Scleroderma Foundation

In This Issue

NIH Increases Funding in 'O8

Earn $25 from H&R Block's Non-Profit Referral Program

IRS Tax Topic

Scleroderma Fact Sheet

Food Label Reading Made Easy

Raynaud's Gel

Fun With Grandchildren for Grandparents With Disabilities

Upper Endoscopy

Free Starbucks Coffee for Volunteers

Commemorative Stamp for Scleroderma

Photo of the Week

Crystal Bramlett and her mother of Ellijay, Georgia, recently met with Representative Nathan Deal (R-GA). They visited Rep. Deal to tell him their story and to create scleroderma awareness.
Crystal Bramlett and her mother of Ellijay, Georgia, recently met with Representative Nathan Deal (R-GA). They visited Rep. Deal to tell him their story and to create scleroderma awareness.

Starbucks Joins Call for National Service and Asks, “Are You In?”

Starbucks Joins Call for National Service and Asks, “Are You In?”

Starbucks and HandsOn Network are partnering to raise one million hours of service across America

Starbucks will honor each person who pledges to volunteer five hours with a free tall brewed coffee beginning Wednesday, Jan. 21 through Sunday, Jan. 25.

Learn more and register at starbucks.com. Volunteer for the Scleroderma Foundation and get your FREE coffee!

Commemorative Stamp for Scleroderma

The Scleroderma Foundation is pursuing a commemorative stamp for scleroderma. We need your help!

Scleroderma Foundation eLetter

Friday, January 16, 2009– Issue #279

eLetter Archive

Increase in NIH Funding for Scleroderma in 2008

Increase in NIH Funding for Scleroderma in 2008

For many years, funding for scleroderma research from the National Institutes of Health (NIH) remained level at $11–12 million per year. NIH is now reporting that approximately $20 million was awarded through various institutions to scleroderma research.

Congress had requested that the NIH provide a better means of organizing its data in order to more accurately reflect the overall distribution of its funds. NIH has since embarked on this initiative, and in turn, created a more transparent system whereby parties can search for funding statistics by topic and/or title. The NIH's new data system uses text data mining and NIH-approved terms to classify and match all projects with their respective categories. This new method of reporting provides a more accurate representation of the total amount of funding made each year towards a specific disease, like scleroderma.

To learn more about NIH's new reporting system visit http://report.nih.gov/rcdc/categories.

Help the Scleroderma Foundation Earn $25 Through H&R Block's Non-Profit Referral Program

The program is easy and convenient. H&R Block can help you raise money for us! For each new client referred to have their taxes done by H & R Block LogoH&R Block, H&R Block will provide a program reward of $25 to the Scleroderma Foundation!

To receive the program reward, you must be a new client and must bring a referral form to H&R Block when they have their taxes done. The program begins January 1, 2009 and continues through November 1, 2009.

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IRS Tax Topic

Medical and Dental Expenses

If you itemize your deductions on Form 1040, Schedule A, you may be able to deduct expenses you paid that year for medical care (including dental) for yourself, your spouse, and your dependents. A deduction is allowed only for expenses paid for the prevention or alleviation of a physical or mental defect or illness.

Scleroderma Fact Sheet

Scleroderma Fact Sheet

Read this scleroderma fact sheet online or download the pdf.

Food Label Reading Made Easy and Speedy

Food Label Reading Made Easy and Speedy

An excellent way to determine whether you're buying healthy food is to read the ingredient list. But who has time for that? When I'm in the grocery store, I race through the aisles like a lunatic, trying to keep my two young children from melting down or piling unwanted items into my cart.

Raynaud's Gel

Raynaud's Gel

New hope for patients with Raynaud's Phenomenon – a condition that constricts blood vessels in cold temperatures. A gel that contains nitroglycerin may be just what the doctor orders.

Raynaud’s Phenomenon
Raynaud’s phenomenon is the name for a condition characterized by oversensitivity of the blood vessels. Exposure to cold (and sometimes emotional stress) causes a spasm in the blood vessels and an interruption in the flow of blood through the smallest vessels in the fingers or toes.

Fun With Grandchildren for Grandparents With Disabilities

Fun With Grandchildren for Grandparents With Disabilities

Activities That Work in Spite of Physical Limitations

In a perfect world, all grandparents would be fit and strong, able to enjoy all activities with their grandchildren. In this imperfect world, many grandparents must cope with physical limitations that make grandparenting a challenge. Many grandparents with disabilities, however, have risen to the challenge, finding numerous activities that they can enjoy with their grandchildren.

Upper Endoscopy

Upper Endoscopy
Esophagogastroduodenoscopy (EGD)

What Is It?

It is a procedure that enables the examiner (usually a Gastroenterologist) to examine your esophagus (swallowing tube), stomach, and duodenum (first portion of small bowel) using a thin flexible tube that can be looked through or seen on a TV monitor.

Upcoming Events

January 20-25 (Tues.–Sun.) Keystone Symposia: Fibrosis (Keystone, Colo.)
January 24 (Sat.) Medical Symposium (West Palm Beach, Fla.)
January 30 (Fri.) Concert for Scleroderma Awareness (Frankfort, Ill.)
Complete SF Calendar

Scleroderma Foundation, 300 Rosewood Drive, Suite 105, Danvers, MA 01923
Phone 978-463-5843 · 800-722-HOPE (4673)

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