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NAMI  CARESNAMI office
          Concern, Advocacy, Research, Education, Support
OCTOBER 2010
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"There is no medicine like hope, no incentive so great and no tonic so powerful as expectations of something better than tomorrow."
                                                                               
Orioson Swett Marden

Websites providing research information:


National Alliance for Research on Schizophrenia and Depression (NARSAD): www.narsad.org
National Institute of Mental Health: www.nimh.nih.gov
Ethics in Mental Health Research: www.emhr.net


Websites providing opportunities to participate in research:

National Institute of Health: Clinical Trials.gov
National Institute of Mental Health: www.nimh



Please note that this study still needs participants as of October 2010.  If you are interested it is not too late to sign up.
Research Study OpportunityB-SNIP Logo

Patients and Family Members Needed to Help Solve the Puzzles of Bipolar Disorder & Schizophrenia

Researchers  are looking for participants for a project called Bipolar-Schizophrenia Network on Intermediate Phenotypes (B-SNIP).  The B-SNIP project is funded by the National Institute of Health to learn about risk for schizophrenia, schizoaffective disorder and bipolar disorder and their associated biological and behavioral traits (called intermediate phenotypes).  The goal of this research is to help better understand the causes of these illnesses so that better treatments may be developed.

Those eligible are:
~individuals between 15 and 65 years of age, who have been diagnosed with schizophrenia, schizoaffective disorder or bipolar disorder and
~With at least one first-degree relative, i.e. brother, sister, mother, father or child, also between 15 and 65 years of age, who may or may not have a psychiatric disorder, or have history of mental health problems.

For more information or to enroll contact:

B-SNIP Research Study LineCenter for Cognitive Medicine,
Suite 235, Department of Psychiatry
University of Illinois at Chicago Medical Center

912 S. Wood St., Chicago, IL 60612
Phone: 312-355-5549
Email: bsnip@psych.uic.edu

All procedures are noninvasive and monetary compensation is provided.  There is no cost to participants

You can find out about other research opportunities at nami.org.



NAMI 5K Run For Mental Health

Join us in downtown Batavia, Illinois
on Saturday, October 9, at 9:00am             


Our race this year features:

Award-Winning Technical Race Shirts
Medals For Top Finishers
Fundraising Opportunities for NAMI
"Race For Free" by Reaching Fundraising Goals
Green Initiative to Reduce Impact On Our Environment

Location: Fox River Trail, Batavia, IL
27 North River Street

Registration Closing Date:
Thursday, October 07, 2010 @ 11:59 PM

Click here to register online


October 3-9

Mental Illness Awareness Week


In 1990, the U.S. Congress established the first week of October as Mental Illness Awareness Week (MIAW) in recognition of NAMI's efforts to raise mental illness awareness. Since 1990, mental health advocates across the country have joined together during the first full week of October to celebrate.

Beginning Oct. 1 - PBS television stations in some 

         communities will begin airing the documentary

         Unlisted: A Story of Schizophrenia.


Saturday, Oct. 9 - Run for Mental Health, a Walk/Run in

         Batavia sponsored by NAMI-DKK.  Go to

         nami5k.com for more information and to enter.

 

Sunday - Saturday Oct. 3-9 - Consider spending a few

        minutes each day learning more about mental

        illness or share your story so that someone else

        can learn more.




Coming Events

October 18, 2010 - Monday 5:30 pm
NAMIDKK Board Meeting
Location: M H Board Room, 400 Mercy Lane, Aurora, IL
Time: 5:00pm Meal, 5:30pm Meeting
Please call the office for more information (630) 896-6264


February 15, 2011 - Tuesday 6:30pm to 9:00pm
Family-to-Family Classes begin, continuing weekly on Tuesdays for 12 weeks to May 3, 2011.  See information above for more details.

Save These Dates:



October 3 through 9, 2010 Mental Health Awareness Week This year's theme is "Changing Attitudes, Changing Lives."


October 9, 2010 - Walk/Run in Batavia: RUN FOR MENTAL HEALTH (Previously called the Bat Run) 9:00am
Go to the website: nami5k.com for more details and to register.


October 15 - 17, 2010: NAMI Illinois Educational Conference - Learning Together...Changing Minds in Peoria, IL.  You can find more information at the NAMI Illinois website.


November 9, 2010 8:00am to 4:00pm: Suburban-Chicago Interfaith Mental Health Coalition Conference
Mental Health Needs of Your Faith Community, How to Recognize, Respond, and Refer (more info next month)


February 5, 2011 - Annual Dinner/Raffle in Geneva


July 6-9, 2011 - NAMI National Conference to be held at Chicago Hilton





October Fast Fact 

INFORMED CONSENT DOCUMENT is a document that describes the rights of the study participants, and includes details about the study, such as its purpose, duration, required procedures, and key contacts. Risks and potential benefits are explained in the informed consent document. The participant then decides whether or not to sign the document. Informed consent is not a contract, and the participant may withdraw from the trial at any time.



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Readers' Corner

A Book Review by a Consumer

Nutterville ...And Other True Stories of Coping with Mental Illness 

by Faye Ellen Kufahl

I like being with family and friends, reading true stories of inspiration, and taking care of my Labrador Retriever.  I chose this book because Faye, the author, isn't mentally ill and her sister, Gail has paranoid schizophrenia.  Accordingly, my sister isn't mentally ill and I am a consumer.

The book's title is somewhat misleading, as mental illness is only lightly mentioned until chapter 20.  It is primarily about Faye, growing up in the 1950's in Nutterville, a Wisconsin town.  During Faye's childhood Gail is institutionalized.  When mental illness is written about, it is poignant.  When both women are adults Gail arrives at Faye's doorstep after release from an institution and subsequent homelessness.  I was struck by Gail's helplessness and the care and compassion Faye shows Gail.  This speaks to the problem of homelessness the mentally ill face today.

Furthermore, I learned through Gail, as her life traces the treatment of the mentally ill, starting in the 1950's until her death. 

I had to push myself to read the earlier parts of the book because I wanted to read more about mental illness, but I found the parts on mental illness moving.  For example, the book touches on the effect Gail's illness has on her family.  Faye depicts her father crying on the way home from a family party when Gail is on a home visit.

The writing is readable with good imagery.  It is because of  Nutterville ...And Other True Stories of Coping with Mental Illness that I would like to read more about the history of and present day treatment of the mentally ill.

 

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Readers' Corner

Book Review By Elaine P. Mulligan

Helping Someone with Mental Illness

By Rosalynn Carter     With Susan K. Golant         1998

Elaine Mulligan here.  I live in St. Charles, IL.  I like to knit, sew, play golf and bridge, as well as spend time with my kids, grandkids and friends.  I have been a career homemaker (you never retire from that) and substitute teacher (retired).  My reading interests are varied.  I picked this book to review because my husband and I have a 39-year-old son who lives with schizophrenia.  He was diagnosed 12 years ago.

I enjoyed the book very much.  It was better than I expected.  I went into it thinking that since the book is 12 years old, it could be a bit dated.  It is true, much has happened in the field of Mental Health Research in the last 12 years, however, the book is so well put together and includes many resources (a glossary and 5 appendices), such that you are getting a great handbook to help someone, much as the title indicates.  The writing style was very pleasing to me as it was peppered with examples that Rosalynn experienced either through meetings with families and their mentally ill loved ones, her own family and acquaintances with mental illnesses, letters that she received from people who themselves had a mental illness or from their family member, as well as facts from researchers in the field.  Rosalynn Carter was very involved in the area of Mental Illness for almost 30 years before the writing of this book.

Something that I learned in the reading of this book, or perhaps I should say relearned, is that the stigma attached to having a mental illness is very real and although it has lessened over the years, it is not close to going away.  Helping Someone with Mental Illness underscored this fact by citing many examples of people who actually were diagnosed either very late or not at all because of the problems those persons expected to experience in the work-a-day world if they were to be public with their "potential" or perhaps very real mental illness.   Yes, laws have been passed to stop gap this problem, but nonetheless, it is still a very common problem. 

A great example of the consequences of stigma given in the book was in 1972  when Senator George McGovern, the Democratic candidate for president, selected Senator Thomas Eagleton of Missouri as his vice presidential running mate. Soon after word was leaked to the McGovern campaign and eventually to the press that Senator Eagleton had had a mental illness.  Eagleton held a press conference during which he admitted to having been "voluntarily" hospitalized three times in the previous twelve years for "nervous exhaustion".  Initially Senator McGovern expressed confidence in his running mate, and Eagleton's colleagues in Congress applauded his abilities despite his earlier bouts with depression.  However, donations to the Democratic Party dropped sharply after the news conference.  Two weeks after he was chosen, Senator Eagleton became the first U.S. vice-presidential nominee to withdraw from candidacy, a victim of the stigma associated with mental illness.

Yet another piece of this book was the "hope" given for those with mental illnesses and in fact for those who are genetically predisposed to mental illness and have not yet or maybe never will have a mental illness.  I only have to read one and yet there were many examples of people living normal lives with a mental illness and I am given great hope.  Bigger than that we have today and had at the writing of this book in 1998, the hope of preventing mental illness onset via emphasis on children's mental health and early intervention, as well as the vast advances made in the field of brain imaging.  Last year, 2009, was the one hundredth anniversary of the first White House conference on the needs of American's children.  The author, Rosalynn Carter, at the writing of this book in 1998, said: "Let's really have something to celebrate, but let's not wait until the year 2009.  Our future and the lives of our children depend on it."(Pp. 256)  Strides have been made, but our vigilance is essential.

The reading of this book was for me a wonderful experience.  This is a great handbook, even though written 12 years ago.


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Consumers' Corner
Light at the End of the Tunnel

By: Brian Hansen

Even though we all go through many struggles in life, I try to have a positive outlook.  I try not to get down and discouraged.  As you may very well know it is a very hard struggle having a mental illness.  In many ways it is harder for us to live with mental illness than people without a mental illness, however I also see it from the perspective that when we meet these challenges we may be stronger than the average person.  Each trial we face and overcome makes us stronger if we learn from those experiences and learn what helps us through it and we do not lose hope.

For over 20 years now I have been diagnosed having schizophrenia.  I have learned many things over the years...things that worked for me like:  taking my medications correctly, seeing and working with my doctor and therapist, having family and support systems, working, having hobbies, and being active.

I realize that mental illnesses are medical illnesses and need to be treated by mental health professionals.  However, there are ways you can help in your recovery.  I cannot give you medical advice, talk to your doctor. 

I always try my best to take my medicine like I am supposed to.  I try to be active in my treatment.  I try to have goals and sense of purpose with a positive attitude.  I also have faith and hope.

I could have given up hope years ago, however I did not.  I had a lot of people help me.  Plus I kept hanging in there and worked hard.  I did all I could to help myself get better.  Now since I persevered everything is paying off as I am winning the battle over my illness.  I see light at the end of the tunnel.

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Note:  Please let us know right away if you are interested in training to lead any of these groups.  There is not much time left to sign up!

NAMI Illinois Training Classes

The following training classes will be offered by NAMI Illinois from Nov 12 - 14, 2010:

        NAMI Family-to-Family Teacher Training
       
        NAMI Family Support Facilitator Training
       
        NAMI In Our Own Voice Presenter Training
       
        NAMI Connection Recovery Support Group Facilitator      
                  Training  
        NAMI Basics Teacher Training
 
There is an application process for these classes.  If you are interested in taking any of this training please contact NAMI-DKK at 630-896-6264. 


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Educational Programs

Helping schools reach out to children with mental illness

PARENTS AND TEACHERS AS ALLIES:
Parents and Teachers as allies was created to help families and school professionals identify the key warning signs of early-onset mental illnesses in children and adolescents in our schools. The program is intended to provide an educational tool for advancing mutual understanding and communication between families and school professionals. This program is designed for two-hour teacher in-services, parent PTA sponsored evenings, and mental health professional classes.

RED FLAGS:
Red Flags is a depression awareness program for middle school students. It is generally taught in health classes and takes 3-5 class periods. The teacher can choose between 2 DVD's: "Claire's Story," or "Thick'n Thin," a more recent story of teenage depression. Two additional DVD's go with the program, as well as suggested class activites, information on mental illness and discussion topics.

ENDING THE SILENCE:
Ending the Silence is a high school health class presentation, typically presented during the mental health portion of the curriculum. This interactive program teaches the basic signs and symptoms of mental illnesses in teenagers, presents personal stories to reduce stigma, and provides many resource materials for students.


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In This Issue
Research
B-SNIP Study
NAMI 5K Run for Mental Health
Mental Illness Awareness Week
Coming Events
October Fast Fact
Readers' Corner
Readers' Corner
Consumer's Corner
NAMI Illinois Training Classes
Vision and Mission Statements
Family-to-Family Classes in 2011
NAMIDKK Support Groups
Other area Support Groups
Consumer Corner
Resources
Volunteer Opportunities
Membership
Pass this on
About us/Contact Us
Board of Directors

NAMIDKK
Vision Statement

 VISION: NAMI-DKK is dedicated to the eradication of the stigma of mental illness by improving the quality of life of all those striving for mental health wellness.

NAMIDKK
  Mission Statement


MISSION: The mission of NAMI-DKK is to advocate, educate and support persons, family members and communities dealing with mental health issues
 

F2Fclasses
NAMI-DKK
Family-to-Family

Scheduled for February 2011

The NAMI Family-to-Family Education Program is a free, 12-week course for family caregivers of individuals with severe mental illnesses.  Click here for more details.


Tuesday, Feb 15, 2010 6:30 - 9:00pm
continuing weekly for 12 weeks through May 3, 2011

 
Provena Mercy Medical Center 
1325 N Highland Ave
Aurora, IL 60506

Classes are free

Registration is required 
To register call Denise at 630-405-9336


Support Groups


NAMIDKK SUPPORT GROUPS

NAMI-DKK FAMILY SUPPORT GROUPS
(No charge, no reservations needed)
 
These support groups provide relevant information, valuable insight, and the opportunity to engage in support networks. The groups are led by family members that have been trained in classes provided by NAMI Illinois.  Family members are invited to join more than one group to provide more frequent support.
 
Aurora:
3rd Tuesday of the month,
from 7:00-8:30 p.m. 
The McDermott room, Provena Mercy Hospital (lower level), in Aurora. 
630-761-6971 (Buzz Hays)
 
DeKalb:
This support group is not currently meeting. Please contact our NAMI-DKK office at (630) 896-6264 for the latest information.
 
St. Charles:
1st Thursday of the month at 7 p.m. 
The Congregational United Church of Christ, 40W451 Fox Mill Blvd. St. Charles, IL. (To get there, go west on Route 64 to Fox Mill Blvd. and turn left. The church is south of Fox Mill on the left. The entrance is on the south corner from the parking lot.)
630-584-7481 (Lynette Niequist)
 
Elgin (NAMI Kane County):
2nd Tuesday 6:30-8:00 p.m.
St, Joseph Hospital
(St. Mary's Room lower level)     
Call Laurie 847-695-7957     

 
NAMI CONNECTIONS RECOVERY GROUPS
(No charge, no reservations needed)

Currently the NAMI-DKK Connections Recovery Groups are not meeting.


OTHER AREA SUPPORT GROUPS
 
 
KENDALL COUNTY SUPPORT GROUPS:
 
The Kendall County Health Department provides the following support groups lead by mental health professionals. For further information please contact the KCHD Admissions Coordinator, Rhonda at (630) 553-9100 X8053
 
·     Life Strengths: Peer Support for those dealing with chronic mental illness.
·     Understanding your Diagnosis: Family support and for those individual(s) working towards mental health recovery.
.      Dual Diagnosis Group: Treatment for those individuals addressing both substance abuse and mental health issues.
 
DEPRESSION & BIPOLAR SUPPORT ALLIANCE - Fox Valley

Meets:
2nd and 4th Tuesdays of the month

Behavioral Health Services Bldg.
Campus of Central DuPage Hosp.
27 W 350 Highlake Rd.
Winfield Rd., Winfield, IL.

Contact person: Judy Kramer, Pres.
Phone: 630-466-4851
Email: Judykramer@MCHSI.com
Website: www.DBSAFoxvalley.org

NAMI KANE COUNTY ELGIN SUPPORT GROUP:

CARES Support Group - led by and for individuals working towards recovery 
Monday mornings 11:00 - 12:00 p.m.
Ecker Center, Elgin - 2nd Floor
for information: NAMI  - 847-426-4594
 

NAMI DUPAGE COUNTY SUPPORT GROUPS:
 
NAMI DuPage has several support groups that are open to anyone no matter where you live. There is no charge for these groups. To find out more about these groups and where they meet you can go to: http://www.namidupage.org/support/support-groups

 NAMI BARRINGTON SUPPORT GROUPS:

NAMI Barrington has two family support groups that are open to anyone no matter where you live. There is no charge for these groups. To find out more about these groups and where they meet you can click on this link.

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Consumers' Corner
Calling all consumers!


We would love to have contributions for our newsletter from Consumers who would like to share personal stories, poetry, ideas that have helped you make it through the rough times, or any creative work.  If you would like to contribute visual art please contact Nina for details on how to do that.

How do you feel about the word "Consumer"? That is the word used by NAMI to indicate a person with a mental illness. Does that word work for you? Do you have an idea for another word that might indicate who you are, yet do it in a positive way? Let us know what you think. Please send your ideas to Nina and she will pass that information on to our Board for consideration. 


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resource
Resources

Helpful ideas, places and programs

Books, Audiotapes, and Videos
Community Organizations
School Programs

Helpful Resources
Please click on the heading to go to the complete list. 

General Information

Mental Health Resources

Family & Caregivers Resources


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Volunteer Opportunities
Do you want to help?

NAMIDKK would love to be doing more but there is just not enough time in our days to do everything we think of.  If you have an hour or more to help us out we would be glad to hear from you.  For some things you do not even need to come into our office to help. 

If you can help us returning phone calls we will provide training and resource materials.  If this is something you would like to do, please contact Elaine at 630-377-1563 or epmulligan1@gmail.com.

Your help as volunteers would increase our ability to help improve the quality of life for individuals with mental illness and their families.  We need:  a grant writer, a publicity coordinator, speakers bureau volunteers, help line call takers, dinner/raffle help, more people for our educations programs, someone to join NAMI National's Stigma Buster Alert program, people to help update resource information, as well as newsletter submissions. 

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Membership
BECOME A MEMBER OF NAMI DEKALB, KANE SOUTH & KENDALL COUNTIES

NAMI DKK is a nonprofit organization affiliated with NAMI - The National Alliance on Mental Illness.

Membership includes: Membership in Illinois and National NAMI
NAMI National's publication Advocate (quarterly)
NAMI Illinois' publication Stateline (quarterly)
NAMI DKK CARES email Newsletter (monthly)

New members receive a welcome packet and our NAMI-DKK Handbook (when available).

Please complete the information below and mail your check or money order to
    NAMI-DKK
    400 Mercy Lane,
    Aurora, Illinois 60506
 
Name:___________________________

Address:_________________________

City:_____________Zip:_____________

Telephone (s):_____________________

Email (s): ________________________

 
Individual:           $30/year    _______
Advocate:           $100/year  _______
Lifetime:              $500          _______
Written Newsletter Only       _______
($10 suggested donation)             
Open Door           $3/year     _______
(Those with limited means/fixed incomes are invited to join at this reduced rate)
Donation Only      $               _______

Total Enclosed:    $   _____________

 
Note: Membership and donations are tax deductible.
 
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Forward This Newsletter
PLEASE PASS THIS ON
If you know someone that might benefit from getting this newsletter you can use the link below to forward this newsletter to them.  If they enjoy it and want to get it all the time they can subscribe, but only if they want to.  They will not be automatically put on our mailing list.

The newsletter is a great way to keep up with what is going on with NAMIDKK, find resources, and learn about ways you can help. 

Forward to a Friend

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About Us

NAMIDKK can be reached by
phone: 630-896-6264
fax: 630-896-6365
email: info@namidkk.org
mail: 400 Mercy Lane
Aurora, IL 60506
website: namidkk.org

NAMIDKK is an affiliate of a national network of NAMI groups all over the world.  The national website has many resources for both consumers and families, educational information about mental illness and treatments, and the latest news concerning our issues.

NAMI Illinois is the state organization that can direct you to local events and groups as well as keeping us updated about what is happening in our state.  The state website also has resources and links to other organizations.

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NAMIDKK Board of Directors
 
Phyllis Graeser - President
Nina Finch - Vice President
Jack Hazel - Vice President
Walter Deuchler - Treasurer
Mary Ihnenfeld - Secretary
Suzanne Deuchler
Denise Edwards
Bethany Genenbacher
Regina Harris
Jim McNish
Elaine Mulligan
Betty Schoenholtz
Jennifer Wilcox

Legal Advisor: Alschuler, Simantz & Hem, LLC - Jan OPittman, Legal Assistant
Accountant: Borhart, Spellmeyer & Co.

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