BLOOM E-newsletter
June, 2010
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Mothers see their careers disproportionally affected as they confront greater demands on their time, inflexible workplaces and increased medical costs, a new study finds.

A struggle to educate the severely disabled 
A feature in the New York Times spurred numerous comments from readers who felt education dollars were wasted on students with multiple disabilities. "We're polishing stones and dulling diamonds," one reader wrote.
 
Bill passed in Albany to make insurers pay for autism care 
State lawmakers passed legislation this week that would require insurers to cover autism-related screenings, diagnoses and treatments.
 
Swedish theatre includes actors with intellectual disabilities 
A ground-breaking theatre in Malmö, Sweden, makes people with intellectual disabilities equal partners in the creative process.
 
My disabled son's first time at camp 
The decision was made. Part of me was terrified.
 
NIH awards $2.5 million to study osteoporosis in youth with Spina Bifida
"We don't know whether or not adolescents with spina bifida have differences in bone development resulting from their disease or if they're developing less bone mass because they're spending less time doing weight-bearing activities." 
 
Pilot school for Asperger's hopes to open in fall 
A mother hopes to open the first private school for children with Asperger's in Canada.
Bringing visibility to disability






Create a video under two minutes that will bring visibility to disability. Terrific prizes will be awarded including a first prize of $5000 cash.
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'I hope in me she sees something of herself'
"Like most of you, I am the parent of a child with a disability. But unlike many of you, I have the same disability as my child does." I'm delighted to share a guest blog today from Ellen Dollar, a writer in West Hartford, Connecticut who has a bone disorder that she shares with her daughter Leah. Does it make it easier, or harder, to parent a child who has the same disability you have? More
When sleep eludes your child
Imagine your six-year-old child gets up at 1 a.m. four times a week, and won't fall back to sleep till 5 in the morning. Relatives want you to visit, so you book a hotel and make the three-hour drive. But at 1 in the morning the first night, your oldest son wakes up... and wakes up his younger brother. Knowing nobody will sleep this night, you pack up your stuff and hit the highway for the drive home at 2 in the morning. More
Giving: 'The greatest feeling you'll ever have'
Bloorview has exciting news. This morning Canadian investment executive Bill Holland announced his family was donating $20 million to Bloorview Kids Rehab. The Holland family has already donated $6.2 million to the hospital. In recognition of their extraordinary giving, Bloorview is adding the Holland name to our name. Our new name is Holland Bloorview Kids Rehabilitation Hospital. More
Louise joins the Circle of Honour
On Wed. night I received a Circle of Honour Award for advocacy for my work with BLOOM. The Circle of Honour is Holland Bloorview's highest award for people who make the world a better place for kids with disabilities and their families. This award was very special to me because I was nominated by two parents. I wanted to share my speech with you.
 More
'The shoes are too big'
A few months ago, my husband Matthew and I were talking about the fact that Benjamin is so delayed in certain areas. About how really and truly, it is okay. But then I started wondering: why is it okay? I know the "right" answers of course. That it just is what it is. We learn from it, we grow from it, we love because of it. But lately I just don't care. Yes, Benjamin is very sweet...But I want my son to be normal. More
When you wish upon a star
Last night Ben and I lay looking up into a black sky filled with stars. Our bodies sunk into a yellow bean-bag mat and he draped an arm across me. As we took in the mystery and majesty of the immense sky, our breathing slowed. "If you see a shooting star, you can make a wish," said the recreation therapist leading us through our simulated journey into space in the Snoezelen room. More
Tying your own shoes: An interview
I was contacted by Chelsea Jones of Regina, Sask. She's studying critical disabilities studies at York University in Toronto and is a journalist. She interviewed Tying Your Own Shoes filmmaker Shira Avni and three of the subjects of his film about artists with Down syndrome (see photo). "My interest in disabilities also comes from a family member - my brother has Down syndrome," Chelsea says. More
Articles in BLOOM are not intended to be a substitute for professional medical advice. Community and web resources listed in BLOOM do not necessarily signify endorsement by Holland Bloorview Kids Rehabilitation Hospital. Where appropriate, please consult your physician.
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