NAMI CARES
Concern, Advocacy, Research, Education, Support
JULY/AUGUST 2011
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Coffee with NAMI Welcomes Everyone!
We all came from different parts of the Fox Valley, we had different expectations for what we might find, but we all felt welcome. Denise Edwards, the Education Director for NAMI DKK brought doughnuts, coffee and nice cool drinks on a hot day. We gathered in a comfortable room in the new location for Linden Oaks Medical Group in St. Charles.
After some time to talk and get to know each other we were eager to gain some information. Carol Pranger*, a counselor and school psychologist shared with us her experience with adolescents. She focused on those with Bipolar Disorder (BP) but much of her information could apply to anyone with mental illness or their families. She gave us not just the professional side of diagnoses, warning signs and treatment, but also what parents can do to help.
Carol gave suggestions of where and how to find help for your child and an idea of what struggles are common to those that deal with BP. She said that it takes time to find the right diagnosis and encouraged us to not give up as the professionals are trying to decide on a diagnosis. It is not uncommon for the diagnosis to change more than once. Getting the correct diagnosis is crucial because that will determine the treatment. It is also important for parents to take care of themselves. It is easy to become so focused on caring for our children that we forget that we need to care for ourselves.
Mary Jo Sobotka provided valuable information about the programs available for those with mental illnesses at Linden Oaks Medical Group's Behavioral Health**. Many of us were excited to hear that they are now offering both partial hospitalization programs and intensive outpatient programs at the St. Charles location.
The partial hospitalization program is an alternative to follow-up after inpatient treatment. It offers six hours of structured programming each day to treat depression, anxiety and other behavioral health issues. The intensive outpatient program lasts three-and-a-half hours each day and like the partial program, patients take part in individual, group and family counseling sessions.
*Carol Pranger, Licensed Clinical Professional Couselor and a Nationally Certified School Psychologist, has over 20 years experience working with adolescents, adults, families, and couples in schools and therapeutic settings. She currently has a private practice, Pathways to Clarity, based in Batavia, IL, working with those who struggle with anxiety, depression, grief, relational problems and life adjustments.
**For more information about Linden Oaks, visit www.edward.org/lindenoaks.
Coffee with NAMI
~Held the last Saturday of each month
~Location will rotate between local
mental health providers
~There will be coffee, lite refreshments
and a speaker
~There will be time to socialize
~All are welcome!
NEXT COFFEE
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NAMI-DKK
Family-to-Family
There are still a few openings in the classes scheduled for August.
Sign up now so you don't miss out!
The NAMI Family-to-Family Education Program is a free, 12-week course for family caregivers of individuals with severe mental illnesses.
Click here for more details.
THIS CLASS BEGINS:
Tuesday evenings,
August 23, 2011 7:00 - 9:30pm
continuing weekly for 12 weeks through November 15, 2011
The Congregational United Church of Christ, 40W451 Fox Mill Blvd. St. Charles, IL. Classes are free
Registration is required To register call Denise at 630-405-9336 or NAMI DKK office: 630-896-6264
Don't miss out - Sign up now!
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NAMI 5K
Run for Mental Health
Join us in downtown
Batavia, Illinois
on October 1, 2011
for the 6th Annual NAMI 5k.
You'll have a great time as you run along the shores of the Fox River. Proceeds to benefit NAMI of Kane, DeKalb and Kendall Counties.
Race day registration available at 7am!
Our race this year features:
~Really Nice Technical Race Shirts to First 500
Registered
~Fantastic Medals For Top Finishers
~Feel-Good Fundraising Opportunities for NAMI
~Green Initiative to Reduce Impact On Our Environment
More info and to register
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NAMI DKK Offers Course
Free Classes for Parents 
NAMI Basics
The fundamentals of caring for you,
your family, and your child with mental illness
Six week education course taught by parents/caregivers of children and adolescents with mental illness.
Classes include:
· Introduction - it's not your fault
· The biology of mental illness
· Treatment works
· Problem solving skills
· How to work within systems (school, juvenile
justice, mental health)
· Shared stories
Classes will be held on Saturdays
September 17th - October 22nd 2011.
9:00 a.m - 11:30 a.m.
in the Buckley Room at Provena Mercy Medical Center
1325 N. Highland Avenue in Aurora
Registration is required.
To register call Karen: 630-664-9103 or NAMI DKK office: 630-896-6264
NAMI DeKalb, Kane South & Kendall Counties
400 Mercy Lane, Aurora, IL 60506
630-896-6264
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Convention 2011 Report
By Phyllis Graeser, the president of NAMI DKK
The annual NAMI National Convention was held in Chicago from July 6-9. A partial list of programs included: sessions on current research, veterans, special education, housing, employment, suicide prevention, hospital programs, school programs, support groups, medicine compliance, a yoga class, and the always popular "Ask the Doctor." I was particularly interested in the latest research on the causes of mental illness presented by Dr. Thomas R. Insel, Director of NIMH, the National Institute of Mental Health. Some notes: 1. Genetic signals don't map onto the DSM - "Nature never read DSM." 2. 100 disease genes were known in 2001 - 2,500 known in 2011. 3. Rare mutations are ten times more common than in other illnesses. 4. Early intervention is a research priority, with treatment very different from chronic, advanced illness. 5. Costs of treating cancer and mental illness are equal, but costs do not count the mentally ill who are jailed or homeless or their lost earnings. 6. Majority of suicides in the military occur before deployment. It was inspiring to be at this convention, surrounded by people dedicated to the treatment and well-being of persons with mental illness.
Phyllis Graeser
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Responding to Youth with Mental Health Needs: A CIT for Youth Implementation Manual
CIT in Action
Communities with Crisis Intervention Team (CIT) programs are beginning to expand their CIT programs to better address the needs of youth. In July, NAMI will release Responding to Youth with Mental Health Needs: A CIT for Youth Implementation Manual. The manual provides comprehensive information and resources to help community leaders, including CIT leaders and those interested in CIT, to: ~Build partnerships with schools, law enforcement and child-serving systems ~Identify mental health and family services in their communities, and think creatively about how to get more out of what they have ~Coordinate efforts between schools, mental health providers, families and law enforcement to get youth linkage with mental health services and supports ~Train school resources officers (SROs) and other law enforcement officers to safely resolve a mental health crisis and refer students to treatment ~Ensure the effectiveness and sustainability of the program in the long-term
Download it today
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Consumers' Corner 
Reports from NAMI National Convention 2011
From Brian HansenBrian attended the ASK the DOCTOR session at the convention. He reported that he learned about the high rate of recovery for those with mental illnesses when medications are taken the right way with proper care and adjustments. In order for the consumer to benefit the most from treatment there needs to be a cooperative effort from consumers, doctors and mental health professionals. Although the mental health community has come a long way over the years with better medications and treatment, there is still room for improvement and the most responsibility falls on the consumers to work with their doctors and therapists and to take their medications. Help from supportive friends and families who care is also very important to the consumers. From Richard and Marlene Salazar Marlene and Richard attended the Bipolar session. They learned that due to the poor economy there are no new blockbuster medications coming soon. It costs around $1 billion to bring a new medication to market. Right now Lithium is a medication that works well for bipolar patients who are suicidal. For schizoaffective patients, Clozoril is often the recommended antipsychotic medication which reduces suicidality. A high rate of substance abuse co-ocurs with Bipolar Disorder and that wrecks havoc on families and friends. Therapy is an important part of treatment for the patient and even the family of a person with Bipolar Disorder. People with Bipolar Disorder need forgiving, loving and accepting people in their lives. Brian, Richard and Marlene want to thank NAMI DKK for sponsoring their attendance at the convention.
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Coming Events
NAMIDKK Board Meeting - The next meeting will be September 12, 2011. August 23, 2011 - NAMI Family-to-Family Course Tuesday evenings from 7pm to 9:30pm through November15, 2011 Details August 27, 2011 - NAMI Saturday Coffee Details
August 30, 2011 - Cougars VS Chiefs Baseball Game and Picnic Fundraiser DetailsSeptember 17, 2011 - NAMI Basics Course Begins Saturdays 9:00 am to 11:30 am. DetailsOctober 1, 2011 - NAMI 5K Run for Mental HealthDetailsSave The Date February 4 ,2012 - NAMI DKK Dinner/Raffle
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July/August Fast Fact
Data derived for State Mental Health Cuts: A National Crisis shows that California, New York and Illinois make up the top three states with the largest cuts.
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Cougars Baseball and Picnic
A Fund-raiser for The Friends of Mental Health Treatment Alternative Court
Kane County Cougars
vs
Peoria Chiefs

Tuesday, August 30, 2011
Picnic and Game Begins at 6:30 pm
~All-you-can-eat Pre-Game Picnic located on the Center Field Patio Deck from 6:30 - 8:00pm
~The group will help lead the crowd in the singing the 7th inning stretch!
~Stick around and run the bases after the game!
~Randomly selected member of the group will throw a ceremonial first pitch!
~Order deadline is August 9
$30 per ticket or 4 for $100 (includes ticket and picnic)
Please make checks payable to NAMI DKK
Send name, address, phone # and check or credit card # with expiration date to:
NAMI DKK - Cougars Outing 400 Mercy Lane, Aurora IL 60506
For more information contact Shawn Touney at (630) 232-8811 or stouney@kanecountycougars.com
Elfstrom Stadium 34W002 Cherry Lane Geneva, IL 60134 630-232-8811
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The Injustice of Incarcerationof Our Mentally Ill
by Joseph M. Jason
From the (NAMI Barrington) President's Desk July 2011
The idea for this column came out of the frustration of trying to get information about my son's unjust incarceration. He is in Indiana in federal prison and I do not know if he is getting any treatment and when he is getting out. I am also not allowed to visit him. My son has Asperger Syndrome and, while bright, behaves like a 2 year old. Unfortunately when he acts up, he gets more time. The authorities have kept him imprisoned for over 4 years for non-violent crimes. Most of his crimes are from emails. In this time many people like his grandmother and cousins have passed away. He also missed his sister's wedding.
First of all try calling the Indiana Federal prison. If you are lucky somebody might answer in 10 to 20 minutes. The only one you can leave a message for is a counselor. I have faxed him and called and no return calls have been made in three months. I cannot even visit my son because he has to sign a form allowing it and Daniel doesn't always know how to do things like that due to social deficits. Of course I would like to know if Daniel is getting mental health treatment, but nobody will talk to me. Daniel was getting mental treatment by the Iowa Dept. of Corrections until the Federal government moved him to federal custody and he stopped taking effective medication. I even have a release form to allow me to talk. Another issue is when my son gets released. Oh you can look it up on the Bureau of Prison's web site, but the latest time it was raised another 2 months without an explanation. According to my calculations, he should get out much earlier. I have another organization looking into that issue.
By the way, did you know that when you get convicted of federal crimes, you have to serve 85% of the time?
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The Curtain Call on Stigma
by Toni Hoy
From NAMI Barrington Newsletter Did you ever read an article about someone with a mental illness and wonder how the writer got it so wrong? The very headline can send you reeling! Did you respond by getting into a conversation with other bloggers? Did the comments overrule the original intent of the piece? Can knowledgeable bloggers spin an article? Not too long ago, I entered into cyber conversation that was designed specifically to attack a mother of a mentally ill child. I didn't go directly to the mother's defense, but I did consistently bombard the commenters with solid facts and statistics that were impossible to refute. I successfully turned most of them around, armed only with the truth. Of course there were a few stonewallers who wanted nothing more than to "sound off." Read the rest of the article Back to Top |
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Clinical trial for schizophrenia
Baber Research Group looking for participants
If you have been diagnosed with Schizophrenia and are taking Resperidone (Risperdal), Olanzapine (Zyprexa) or Aripiprazole (Abilify) you may be eligible to participate in a clinical research study.
Qualified participants will receive medications and exams at no charge. You may receive compensation for your participation.
Baber Research Group's areas of research include, but are not limited to: ~Adolescent Autistic Spectrum Disorder ~Attention Deficit/Hyperactivity Disorder ~Major Depressive Episodes Associated with Bipolar Disorder ~Relapse Prevention in Alcohol Dependence ~Bipolar I Disorder ~Major Depressive Disorder ~Fatigue Associated with Dependence
Current Trials: ~Autism in Adolescents (6-12) ~Bipolar Disorder in Adolescents (6-17) ~Bipolar Disorder in Adults (18-55) ~Depression in Adults (18-65) ~Fibromyalgia in Adolescents (13-17) ~Major Depressive Disorder in Adults (18-65) ~Major Depressive Disorder with Bipolar Disorder (18-65) ~Smoking Cessation in Healthy Adolescents (12-19) ~Smoking Cessation without Depression (18-75) - Upcoming ~Schizophrenia in Adults
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NAMIDKK Vision Statement
VISION: NAMI-DKK is dedicated to the eradication of the stigma of mental illness by improving the quality of life of all those striving for mental health wellness.
NAMIDKK Mission Statement
MISSION: The mission of NAMI-DKK is to provide support education and advocacy for persons, family members and communities dealing with mental health issues
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Forward This Newsletter
PLEASE PASS THIS ON
If you know someone that might benefit from getting this newsletter you can use the link below to forward this newsletter to them. If they enjoy it and want to get it all the time they can subscribe, but only if they want to. They will not be automatically put on our mailing list.
The newsletter is a great way to keep up with what is going on with NAMIDKK, find resources, and learn about ways you can help.
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Support Groups
NAMI-DKK FAMILY SUPPORT GROUPS (No charge, no reservations needed)
These support groups provide relevant information, valuable insight, and the opportunity to engage in support networks. The groups are led by family members that have been trained in classes provided by NAMI Illinois. Family members are invited to join more than one group to provide more frequent support.
Aurora: 3rd Tuesday of the month, from 7:00-8:30 p.m. The McDermott room, Provena Mercy Hospital (lower level), in Aurora. 630-761-6971 (Buzz Hays) DeKalb: This support group is currently not meeting. Please contact our NAMI-DKK office at (630) 896-6264 for the latest information. St. Charles: 1st Thursday of the month at 7 p.m.
The Congregational United Church of Christ, 40W451 Fox Mill Blvd. St. Charles, IL. (To get there, go west on Route 64 to Fox Mill Blvd. and turn left. The church is south of Fox Mill on the left. The entrance is on the south corner from the parking lot.) 630-584-7481 (Lynette Niequist)
Elgin (NAMI Kane County):
2nd Tuesday 6:30-8:00 p.m. St, Joseph Hospital (St. Mary's Room lower level) Call Laurie 847-695-7957
NAMI CONNECTIONS RECOVERY GROUPS (No charge, no reservations needed)
Currently the NAMI-DKK Connections Recovery Groups are not meeting.
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OTHER AREA SUPPORT GROUPS
KENDALL COUNTY SUPPORT GROUPS:
The Kendall County Health Department provides the following support groups lead by mental health professionals. For further information please contact the KCHD Admissions Coordinator, Rhonda at (630) 553-9100 X8053 · Life Strengths: Peer Support for those dealing with chronic mental illness. · Understanding your Diagnosis: Family support and for those individual(s) working towards mental health recovery.
. Dual Diagnosis Group: Treatment for those individuals addressing both substance abuse and mental health issues.
DEPRESSION & BIPOLAR SUPPORT ALLIANCE:
DeKalb(NIU): Meets Monthly the last Saturday at 12 noon in Immanuel Lutheran Church on Russell Rd. Follow signs. Easy parking
Contact person: Charles Smith Phone: (815) 398-9628 Fax: (815) 398-5995 Email: mrsippy1d@comcast.net Website: www.grouphope.org Fox Valley: Meets 2nd and 4th Tuesdays of the month at: Behavioral Health Services Bldg. Campus of Central DuPage Hosp. 27 W 350 Highlake Rd. Winfield Rd., Winfield, IL. Contact person: Judy Kramer, Pres. Phone: 630-466-4851 Email: Judykramer@MCHSI.com Website: www.DBSAFoxvalley.org
NAMI KANE COUNTY ELGIN SUPPORT GROUP:
CARES Support Group - led by and for individuals working towards recovery Monday mornings 11:00 - 12:00 p.m. Ecker Center, Elgin - 2nd Floor for information: NAMI - 847-426-4594
NAMI DUPAGE COUNTY SUPPORT GROUPS:
NAMI DuPage has several support groups that are open to anyone no matter where you live. There is no charge for these groups. To find out more about these groups and where they meet you can go to: http://www.namidupage.org/support/support-groups
NAMI BARRINGTON SUPPORT GROUPS: NAMI Barrington has two family support groups that are open to anyone no matter where you live. There is no charge for these groups. To find out more about these groups and where they meet you can click on this link. Back to Top |
Consumers' Corner
Calling all consumers!
We would love to have contributions for our newsletter from Consumers who would like to share personal stories, poetry, ideas that have helped you make it through the rough times, or any creative work. If you would like to contribute visual art please contact Nina for details on how to do that.How do you feel about the word "Consumer"? That is the word used by NAMI to indicate a person with a mental illness. Does that word work for you? Do you have an idea for another word that might indicate who you are, yet do it in a positive way? Let us know what you think. Please send your ideas to Nina and she will pass that information on to our Board for consideration. Back to Top |
Resources
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Volunteer Opportunities
Do you want to help?
NAMIDKK would love to be doing more but there is just not enough time in our days to do everything we think of. If you have an hour or more to help us out we would be glad to hear from you. For some things you do not even need to come into our office to help. If you can help us returning phone calls we will provide training and resource materials. If this is something you would like to do, please contact Elaine at 630-377-1563 or epmulligan1@gmail.com.Your help as volunteers would increase our ability to help improve the quality of life for individuals with mental illness and their families. We need: a grant writer, a publicity coordinator, speakers bureau volunteers, help line call takers, dinner/raffle help, more people for our educations programs, someone to join NAMI National's Stigma Buster Alert program, people to help update resource information, as well as newsletter submissions. Back to Top |
Membership BECOME A MEMBER OF NAMI DEKALB, KANE SOUTH & KENDALL COUNTIES
NAMI DKK is a nonprofit organization affiliated with NAMI - The National Alliance on Mental Illness.
Membership includes: Membership in Illinois and National NAMI NAMI National's publication Advocate (quarterly) NAMI Illinois' publication Stateline (quarterly)
NAMI DKK CARES email Newsletter (monthly) New members receive a welcome packet and our NAMI-DKK Handbook (when available). Please complete the information below and mail your check or money order to NAMI-DKK 400 Mercy Lane, Aurora, Illinois 60506 Name:___________________________ Address:_________________________ City:_____________Zip:_____________ Telephone (s):_____________________ Email (s): ________________________ Individual: $30/year _______ Advocate: $100/year _______ Lifetime: $500 _______ Written Newsletter Only _______ ($10 suggested donation) Open Door $3/year _______ (Those with limited means/fixed incomes are invited to join at this reduced rate) Donation Only $ _______ Total Enclosed: $ _____________ Note: Membership and donations are tax deductible. Back to Top
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About Us NAMIDKK can be reached by phone: 630-896-6264 fax: 630-896-6365 email: info@namidkk.org mail: 400 Mercy Lane Aurora, IL 60506 website: namidkk.org
NAMIDKK is an affiliate of a national network of NAMI groups all over the world. The national website
has many resources for both consumers and families, educational
information about mental illness and treatments, and the latest news
concerning our issues. NAMI Illinois is the state organization
that can direct you to local events and groups as well as keeping us
updated about what is happening in our state. The state website also has resources and links to other organizations. Back to Top
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NAMIDKK Board of Directors
Phyllis Graeser - President Nina Finch - Vice President Walter Deuchler - Treasurer Mary Ihnenfeld - Secretary Suzanne Deuchler Denise Edwards Regina Harris Jack Hazel Jim McNish Elaine Mulligan Betty Schoenholtz Legal Advisor: Alschuler, Simantz & Hem, LLC - Jan OPittman, Legal Assistant Accountant: Borhart, Spellmeyer & Co. Back to Top
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Educational Programs Helping schools reach out to children with mental illness
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PARENTS AND TEACHERS AS ALLIES:
Parents and Teachers as allies was created to help families and school professionals identify the key warning signs of early-onset mental illnesses in children and adolescents in our schools. The program is intended to provide an educational tool for advancing mutual understanding and communication between families and school professionals. This program is designed for two-hour teacher in-services, parent PTA sponsored evenings, and mental health professional classes.
RED FLAGS: Red Flags is a depression awareness program for middle school students. It is generally taught in health classes and takes 3-5 class periods. The teacher can choose between 2 DVD's: "Claire's Story," or "Thick'n Thin," a more recent story of teenage depression. Two additional DVD's go with the program, as well as suggested class activites, information on mental illness and discussion topics.
ENDING THE SILENCE: Ending the Silence is a high school health class presentation, typically presented during the mental health portion of the curriculum. This interactive program teaches the basic signs and symptoms of mental illnesses in teenagers, presents personal stories to reduce stigma, and provides many resource materials for students.
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Ways to donate to NAMI-DKK:
 By phone: Call 630-896-6264 By mail: Click here to fill out a form that you can print out and mail to our office. At your workplace: An easy way to double - even triple - the value of your contribution to NAMI-DKK! Thousands of companies (of all sizes, in all industries) have Matching Gift programs that "match" their employees' contributions (often Board members and spouses too) to their favorite charities. To learn more about how to match your donation to NAMI-DKK click here. Planned Giving: You can plan the giving from your estate with the help of an attorney using a number of legal mechanisms, such as a charitable remainder trust, that may enable you to maintain your estate, provide for yourself and your family, and leave a lasting legacy. Sponsorship of Events or NAMI-DKK Programs: Opportunities to donate to NAMI-DKK include sponsoring events such as our Dinner/raffle and our annual Run/Walk. You can designate funds for specific programs. NAMI-DKK programs include Family to Family classes, Crisis Intervention Training for law enforcement, adult and student based educational programs, family support groups, a monthly newsletter, printed informational materials and a help call line staffed by volunteers. To find out more about these and other programs contact NAMI-DKK office at 630-896-6264. Buy Raffle Tickets: Call our office for more information about buying raffle tickets for our annual Dinner/Raffle. They are usually available in January and the first week of February of each year. Drawing is at our annual dinner. You do not need to be present to win. Memorial and Honorary Giving: Memorial Giving: Your memorial gift to NAMI-DKK is a personal remembrance that honors the life and memory of a friend or loved one, and offers the gift of hope for the future. Honorary Giving: Holidays, birthdays, anniversaries, weddings, Mother's or Father's Day, or the arrival of a new baby are special moments that we can help you celebrate. A gift to NAMI is a wonderful way for individuals, organizations, businesses, and groups to honor these special occasions in our lives and pay tribute to a friend or loved one. Based on the information you provide, NAMI-DKK will send a letter to the family of the memorialized or to the honored person, notifying them of your thoughtful gift.
NAMI-DKK is a 501(c)(3) organization. All donations are tax deductible.
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Employer Matching Donations How do I secure a matching gift for my donation to NAMI-DKK? Contact your Human Resources Department to find out if your company has a Matching Gift Program. If they have a matching gift program, your company likely uses one of two ways to secure your additional matching gift to NAMI-DKK: (Most common) Obtain your company's matching gift form, fill out the "Donor" section, and mail it to NAMI-DKK when you send your donation. NAMI-DKK will complete the "Charity" section of the form, and mail it back to your company. This will confirm that we received your gift and request their matching gift. (Less common) Make your donation to NAMI-DKK through the mail or phone. Upon receipt of your gift, NAMI-DKK will send a letter acknowledging your contribution. Bring this letter to your Matching Gift program coordinator who will distribute your company's matching gift to NAMI-DKK. Why should I give a matching gift to NAMI-DKK? Matching gift programs allow you to allocate your company's charitable dollars to the cause nearest and dearest to you heart, greatly increasing your donation's value to NAMI-DKK. What's more, NAMI-DKK considers your corporation's matching gift as part of your total contribution. Therefore, your $50 gift can become a $100 or $150 gift to NAMI-DKK. So please -- go ahead and make a donation to NAMI-DKK today!
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