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"Now that my daughter is eight-years-old and still in
diapers, I find it extremely difficult to change her in public. She is
too big and long for a baby change table and difficult to stand and
change in a stall! I have to change her in the back of our mini-van.
Anyone have any tips?"
E-mail lkinross@bloorview.ca and we'll print some of your responses. |
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BOOKS OF INTEREST
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The Boy in the Moon: A Father's Search for His Disabled Son, Ian Brown, 2009
Blue Sky July: A mother's story of hope and healing, Nia Wyn, 2009
A Cup of Comfort for Parents of Children with Special Needs, Colleen Sell, 2009
The Condition, Jennifer Haig, 2009
Out Came the Sun: One Family's Triumph Over a Rare Genetic Syndrome, Judith Scott, 2008
Moonrise: One Family, Genetic Identity and Muscular Dystrophy, Penny Wolfson, 2004
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Check out the latest stories on the BLOOM blog. We're delighted with our growing readership and welcome ideas on what you'd like us to cover.
Got an idea for a guest blog? Have a practical question other parents may be able to answer? Send them in!
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Breaking windows with my son |
 As David Sexton runs along a hill overlooking the Hudson River, his
thoughts turn to his son, in the stroller in front of him: "I feel,
when I'm like this around him, that we're just two boys together. I'm
not old (or too heavy) and he's not impaired - we're just two boys
running along a river." More |
| A new voice - and a measure of independence |
 For 27 years, Dung Le's mother has been at his side, translating his sounds and gestures. Now a Bloorview PhD student harnesses the power of an infrared camera to enable Dung to say his first words. More
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| Taking a stand |
 'It's always been hard for me to speak out... I wanted to be liked. As a result I smoothed things over when there was a problem. I respected authority and didn't rock the boat. That didn't bode well
when I gave birth to a child who was medically compromised.' How my son changed me. More
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| Does your child struggle with keyboarding? |
 Touch typing is still the gold standard for keyboarding instruction,
but for children with fine-motor problems, it's a recipe for failure,
says Cynthia Tam, occupational therapist at Bloorview. More
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| My own private gate |
 A beautiful reminder from mother and author
Jennifer Graf Groneberg that we are families first and foremost, and
sometimes the focus on disability, difference and rehab has to take a
back seat. How do you close your metaphorical "gate" when you need a breather from the intensity of special needs parenting?
More
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| ONLINE |
Insurers fight speech-impairment remedy
As the parent of a child who once used voice technology, it always angered me that our kids can't benefit from mainstream technology like iPods and blackberries. Instead, they're forced to use proprietary devices that are slow, cumbersome, and not intuitive.
Why do the big computer- and electronics-makers ignore the augmentative communication market? This New York Times article reveals part of the problem: Medicare and private health insurers won't cover cheaper devices like iPhones.
Mom, activist
Cindy Mitchell didn't start out as
an activist. But the death of one daughter and challenges of another
sparked a passionate commitment to helping people with disabilities
become contributing, fulfilled citizens.
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Articles in BLOOM are not intended to be a substitute for professional medical advice. Community and web resources listed in BLOOM do not necessarily signify endorsement by Bloorview Kids Rehab. Where appropriate, please consult your physician.
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