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The summer is rapidly flying by! Before you know it, we'll be putting out our Fall decorations and why not when all the stores already have their Christmas displays out!
If you are wondering what to do before it's back to school or back to crisp fall weather, be sure to read this newsletter full of events from participating in a Worldwide Research Study, to a bake sale to splashing fun at our 2nd annual summer event! If you are more of an indoor person, be sure to visit our brand new website which is up and running and full of wonderful information and resources.
If your calendar is packed and you aren't available until the fall, we'll have plenty of events then -- our Community Groups will be starting back up and we will host our annual picnic be on the lookout for details!
We hope to see you at an event soon!
| Thank You Senator Ben Cardin of Maryland!
|Senator Cardin Advocates for TS
Senator Ben Cardin of Maryland gave a seven-minute speech on the floor of the Senate about Tourette Syndrome and the need for greater education and awareness nationally. His speech covered how the daily lives of Americans with TS and their families are so profoundly affected, and brought awareness not just to the members of Congress, but to the millions who watch Congress on C-Span each day. READ MORE
|New Tourette Syndrome Research Study
| Worldwide Research Study Available for Children & Adolescents Living with TS
Rush University Medical Center in Chicago, is partnering with Inclinix, Inc., a Wilmington, NC-based clinical trial enrollment solutions provider specializing in Global patient enrollment for pharmaceutical research studies to recruit children and adolescents diagnosed with Tourette's for AWARE, a new worldwide clinical research program.
You may be able to join the AWARE study if you:
- Are 7-17 years old and have a doctor's diagnosis of Tourette's
- Are experiencing tic symptoms such as unwanted twitches, movements or sounds that disrupt normal activities or behavior
- Are without a history of psychotic disorders
- Are not pregnant, not planning to become pregnant, or not planning to get someone pregnant
- Have the approval of your parent or guardian
|Support Karen at her TS Bake Sale in Lake Zurich
Lake Zurich Wal-Mart (map)
820 S. Rand Road
Aug 11th & 12th
12:00 pm - 6:00 pm
Ever wonder how you can make a difference? Well Youth Karen Lai of Lake Zurich decided to have a bake sale at her local Wal-Mart in Lake Zurich with 100% of the proceeds going to TSA-IL! Not only is Karen fundraising she is also going to have Tourette Syndrome information to pass out to help educate the public about TS.
Raising funds for TSA-IL and advocating for TS is most certainly a winning combination. Please come out and support Karen by purchasing some of her yummy treats and her dedicated efforts to TS! Make sure no cookie is left behind! Happy Baking Karen!
| Rainbow Falls Water Park Summer Event
Rainbow Falls Waterpark (Directions)
Elk Grove Village
Sunday, July 29th
1:00 pm - 5:00 pm
This family event is OPEN TO EVERYONE affiliated with TSA-IL and for all ages!
Don't miss this opportunity to cut loose and enjoy some splashing good fun with fellow TS'ers! It's a great chance to meet some new people! So far we have over 40 people attending! Be sure to send in your RSVP -- we have extended the date to July 27th.
We have reserved Mango Grove and TSA-IL will provide beverages and some yummy treats. Just bring your wonderful self, family and/or friends, towels, sunscreen and mail your admission fees to TSA-IL.
COST: $9 admission (normally $16) per person when paying by check or $10 admission when paying via PayPal (to help defray PayPal fees)
For additional information and payment details go to Invite to Rainbow Falls
| TSA-IL launches their NEW &
TSA-IL is proud to announce the launch of our new website. We are very excited about this innovative milestone. We believe you will notice all the additional resources and information available in a user friendly format.
A big thank you to Monkey Wrench Studio!!! We couldn't have done it without you!
Please take a few moments to tour our new site and get familiar with all it has to offer. Please let us know your thoughts! We would love to hear from you.
| Ask the Doctor!
|Katie Kompoliti, MD
Do you have a question about TS that has been bothering you?
Send us your question and it may be answered in an upcoming newsletter. Odds are if you have this question, so do others.
All general (specific situation questions cannot be answered) questions will be answered by Neurologist, Katie Kompoliti, MD. Dr. Kompoliti has an extensive background with Tourette Syndrome and tics.
Send your questions to [email protected]
| Looking for a Summer Read?
| A Fragmented Life
by Kendall Smith
The inspiring and true story of a boy growing up undiagnosed with Tourette Syndrome and Asperger's Syndrome during the late 1940's and 1950's. A Fragmented Life tells how a fearful child with a distorted view of the world, experienced life through the prism of Tourette. However, the normal world of others was bizarre, confusing, and strange to him.
It is filled with the scattered thoughts and emotions as he endured mental, verbal and physical abuse from adults and other children. Unlike those diagnosed in later years, life in the 1950's and 1960's was much different for unfortunate souls carrying the burden of this rare and then practically unknown neurological disorder.
The story begins at age five when Kendall first suffered the onset with a seizure. It follows him from a difficult childhood, into a troubled teenager and through a complicated adulthood. READ MORE