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     Alliance of Greater
     Cincinnati (BCA) Newsletter  
     December 2009



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The Breast Cancer Alliance (BCA) of Greater Cincinnati is committed to making breast cancer issues a top priority in the public and private sectors through advocacy, education, and communication.  The BCA is a member of the National Breast Cancer Coalition.

In This Issue
Updated Mammography Screenings
NBCCF Annual Advocacy Training Conference
Cincinnati BCERC
Survivorship Celebration
NBCC Information Campaign
BCA Membership
Quick Links
Our Board
Board of Directors
President: Ann Hernick
Treasurer: Lisa Starkey 
Finance Chair: Betty Tonne
Secretary: Dayle Baxter
NBCC Board Rep: Kathy Ball
Advocacy: Linda Croucher
Membership: Paulette Cunningham

Admin. Asst: Gwen Pietzuch
Our Newsletter
Contributors

Linda Croucher
Ann Hernick
Gwen Pietzuch

Join Our Mailing List
Dear Friend of the BCA,

The Board of Directors of the Breast Cancer Alliance of Greater Cincinnati (BCA) want to wish you and your family a very special holiday season. At this time of year we reflect back and thank those who have donated their time and talent to help the BCA with the work that we do in our community. We also remember those who we lost in 2009 to this terrible disease such as Sarah Mayfield, one of the founding members of the BCA.

Updated Mammography Screenings
 
Last month, the US Preventative Services Task Force (USPSTF) announced updated guidelines for screening mammography and Self Breast Exams (SBE).  This announcement came as a surprise to many.  There has been confusion, anger and misinformation surrounding this announcement.  The USPSTF has since acknowledged their timing was unfortunate, and that they did a poor job of communicating their recommendations.  This has resulted in an update of their web site to include a message for women to consult with their doctors about what is right for each individual.  We encourage you to visit the USPSTF web site at http://www.ahrq.gov/clinic/uspstf/uspsbrca.htm to read these recommendations.  For the rationale behind the guidelines, we recommend that you visit the National Breast Cancer Coalition (NBCC) web site at www.stopbreastcancer.org.

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NBCCF Annual Advocacy Training Conference
 
This year, the National Breast Cancer Coalition Fund (NBCCF) will be holding their Annual Advocacy Training Conference on May 22-25 at the Renaissance WaNBCC Logoshington Hotel in Washington, DC.  For those of you who are not familiar with the conference, it is a three day training conference that covers the latest science, politics, and other hot topics pertinent to the breast cancer community.  Advocates will learn the most effective advocacy strategies and how to influence those making decisions about how research dollars are spent.  It's also a great place to network with other advocates.  The fourth day in DC is spent by putting that new-found knowledge to work on Capitol Hill, lobbying our Ohio legislators regarding NBCCF's legislative priorities.
 
Every year in January, the BCA sends out a letter to its members, offering them a chance to apply for a scholarship to attend the conference. Look for an e-mail alert about the conference coming up soon!  Anyone wanting to join the fight to eradicate breast cancer should consider attending this valuable conference.  If you have any questions about the conference, please feel free to e-mail our NBCC Volunteer Lead Field Coordinator for Ohio and the BCA's Advocacy Chairperson, Linda Croucher, info@bcacincy.org

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Cincinnati Breast Cancer and the Environment Research Center (BCERC)

Click Here to See What The Survey Says.....
Thank you to over 170 BCA members who took the time to complete the survey that was sent to you in August regarding our collaboration with the Cincinnati BCERC.
The survey highlights are attached via poster format. BCA members Kathy Ball and Ann Hernick presented this poster at the 6th Annual Meeting of the BCERCs  last month in San Francisco.  Evaluation Services Center at the University of Cincinnati will be completing a report this month on the survey results, interviews and focus groups. This information will be published in a peer-review manuscript.

The feedback that we learned from you helped us to work with local researchers on plans for the next wave of funding.

BCA Board Approves to Support Continued Funding:
The Request for Applications (RFA) for the next wave of funding for the BCERCs is due later this month. The BCA has written a letter of support to Frank Biro, MD from Cincinnati Children's Hospital Medical Center on his application to continue the research cohort called Growing Up Female: Environmental Factors in Female Disease and Development. This study began in 2003 and the funding would continue to follow this cohort of young girls for the next five years. The BCA always needs volunteers to help with this research. Please contact us at info@bcacincy.org to learn more about how you can help.

Save the Date: for the 6th Annual Educational Forum Looking Upstream for Environmental Links to Breast Cancer to be held on Saturday, April 24, 2010 at the Genome Research Institute on 2180 E. Galbraith Rd. from 8:00am-12:30pm. The cost is $15.00.
Confirmed speakers include: Ken Setchell, PhD, who will speak about the relationship between soy and breast cancer. Glendon Zinser, PhD will discuss his research on vitamin D and breast cancer.  Frank Biro, MD will provide updates about his research on puberty and its relationship to the risk of breast cancer later in life.


BCA's Annual Survivorship Celebration:

As we mentioned in our last issRose BCAue, we will be changing the time of year and location for next year's event.
Please save the date for October 23,2010 to join members of the BCA at this annual celebration to be held at the Clovernook Country Club. More details to come!
The National Breast Cancer Coalition (NBCC)  Information Campaign
 
Those who have been diagnosed with breast cancer often feel overwhelmed and  powerless when it comes to questions they have about the disease. The NBCC has launched a new web site designed to provide individuals with the information that they need to make informed decisions about their health. The site uses the principles of evidenced based medicine to discuss topics such as:
Screening and risk
New diagnosis
Treatment and more
Cancer recurrence
Quality of life
The web site encourages you to learn the facts. Know the evidence. Become an advocate.
Visit www.KnowBreastCancer.org today!
 
October is known as breast cancer awareness month. This past October the NBCC provided 31 Myths and Truths about breast cancer for each of the 31 days in October. As you know, breast cancer is a disease that affects individuals every day of the year, not just during the month of October. We encourage you to read each of the 31 Myths and Truths by going to
www.stopbreastcancer.org
Here are two examples:
 
Truth #5: Breast cancer mortality rates are declining.
TRUE. Breast cancer death rates changed little between 1930 and 1990, but decreased 27% from 1990 to 2005.
 
Myth #9: Men don't get breast cancer.
FALSE. It is estimated that in 2009, 1,910 cases of breast cancer will be
diagnosed in men.


BCA Membership

Those on the BCA mailing list should have received a letter from BCA President, Ann Hernick last month, reminding you to renew your membership and to consider making a year end donation to help us with the work that we do. Attached is a copy of that letter. We thank your for your generous support!


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Breast Cancer Alliance of Greater Cincinnati (BCA) PO Box 42505 Cincinnati, OH 45242 513-530-0545
Editor: Conrad Neumann
email: bcacincy@yahoo.com
web site: www.bcacincy.org