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     Cincinnati (BCA) Newsletter   Spring 2009



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The Breast Cancer Alliance (BCA) of Greater Cincinnati is committed to making breast cancer issues a top priority in the public and private sectors through advocacy, education, and communication.  The BCA is a member of the National Breast Cancer Coalition.

In This Issue
Tribute to Sarah Mayfield
NBCCF $15K Grant
NBCC Conference Update
BCERC Educational Forum Recap
BCA Survivorship Recap
Karen Wellington Event
Susan Love Army
Hot Topics
Quick Links
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President: Betty Tonne
Treasurer: Lisa Starkey
Secretary: Dayle Baxter
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Newsletter: Jo Ann Hake
Community Outreach: Ann Hernick


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Tribute to Sarah Mayfield

Recently, the third founding member of the BCA died.  Sarah Mayfield passed away in March.  She was preceded in death by Linda Schmalz, in October, 2000, and Marlene Harris, in September, 2005.  The remaining five founders wrote the following remembrances in honor of Sarah, at the same time remembering Linda and Marlene whose contributions also were legendary.

"During our days together at Walnut Hills, little did I know that we would become closer friends in adulthood because of our shared diagnoses of breast cancer.  Sarah often said we'd joined a "sorority" most people wouldn't care to join.  Sarah Sarah mayfieldhad many loves:  Glenn, Amy & Gretchen, tennis (paddle, too), Canasta, needlepoint, and northern Michigan.  I think of her every day and I miss her terribly."        
-Linda Heines

"Sarah's quiet, warm humor and strength will always be remembered by so many. She had a wonderful ability to reach out to others going through breast cancer,  answering questions and always giving them courage and hope.  Cancer was with her for so many years, but she never let it consume her life.  Her life centered around her family and her strong faith.  She was comfortable with herself  and always kind and considerate of others.  Her legacy is with us and she will always live in my heart."        
-Susan Pfau

"Sarah Mayfield had a glowing personality and, when she was in a room, that glow filled the entire space!  She cared deeply about everyone around her and exuded a joie de vivre in which she modeled a positive approach to living life with cancer, thus encouraging countless others to follow her lead.  We knew what we were doing when we talked Sarah into chairing BCA's first Survivors' Luncheon.  All we had to do was pick the most gracious and welcoming person among us to set the stage so beautifully for the many celebrations to come.  We now celebrate her life and good deeds ... and, my, oh my, how we miss her." 
-Linda Smith

"When I was diagnosed with breast cancer, my friend Jan told me to call Sarah Mayfield.  I had no idea who she was, but I called and I am so, so thankful that I did because she was incredibly helpful and positive.  She really helped me through that very difficult time and I know she did the same for countless others." 
-Judy Spitz

"My fondest memory of Sarah was when we went to Washington to a reception with First Lady Hillary Clinton.  The purpose of the meeting was to discuss the need to pass legislation to help uninsured women.  Sarah was committed to seeing that all women with breast cancer had access to quality health care.  She gave her time and energy to this cause for many years." 
-Elyce Turba
NBCCF $15K Programmatic Capacity Building Grant

The National Breast Cancer Coalition Fund (NBCCF) has awarded the Breast Cancer Alliance of Greater Cincinnati (BCA)  a 2009 Programmatic Capacity Building Grant of $15,000.  Awardees were selected among invited membership organizations by a competitive process.  This grant, which is generously made possible by the Breast Cancer Fund of the National Philanthropic Trust, will be utilized by the BCA to continue the work they do with the Breast Cancer and the Environment Research Centers (BCERC) and to survey their membership on the collaboration between the research and advocacy community.

"We are excited to make this opportunity available to the BCA for their difficult and important work to help in our mission to end breast cancer," said Frances M. Visco, president of NBCCF.   "I am confident they will use the grant to continue programs that will have a lasting impact on systems of research, access and/or public policy."
Plans are underway to survey the BCA membership this summer about their experience with the BCERC, so we are asking our members to help us by responding to this survey.


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NBCCF Conference Update
nbcc2009

Local Advocates Attend the National Breast Cancer Coalition Annual Advocacy Conference and Lobby Day
 
This year's conference was a year for new attendees.  Not only for the four new women from the BCA, but for the 44% of those attending the conference who were there for the first time.  Those attending the conference from the BCA this year were first timers, Becky Brooks, Jean Forsythe, Cynthia Pate and Linda Scott.  Return attendees Dayle Baxter, Jan Ludewig, and Linda Croucher rounded out the BCA delegation.   After attending the three-day educational conference, the fourth day was spent on Capitol Hill for Lobby Day.  During the Lobby Day visits, women from the BCA, along with other members of the Ohio delegation, visited personally with Representatives Jean Schmidt and Steve Driehaus.  In addition to those visits, our group met with aides for Senator Voinovich, Congressmen Tiberi, Jordan, Austria, Wilson, and Boehner.  Discussion during the visits included thanking Congresswoman Schmidt and Congressman Wilson for signing the letter in support of the Department of Defense (DOD) Peer-Reviewed Breast Cancer Research Program.  They were the only Representatives that we visited that had signed onto this important letter.  We expressed our disappointment to those who had not signed, and were given feedback from a couple of members that next year would be different. 
 
Although the DOD letter is vitally important, the number one priority for the National Breast Cancer Coalition (NBCC) is equal access to quality healthcare for all.  NBCC feels that breast cancer will not be eradicated until everyone has equal access to quality healthcare.  Our Lobby Day visits focused on each Representative's position on healthcare reform, and what role they could fill to make it happen.  We also asked that each member of Congress make a commitment that any healthcare reform legislation would include a requirement that educated consumer advocates serve on any advisory or decision-making panels for healthcare policies.  We were able to point to the DOD Peer-Reviewed Breast Cancer Research Program as an excellent model of how educated advocates can help to make a program successful.
 
The BCA has been sending women to Washington for ten years.  This conference is an important educational tool for women involved in the fight to end breast cancer.  We have witnessed in the past that it takes educated advocates to help pass meaningful legislation that will make that happen.  The NBCC's Annual Advocacy Conference and Lobby Day continues to be an important part of fulfilling the BCA's goal of making breast cancer issues a top priority in the public and private sectors through advocacy, education, and communication.

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BCERC Educational Forum Recap
Research Findings Presented at Community Forum

"Cincinnati water is one of the best in the country" said Scott Belcher, PhD at the 5th Annual Cincinnati Community Educational Forum Looking Upstream for Environmental Links to Breast Cancer.  This event was held on Saturday, March 28, 2009 at the UC Genome Research Institute.  Belcher and other scientists convened along with advocates to present the research findings of the Cincinnati Breast Cancer and Environment Research Center (BCERC). The BCA co-sponsors this event each year.

In addition to hearing the latest research updates, the event included a poster session which highlighted award-winning posters from the Cincinnati BCERC researchers. The program concluded with a panel of local experts who discussed talking to our daughters about breast health. Key points from the presentation have been recapped and are posted online in addition to videotapes of each presentation and the panel discussion:
http://eh.uc.edu/growingupfemale/looking_upstream2009.asp

 To read more "Click Here"

BCA Survivorship Event Recap
2009 BCA Survivorship Celebration
 
On Saturday, April 18, 150 breast cancer survivors and the people who love them gathered at the Cincinnati Woman's Club to celebrate life.  The 14th Annual  Survivorship Celebration was a time of coming together to recognize the inspiration of our members.  From numerous nominations, the Survivorship Celebration Committee chose two recipients for the 2009 Linda K. Heines Award of Inspiration and Hope.  The BCA recognized Heidi Base-Smith and Katie Brown to receive the Linda K. Heines Award of Inspiration and Hope respectively. Additionally, the BCA recognized the nominees:  Susan Bernstein, Beth Goldfarb, Marianne Jackson, Dawn McNeese, Heather Ray, Betsy Schirmer, and Suzanne Wallace.
To read more "click here"
 



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Karen Wellington Event
Kenwood Country Club, Thursday, June 11, 6pm
 
Two years ago a former BCA Board member, Karen Wellington, lost her battle with breast cancer at age 40.  As a memorial, Karen Wellington Vaseher family and friends founded the Karen Wellington Memorial Foundation.  Because of Karen's involvement with the BCA, the two organizations have joined together and are presenting a fund raiser for the second year.  The funds raised will benefit both the BCA and The Karen Wellington Foundation and proceeds will be used to help women struggling with breast cancer.

This event, "Karen's Gift Forever In Bloom"  will include a fabulous fashion show and an art auction.  Karen was an artist and painted many beautiful paintings of flowers.  Come join us for the spectacular evening on June 11, 2009 at 6 PM at Kenwood Country Club.  There will also be cocktails and a light dinner.  The cost is $50 payable to  the BCA.  Bring your friends and get a table together or let us know if you would like to be seated with the BCA group. Hope to see you in June.

"Click here for a copy of the event invitation"


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Susan Love Army of Women
Have You Joined the Movement to Go Beyond a Cure Yet?
armyofwomen

 
The Army of Women Movement is just over one-fourth of the way to their goal of recruiting one million women to partner with breast cancer researchers to find the causes of breast cancer.  The Dr. Susan Love Research Foundation and the Avon Foundation are recruiting women of all ages, whether they have had breast cancer or not, to participate in studies aimed at understanding the causes of breast cancer and how to prevent it.  Once you join, you will receive emails about new studies you may qualify for, and you can choose whether to participate. For more information or to join the Army of Women Click Here.

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 Hot Topics

Rates of prophylactic mastectomy for DCIS rising in US

Between 1998 and 2005, the rate of contralateral prophylactic mastectomy among women with ductal carcinoma in situ (DCIS) climbed by 148%, new research shows.
Coffee Cup
Exactly why more and more women are opting for this treatment, however, is unclear. "The 10-year survival rate for women with DCIS is 98% to 99%," lead author Dr. Todd Tuttle, from the University of Minnesota, Minneapolis, said in a statement. "Therefore, removal of the normal contralateral breast will not improve the excellent survival rates for this group of women. Nevertheless, many women, particularly young women, are choosing to have both breasts removed."
To read more about this study go to:
http://www.curetoday.com/index.cfm/fuseaction/news.showNewsArticle/id/13/news_id/1064


Living Beyond Breast Cancer's Guide for the Newly Diagnosed

What to expect...today, tomorrow and beyond. Steps for coping with the medical, emotional and practical concerns of breast cancer.

Living Beyond Breast Cancer's Guide for the Newly Diagnosed is designed to help you cope with the next few days, weeks and months of your life. Working closely with healthcare professionals and women who have experienced breast cancer, LBBC developed this publication to help you understand your diagnosis, the possible treatment options and the availability of support. To read this Guide go to:
http://www.lbbc.org/data/media/LBBCguidefornewlydiagnosed.pdf?tr=y&auid=4768692

Panel Sees Role for Smoking in Breast Cancer

Smoking causes lung cancer and is implicated in a dozen other cancers, but scientists have generally dismissed its importance in breast cancer, saying it plays little role, if any.

Now, a Canadian panel of experts is challenging the widely held view.
In a report, the panel asserted that evidence from new studies strongly suggests that smoking increases the risk of breast cancer, and warned that girls and young women faced special risks from exposure to smoke. For them, even exposure to secondhand smoke during this critical period of development may increase the risk of breast cancer later in life, the report said.
The report found strong evidence that secondhand smoke contributed to premenopausal breast cancer, but did not find enough support to say it increased the risk of postmenopausal breast cancer.

Read more about this report:
http://www.nytimes.com/2009/04/24/health/24smoke.html?ref=health


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Breast Cancer Alliance of Greater Cincinnati (BCA) PO Box 42505 Cincinnati, OH 45242 513-530-0545
Editor: Conrad Neumann
email: bcacincy@yahoo.com
web site: www.bcacincy.org