|
Our Mission
To Encourage and Support impacted families by connecting them with other families who have had a hemispherectomy or similar surgery.
To Work together with medical professionals to fund research into the cause of the diseases that lead to intractable epilepsy, hemispherectomy, and the surgery itself.
To Raise Money for camp fees, scholarships for trade schools and higher education as well as provide financial relief for struggling families Read stories of hope about our families on hemifoundation.org
|
Hats
several colors to choose from
Window Decals
|
|
|
|
We Need Your Help in 2011
Dear Hemi Foundation Supporter,
Thanks to you and your support, The Hemispherectomy Foundation is fully established and supports children and families who have endured the most radical brain surgery in existence, to cure unstoppable cases of epilepsy.
How did The Hemispherectomy Foundation use your 2010 Donations?
- Sent Hospital Hemi Hug Care Packages worldwide to kids facing Hemispherectomy Brain Surgery.
- Provided Financial Aide Hardship Grants and Financial Travel Grants to families.
- Awarded College Scholarships and Camp Scholarships.
- Created a Research Fund to support Research into targeting Hemi Related epilepsy and Rehab.
- Hosted the 2010 International Hemi Conference & Family Retreat and Multiple Regional Events.
Here's How your Gift can Make a Difference to a Child Today and in 2011:
- $10 - $25 will pay the postage to send one child a Hospital Hemi Hug Care Package.
- $50 will pay for 100 Brochures to send to new families and doctors.
- $100 to $500 will send a child to the Summer Camp of their choice.
- $1,000 will fund one College or Trade School Scholarship or help fund Medical Research.
Thank You for Helping.
Kristi Hall
President and Co-Founder
The Hemispherectomy Foundation
**Donations can be sen to
The Hemi Foundation, PO Box 1239, Aledo, TX 76008
or Online at http://www.HemiFoundaiton.org
All Donations are 100% Tax deductible. Hemispherectomy Angels is a 501c3 Public Charity.
EIN: 26-2864993 |
|
| |
The Hemi Lighted Forest of Hope
A Brighter Place for Children who have been impacted by Radical Brain Surgery
Imagine over 65,000 multi-colored lights, radiantly illuminating 421 live evergreen trees, with a backdrop of the great Rocky Mountains in Wyoming. Now imagine that each one of these trees represents a child who has endured an unimaginably radical brain surgery, to combat unstoppable epilepsy. This is the vision of "The Hemi Lighted Forest of Hope", and just as each tree shines brightly, so does the hope of the children that it represents.
All of these children have had a hemispherectomy, a brain surgery that provides relief from intractable epilepsy. In this radical surgery, half the brain is removed or disconnected to stop damaging and life-threatening forms of epilepsy. Of the 50 Million people in the world, who struggle with epilepsy, these children are, by far, the worst of the worst cases.
"We think of these kids and the struggles that they have to meet every day. This is just one way that we can show support to each and every one of them," Kelley said. Any funds raised from this project will go to The Hemispherectomy Foundation to help these children.
"It makes you realize that you can make a difference in your community, and you can make a difference in communities across the United States and around the world", Kelley said of the project. "You think out of the hat a little bit and you make it happen. Nothing is impossible. Nothing."
To Read More, Go To The Hemi Foundation Website.
How to Help
People can participate in the Adopt a Child and Hemi-Lighted Forest of Hope project, by learning about Hemispherectomy at www.HemiFoundation.org or by contributing.
People can symbolically adopt a child with a large, lighted tree for $100, adopt a child with a small, lighted tree for $50 or donate whatever they can. Checks can be sent to the Hemispherectomy Foundation, Forest of Hope, P.O. Box 1239, Aledo, Texas, 76008.
Secure donations can be made on-line at www.HemiFoundation.org .
If you have any questions about the display, please email : garyk@ihswy.com
Or Write to :
Gary & Nancy Kelley
6565 Ashley Drive
Cheyenne, WY 82009
|
|
| |
Mark your calendars NOW for the 2011 Hemispherectomy Foundation Conference and Family Reunion. You don't want to miss the 2011 conference and family reunion in sunny southern California at the Disneyland Paradise Pier Resort. http://disneyland.disney.go.com/hotels/paradise-pier-hotel/
The 2011 Conference promises to be a well-balanced mix of informative speakers, educational topics, and information geared specifically for families who have been impacted by Hemispherectomy Brain Surgery. In a relaxed, family atmosphere, among other families just like yours, you will be able to learn from others who have walked in your shoes. You will hear from doctors, experts, and scientists who are leaders in the fields that impact your child. Most importantly, you will meet new friends and see old friends who will walk the journey with you.
Make this trip part of a family summer vacation, or come exclusively for the event, but don't miss it. This is also a great chance to schedule appointments at nearby hospitals where your child may have had surgery. Before or after the conference is an ideal time to schedule those yearly follow-up appointments. You may even see your favorite doctor at the conference.
Everyone is invited. It doesn't matter whether you are from the East Coast, West Coast, somewhere in-between, or on the other side of the world, we want you in California in 2011. The Hemispherectomy Foundation Team is putting together an affordable package so that everyone can make it. And as always, The Hemispherectomy Foundation will be offering some financial aid for those who want to come, but just can't fit it into their budget without a little help.
So Block-Out those calendars now! And watch The Hemispherectomy Foundation website for more details throughout the year. We can't wait to see you on July 7th, 8th, and 9th for The 2011 Hemispherectomy Foundation Conference and Family Reunion !
|
|
| |
The Hemispherectomy Foundation Medical Research Awards Program
· It is estimated that up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures), Sudden Unexplained Death in Epilepsy (SUDEP), and other seizure-related causes.
· Epilepsy impacts over 3 million Americans (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson's disease combined).
· Historically, epilepsy research has been under-funded. Federal dollars spent on research pale in comparison to those spent on other diseases, many of which affect fewer people than epilepsy.
(source CURE : Citizens United for Research in Epilepsy)
The Hemispherectomy Foundation is dedicated to championing the cause of Medical Research, especially in areas that directly impact the families that we support...those impacted by Hemispherectomy brain surgery, where one-half of their brain is removed or disconnected to control epileptic seizures.
With this in mind, The Hemispherectomy Foundation is excited to announce the formation of The Hemispherectomy Foundation Medical Research Awards. These Awards will be given annually to outstanding researchers who have shown a commitment to conducting medical research that is significant to the Hemispherectomy Community and those families that we serve. The Awards will be given to researchers in areas including, but not limited to:
* Physical Rehabilitation of the Hemiparetic Hand, Arm, Leg, Foot
* Gait and Walking Rehabilitation
* Cognitive Rehabilitation
* Hemimegalencephaly Research
* Cortical Dysplasia Research
* Research into Rasmussen's Encephalitis
* Pediatric Stroke Research
* Sturge-Weber Syndrome Research |
|
| |
Holiday Cards by Hemi Artists
Tis the season to purchase your Christmas cards. Raise awareness and proudly show your support of The Hemi Foundation by sending out Christmas Cards created by a hemispherectomy child. All proceeds from sales will be used exclusively to help and support those who need, or have had, a hemispherectomy.
You may order a variety pack of one of each style. Make a difference in a child's life. Orders will be shipped immediately.
Click here to buy your cards and support The Hemi Foundation
|
|
Contact The Hemispherectomy Foundation
The Hemispherectomy Foundation
PO Box 1239
Aledo, Texas 76008
817-307-9880
| |
