peptic Ulcer Disease

  1. Ulcers are "sores" that frequently affect the stomach and the first part of the small intestine (duodenum).
  2. Bacterial infection is the most common cause of duodenal ulcers.

Getting Help With Medicare Prescription Drug Plan Costs

SSA LogoSocial Security and the Centers for Medicare and Medicaid Services are working together to get you extra help with your prescription drug costs. If you have limited income and resources, you may be able to get help paying for your monthly premiums, annual deductibles and prescription co-payments under the Medicare prescription drug program that began January 1, 2006.

Landmark Day for Pulmonary Fibrosis Patients and Researchers as Positive Data From Study May Lead to First FDA Approved Treatment

The Coalition for Pulmonary Fibrosis (CPF) is calling today a historic day in the research and treatment of PF, as InterMune has announced positive results from its pivotal Phase III clinical trial of Pirfenidone, which could pave the way for the first FDA-approved therapy to treat PF - a relentlessly progressive and ultimately fatal lung disease affecting more than 128,000 people and claiming 40,000 lives each year. The CPF urges the FDA to review InterMune's new drug application (NDA) as soon as possible, given that there are no current FDA-approved treatments for PF.

Presidents Day - Office Closed

The national office will be closed Monday, Feb. 16 in observance of Presidents Day. We will return on Tues., Feb. 17 at our regular hours.

Upcoming Events

March 6 (Fri.) 2nd Annual "Swing for a Cure" Golf Tournament (Boynton Beach, Fl.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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