Please note that this study still needs participants as of October 2010. If you are interested it is not too late to sign up. Research Study Opportunity
Patients and Family Members Needed to Help Solve the Puzzles of Bipolar
Disorder & Schizophrenia
Researchers are looking for participants for a project called Bipolar-Schizophrenia Network on Intermediate Phenotypes (B-SNIP). The B-SNIP project is funded by the National Institute of Health to learn about risk for schizophrenia, schizoaffective disorder and bipolar disorder and their associated biological and behavioral
traits (called intermediate phenotypes).
The goal of this research is to help better understand the causes of
these illnesses so that better treatments may be developed.
Those eligible are: ~individuals
between 15 and 65 years of age, who have been diagnosed with
schizophrenia, schizoaffective disorder or bipolar disorder and ~With
at least one first-degree relative, i.e. brother, sister, mother,
father or child, also between 15 and 65 years of age, who may or may
not have a psychiatric disorder, or have history of mental health
problems.
For more information or to
enroll contact:
B-SNIP Research Study LineCenter for Cognitive Medicine, Suite 235, Department of Psychiatry University of Illinois at Chicago Medical Center 912 S. Wood St., Chicago, IL 60612 Phone: 312-355-5549 Email: bsnip@psych.uic.edu
All procedures are
noninvasive and monetary compensation is provided. There is no cost to participants
You can find out about other research opportunities at nami.org.
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NAMI 5K Run For Mental Health
Join us in downtown Batavia, Illinois on Saturday, October 9, at 9:00am 
Our race this year features:
Award-Winning Technical Race Shirts Medals For Top Finishers Fundraising Opportunities for NAMI "Race For Free" by Reaching Fundraising Goals Green Initiative to Reduce Impact On Our Environment
Location: Fox River Trail, Batavia, IL 27 North River Street
Registration Closing Date: Thursday, October 07, 2010 @ 11:59 PM
Click here to register online
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October 3-9 Mental Illness Awareness Week
In 1990, the U.S. Congress established the first week of
October as Mental Illness Awareness Week (MIAW) in recognition of NAMI's
efforts to raise mental illness awareness. Since 1990, mental health advocates
across the country have joined together during the first full week of October
to celebrate. Beginning Oct. 1 - PBS television
stations in some communities will
begin airing the documentary Unlisted: A Story
of Schizophrenia.
Saturday, Oct. 9 - Run for Mental
Health, a Walk/Run in Batavia sponsored
by NAMI-DKK. Go to nami5k.com for
more information and to enter. Sunday - Saturday Oct. 3-9 -
Consider spending a few minutes each day
learning more about mental illness or share your
story so that someone else can learn more. |
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Coming Events
October 18, 2010 - Monday 5:30 pm NAMIDKK Board Meeting Location: M H Board Room, 400 Mercy Lane, Aurora, IL Time: 5:00pm Meal, 5:30pm Meeting Please call the office for more information (630) 896-6264
February 15, 2011 - Tuesday 6:30pm to 9:00pm Family-to-Family Classes begin, continuing weekly on Tuesdays for 12 weeks to May 3, 2011. See information above for more details.
Save These Dates:
October 3 through 9, 2010 Mental Health Awareness Week This year's theme is "Changing Attitudes, Changing Lives." October 9, 2010 - Walk/Run in Batavia: RUN FOR MENTAL HEALTH (Previously called the Bat Run) 9:00am Go to the website: nami5k.com for more details and to register.
October 15 - 17, 2010: NAMI Illinois Educational Conference - Learning Together...Changing Minds in Peoria, IL. You can find more information at the NAMI Illinois website.
November 9, 2010 8:00am to 4:00pm: Suburban-Chicago Interfaith Mental Health Coalition Conference Mental Health Needs of Your Faith Community, How to Recognize, Respond, and Refer (more info next month)
February 5, 2011 - Annual Dinner/Raffle in Geneva July 6-9, 2011 - NAMI National Conference to be held at Chicago Hilton
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October Fast Fact
INFORMED CONSENT DOCUMENT is a document that describes the rights of the study participants, and includes details about the study, such as its purpose, duration, required procedures, and key contacts. Risks and potential benefits are explained in the informed consent document. The participant then decides whether or not to sign the document. Informed consent is not a contract, and the participant may withdraw from the trial at any time.
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Readers' CornerA
Book Review by a Consumer Nutterville ...And Other True Stories of Coping with Mental
Illness
by Faye Ellen Kufahl
I like being with family and friends, reading true stories
of inspiration, and taking care of my Labrador Retriever. I chose this book because Faye, the
author, isn't mentally ill and her sister, Gail has paranoid
schizophrenia. Accordingly, my
sister isn't mentally ill and I am a consumer. The book's title is somewhat misleading, as mental illness
is only lightly mentioned until chapter 20. It is primarily about Faye, growing up in the 1950's in
Nutterville, a Wisconsin town.
During Faye's childhood Gail is institutionalized. When mental illness is written about,
it is poignant. When both women
are adults Gail arrives at Faye's doorstep after release from an institution and
subsequent homelessness. I was
struck by Gail's helplessness and the care and compassion Faye shows Gail. This speaks to the problem of
homelessness the mentally ill face today. Furthermore, I learned through Gail, as her life traces the
treatment of the mentally ill, starting in the 1950's until her death. I had to push myself to read the earlier parts of the book
because I wanted to read more about mental illness, but I found the parts on
mental illness moving. For
example, the book touches on the effect Gail's illness has on her family. Faye depicts her father crying on the
way home from a family party when Gail is on a home visit. The writing is readable with good imagery. It is because of Nutterville ...And Other True Stories of Coping with Mental
Illness that I would
like to read more about the history of and present day treatment of the
mentally ill. Back to Top
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Readers' CornerBook
Review By Elaine
P. Mulligan Helping
Someone with Mental Illness By
Rosalynn Carter With
Susan K. Golant 1998
Elaine Mulligan here.
I live in St. Charles, IL.
I like to knit, sew, play golf and bridge, as well as spend time with my
kids, grandkids and friends. I
have been a career homemaker (you never retire from that) and substitute teacher
(retired). My reading interests
are varied. I picked this book to
review because my husband and I have a 39-year-old son who lives with schizophrenia. He was diagnosed 12 years ago. I enjoyed the book very much. It was better than I expected. I went into it thinking that since the book is 12 years old,
it could be a bit dated. It is
true, much has happened in the field of Mental Health Research in the last 12
years, however, the book is so well put together and includes many resources (a
glossary and 5 appendices), such that you are getting a great handbook to help
someone, much as the title indicates.
The writing style was very pleasing to me as it was peppered with
examples that Rosalynn experienced either through meetings with families and
their mentally ill loved ones, her own family and acquaintances with mental
illnesses, letters that she received from people who themselves had a mental
illness or from their family member, as well as facts from researchers in the
field. Rosalynn Carter was very
involved in the area of Mental Illness for almost 30 years before the writing
of this book. Something that I learned in the reading of this book, or
perhaps I should say relearned, is that the stigma attached to having a mental
illness is very real and although it has lessened over the years, it is not
close to going away. Helping
Someone with Mental Illness underscored this fact by citing many examples of people who actually
were diagnosed either very late or not at all because of the problems those persons
expected to experience in the work-a-day world if they were to be public with
their "potential" or perhaps very real mental illness. Yes, laws have been passed to
stop gap this problem, but nonetheless, it is still a very common problem.
A great example of the consequences of stigma given in the book was
in 1972 when Senator George McGovern, the
Democratic candidate for president, selected Senator Thomas Eagleton of
Missouri as his vice presidential running mate. Soon after word was leaked to
the McGovern campaign and eventually to the press that Senator Eagleton had had
a mental illness. Eagleton held a
press conference during which he admitted to having been "voluntarily"
hospitalized three times in the previous twelve years for "nervous exhaustion". Initially Senator McGovern expressed
confidence in his running mate, and Eagleton's colleagues in Congress applauded
his abilities despite his earlier bouts with depression. However, donations to the Democratic Party
dropped sharply after the news conference. Two weeks after he was chosen, Senator Eagleton became the
first U.S. vice-presidential nominee to withdraw from candidacy, a victim of
the stigma associated with mental illness. Yet another piece of this book was the "hope" given for those
with mental illnesses and in fact for those who are genetically predisposed to
mental illness and have not yet or maybe never will have a mental illness. I only have to read one and yet there
were many examples of people living normal lives with a mental illness and I am
given great hope. Bigger than that
we have today and had at the writing of this book in 1998, the hope of
preventing mental illness onset via emphasis on children's mental health and
early intervention, as well as the vast advances made in the field of brain
imaging. Last year, 2009, was the
one hundredth anniversary of the first White House conference on the needs of American's
children. The author, Rosalynn
Carter, at the writing of this book in 1998, said: "Let's really have something
to celebrate, but let's not wait until the year 2009. Our future and the lives of our children depend on it."(Pp. 256) Strides have
been made, but our vigilance is essential. The reading of this book was for me a wonderful
experience. This is a great
handbook, even though written 12 years ago.
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Consumers' Corner
Light at
the End of the Tunnel
By: Brian Hansen
Even though
we all go through many struggles in life, I try to have a positive
outlook. I try not to get down and
discouraged. As you may very well
know it is a very hard struggle having a mental illness. In many ways it is harder for us to
live with mental illness than people without a mental illness, however I also
see it from the perspective that when we meet these challenges we may be
stronger than the average person.
Each trial we face and overcome makes us stronger if we learn from those
experiences and learn what helps us through it and we do not lose hope.
For over 20
years now I have been diagnosed having schizophrenia. I have learned many things over the years...things that worked
for me like: taking my medications
correctly, seeing and working with my doctor and therapist, having family and
support systems, working, having hobbies, and being active.
I realize
that mental illnesses are medical illnesses and need to be treated by mental
health professionals. However,
there are ways you can help in your recovery. I cannot give you medical advice, talk to your doctor.
I always
try my best to take my medicine like I am supposed to. I try to be active in my
treatment. I try to have goals and
sense of purpose with a positive attitude. I also have faith and hope.
I could
have given up hope years ago, however I did not. I had a lot of people help me. Plus I kept hanging in there and worked hard. I did all I could to help myself get
better. Now since I persevered
everything is paying off as I am winning the battle over my illness. I see light at the end of the tunnel.
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| Note: Please let us know right away if you are interested in training to lead any of these groups. There is not much time left to sign up!
NAMI Illinois Training Classes
The following training classes will be offered by NAMI Illinois from Nov 12 - 14, 2010:
NAMI Family-to-Family Teacher Training NAMI Family Support Facilitator Training NAMI In Our Own Voice Presenter Training NAMI Connection Recovery Support Group Facilitator Training NAMI Basics Teacher Training There is an application process for these classes. If you are interested in taking any of this training please contact NAMI-DKK at 630-896-6264. Back to Top |
Educational Programs
Helping schools reach out to children with mental illness
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PARENTS AND TEACHERS AS ALLIES: Parents
and Teachers as allies was created to help families and school
professionals identify the key warning signs of early-onset mental
illnesses in children and adolescents in our schools. The program is
intended to provide an educational tool for advancing mutual
understanding and communication between families and school
professionals. This program is designed for two-hour teacher
in-services, parent PTA sponsored evenings, and mental health
professional classes.
RED FLAGS: Red
Flags is a depression awareness program for middle school students. It
is generally taught in health classes and takes 3-5 class periods. The
teacher can choose between 2 DVD's: "Claire's Story," or "Thick'n
Thin," a more recent story of teenage depression. Two additional DVD's
go with the program, as well as suggested class activites, information
on mental illness and discussion topics.
ENDING THE SILENCE: Ending
the Silence is a high school health class presentation, typically
presented during the mental health portion of the curriculum. This
interactive program teaches the basic signs and symptoms of mental
illnesses in teenagers, presents personal stories to reduce stigma, and
provides many resource materials for students.
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NAMIDKK Vision Statement
VISION: NAMI-DKK is dedicated to the eradication of the stigma of mental illness by
improving the quality of life of all those striving for mental health wellness.
NAMIDKK
Mission Statement
MISSION: The mission of NAMI-DKK is to advocate, educate
and support persons, family members and communities dealing with mental health
issues
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NAMI-DKK Family-to-FamilyScheduled for February 2011
The NAMI Family-to-Family Education Program is a free, 12-week course for family caregivers of individuals with severe mental illnesses. Click here for more details. Tuesday, Feb 15, 2010 6:30 - 9:00pm
continuing weekly for 12 weeks through May 3, 2011
Provena Mercy Medical Center 1325 N Highland Ave Aurora, IL 60506
Classes are free
Registration is required To register call Denise at 630-405-9336
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Support Groups
NAMI-DKK FAMILY SUPPORT GROUPS (No charge, no reservations needed)
These support groups provide relevant information, valuable
insight, and the opportunity to engage in support networks. The groups are led by family members
that have been trained in classes provided by NAMI Illinois. Family members are invited to join more than one group to provide more frequent
support.
Aurora: 3rd Tuesday of
the month, from 7:00-8:30 p.m. The McDermott room, Provena Mercy Hospital (lower level),
in Aurora. 630-761-6971 (Buzz Hays) DeKalb: This support group is not currently meeting. Please contact
our NAMI-DKK office at (630) 896-6264 for the latest information. St. Charles: 1st Thursday of the month at 7 p.m.
The Congregational
United Church of Christ, 40W451 Fox Mill Blvd. St. Charles, IL. (To get there, go west on Route 64 to
Fox Mill Blvd. and turn left. The
church is south of Fox Mill on the left. The entrance is on the south corner from the parking lot.) 630-584-7481 (Lynette Niequist)
Elgin (NAMI Kane County):
2nd Tuesday 6:30-8:00 p.m. St, Joseph Hospital (St. Mary's Room lower
level) Call Laurie 847-695-7957
NAMI CONNECTIONS RECOVERY GROUPS (No charge, no reservations needed)
Currently the NAMI-DKK Connections Recovery Groups are not
meeting.
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OTHER AREA SUPPORT GROUPS
KENDALL COUNTY SUPPORT GROUPS:
The Kendall County Health Department provides the following
support groups lead by mental health professionals. For further information please contact the KCHD Admissions
Coordinator, Rhonda at (630) 553-9100 X8053 · Life Strengths: Peer
Support for those dealing with chronic mental illness. · Understanding your
Diagnosis: Family support and for those individual(s) working towards mental
health recovery.
. Dual Diagnosis Group: Treatment for those individuals
addressing both substance abuse and mental health issues.
DEPRESSION & BIPOLAR SUPPORT ALLIANCE - Fox Valley
Meets: 2nd and 4th Tuesdays of the month
Behavioral Health Services Bldg. Campus of Central DuPage Hosp. 27 W 350 Highlake Rd. Winfield Rd., Winfield, IL.
Contact person: Judy Kramer, Pres. Phone: 630-466-4851 Email: Judykramer@MCHSI.com Website: www.DBSAFoxvalley.org
NAMI KANE COUNTY ELGIN SUPPORT GROUP:
CARES Support Group - led by and for individuals working towards recovery Monday
mornings 11:00 - 12:00 p.m. Ecker Center, Elgin - 2nd Floor for information: NAMI -
847-426-4594
NAMI DUPAGE COUNTY SUPPORT GROUPS:
NAMI DuPage has several support groups that are open to
anyone no matter where you live. There is no charge for these groups. To find out more about these groups and where they meet you
can go to: http://www.namidupage.org/support/support-groups
NAMI BARRINGTON SUPPORT GROUPS: NAMI Barrington has two family support groups that are open to
anyone no matter where you live. There is no charge for these groups. To find out more about these groups and where they meet you
can click on this link. Back to Top |
Consumers' Corner
Calling all consumers!
We would love to have contributions for our newsletter from Consumers who would like to share personal stories, poetry, ideas that have helped you make it through the rough times, or any creative work. If you would like to contribute visual art please contact Nina for details on how to do that.How do you feel about the word "Consumer"? That is the word used by NAMI to indicate a person with a mental illness. Does that word work for you? Do you have an idea for another word that might indicate who you are, yet do it in a positive way? Let us know what you think. Please send your ideas to Nina and she will pass that information on to our Board for consideration. Back to Top |
Resources
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Volunteer Opportunities
Do you want to help?
NAMIDKK would love to be doing more but there is just not enough time in our days to do everything we think of. If you have an hour or more to help us out we would be glad to hear from you. For some things you do not even need to come into our office to help. If you can help us returning phone calls we will provide training and resource materials. If this is something you would like to do, please contact Elaine at 630-377-1563 or epmulligan1@gmail.com.Your help as volunteers would increase our ability to help improve the quality of life for individuals with mental illness and their families. We need: a grant writer, a publicity coordinator, speakers bureau volunteers, help line call takers, dinner/raffle help, more people for our educations programs, someone to join NAMI National's Stigma Buster Alert program, people to help update resource information, as well as newsletter submissions. Back to Top |
Membership BECOME A MEMBER OF NAMI DEKALB, KANE SOUTH & KENDALL COUNTIES
NAMI DKK is a nonprofit organization affiliated with NAMI - The National Alliance on Mental Illness.
Membership includes: Membership in Illinois and National NAMI NAMI National's publication Advocate (quarterly) NAMI Illinois' publication Stateline (quarterly)
NAMI DKK CARES email Newsletter (monthly) New members receive a welcome packet and our NAMI-DKK Handbook (when available). Please complete the information below and mail your check or money order to NAMI-DKK 400 Mercy Lane, Aurora, Illinois 60506 Name:___________________________ Address:_________________________ City:_____________Zip:_____________ Telephone (s):_____________________ Email (s): ________________________ Individual: $30/year _______ Advocate: $100/year _______ Lifetime: $500 _______ Written Newsletter Only _______ ($10 suggested donation) Open Door $3/year _______ (Those with limited means/fixed incomes are invited to join at this reduced rate) Donation Only $ _______ Total Enclosed: $ _____________ Note: Membership and donations are tax deductible. Back to Top
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Forward This Newsletter
PLEASE PASS THIS ON
If you know someone that might benefit from getting this newsletter you can use the link below to forward this newsletter to them. If they enjoy it and want to get it all the time they can subscribe, but only if they want to. They will not be automatically put on our mailing list.
The newsletter is a great way to keep up with what is going on with NAMIDKK, find resources, and learn about ways you can help.
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About Us NAMIDKK can be reached by phone: 630-896-6264 fax: 630-896-6365 email: info@namidkk.org mail: 400 Mercy Lane Aurora, IL 60506 website: namidkk.org
NAMIDKK is an affiliate of a national network of NAMI groups all over the world. The national website
has many resources for both consumers and families, educational
information about mental illness and treatments, and the latest news
concerning our issues. NAMI Illinois is the state organization
that can direct you to local events and groups as well as keeping us
updated about what is happening in our state. The state website also has resources and links to other organizations. Back to Top
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NAMIDKK Board of Directors
Phyllis Graeser - President Nina Finch - Vice President Jack Hazel - Vice President Walter Deuchler - Treasurer Mary Ihnenfeld - Secretary Suzanne Deuchler Denise Edwards Bethany Genenbacher Regina Harris Jim McNish Elaine Mulligan Betty Schoenholtz Jennifer Wilcox Legal Advisor: Alschuler, Simantz & Hem, LLC - Jan OPittman, Legal Assistant Accountant: Borhart, Spellmeyer & Co. Back to Top
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