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REACH Parent Network Weekly Information Exchange.
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This weekly information exchange, sponsored by Reach, is by parents for parents. It's content is guided by Reach's mission to provide choices for families, be family centered, facilitate inclusion, and exist as a quality resource. The information is meant to meet the needs of a multitude of families' interests. We caution readers that Reach does not investigate all claims, and that claims made are not necessarily endorsed or recommended by Reach. Readers are encouraged to undertake further investigation on their own of items noted.
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 Reach News Information Letter! - Check out our new information Exchange format. You can now just click on your favorite links or scroll to read the entire exchange. Please feel free to share any feedback to The Parent Network
McHappy Day
- Reach would like to thank all of the customers, staff and the community who came out and supported McHappy Day on Wednesday at the Ladner and Tsawwassen McDonald's Restaurants. A total of $5,000 was raised through the sales of coffee, Big Macs and Happy Meals. Customers also donated cash on top of their purchases. Proceeds went to Reach's campaign to build a new child development centre in the heart of Ladner. Volunteers included Reach staff and a host of community friends.
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- I am working with an individual who is Autistic and refuses to let anyone cut his finger or toe nails. It seems he hates the clipping or cutting.Any ideas outside of using a pedi-paw. Please respond to Arlene
- Hi there, I am hoping to find some donated dress up clothes for a 4.5 year old girl with ASD. There is no extra money in her family budget and we would love to relieve you of any of your child's outgrown dress up clothes. Also, we are looking for some action figures as she really likes spiderman, etc.. Thank you so much, Jo DiTommaso (604) 788-2604
- Hi, does anyone know a product that is equivalent to raz-kids but more affordable. Please respond to momsonthemove@telus.net.
- Burnaby father with a 14 yrs. old son who presents many challenges, has multiple mental health and autism diagnoses, who has had many adverse reactions to prescribed medication, would like to hear from other parents. He is particularly seeking information about: good psychiatrists, excellent BIs and alternative therapies and medications. Someone who could help him advocate for his son would be appreciated. Please reply to Burnaby Dad
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Autism - Fraser Valley Autism Society president Karen Davis has helped education many local parents of autistic children on how to access services and provide for their children's future. Davis has two sons: 16 year old Clinton, who has Asperger's Syndrome and 14 year old Darold who has high-functioning autism. The Chilliwack Times has reported on her family:
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Pet Therapy helps children with Autism develop social skills. There is a unique employee named Petunia at the University of Louisville's new Autism Center at Kosair Charities. She reportedly spends a lot of time sleeping on the job. But when she is hard at work, the impact is quite amazing.
10-year-old Logan, both blind and autistic, is one of 15 children trying a new type of therapy at the center. Click here to read more
- EMT's Need Special Training for Treating Autistic Patients. "Basically, the way that you communicate or approach a person with autism has to be significantly different than from traditional styles," Migyanka said. "Persons with autism tend to be very sensitive to sensory stimuli and often have difficulty understanding directions and commands, so it is important that emergency responders communicate with them in a different way than protocols usually dictate." Click here to read more
- Autism Prevalence May be much Higher Than Current Estimates. A new method to estimate autism prevalence worked out that 2.6% of South Korea's population has an autism spectrum disorder, much higher than previous estimates, researchers from the USA and South Korea revealed in the American Journal of Psychiatry. That is 1 in every 38 children. Click here to read more
- New study claims 83 autism cases caused by vaccinations WASHINGTON, D.C. -- Researchers released the most recent news in the autism-vaccine debate at a press conference in Washington, D.C., earlier this month. A study scheduled for publication in the Pace Environmental Law Review closely examined public information on 1,300 cases in which the National Vaccine Injury Compensation Program compensated families. Significant brain injuries were found in compensated patients as a direct result of vaccinations. Eighty-three cases specifically resulted in autism and are being called, "the tip of the iceberg." Click here to read more
- Fraser Valley Autism Society will be having a presentation at our June 8 meeting from a social worker and a parent who has experience with Asperger's Syndrome and services over the age of 19. Details to be posted on our website in the next few weeks. Everyone is welcome to attend read more
- Raising a Sensory Smart Child presented by the Fraser Valley Autism Society. Saturday June 4, 2011 8:30am - 3:00pm, Abbotsford, BC
- Call for Submissions & Nominations: Children, Teens and Adults on the Autistic Spectrum. 2nd Annual 2011 International Naturally Autistic People Awards and Convention Sept 23 - 25, 2011 Vancouver, B.C. Canada. Our International Awards and Convention celebrates the accomplishments, talents and abilities of autistic people throughout the world. We welcome members of autistic communities everywhere to participate in this event. The general public is invited to experience firsthand the real life potential of autistic people in our communities. Our awards and convention also feature successful autistic adults conducting workshops in their area of expertise. For more information please visit Naturally Autistic
- Deaf man with Asperger's starts non-profit to help those with autism find jobs. It's tough for many job seekers to find or retain employment in a rocky economy and can be even harder for adults with developmental disabilities. Eric Hogan, 37, of Jackson, has a bachelor's degree in industrial technology from Mississippi State University. A visual artist and computer whiz, Hogan has not landed a job since college.Click here to read more
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ADD/ADHD
- Helping ADHD Children Master Time. Children with attention deficit disorder often struggle to understand sequence, tell time, and prioritize - with their education paying the price. Find out how to help your ADHD student comprehend clocks, calendars, and other time management skills, here.Click here to read more
- Impulse Control: Helping ADHD Students Manage Their Behaviors. ADHD children often get in trouble for acting on their impulses. Find techniques for home and school that will help children with attention deficit disorder learn to rein in bad behaviors.Click here to read more
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Down Syndrome
- The Down Syndrome Research Foundation, the Blazin Soccer dogs and the Century Plaza Hotel are hosting " A Night to Remember" on June 10, 2011 at the Century Plaza Hotel. This is for teens and adults with Developmental (dis)Abilities, ages 14 - 35. There will be only 100 ticket sold and we have already sold over half the alloted number. So if your teen or younger adult wants to attend I suggest that you buy your tickets now.......it is only $10.00 per individual, payable to the Down Syndrome Research Foundation via cheque or cash....call 604 444 3773. This will be a gala event, with music, food, door prizes etc. We hope to make this a yearly event, an "red Capet" event that our young people will always remember.
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FASD - Reductions in the Brain's Deep Gray Matter Volumes Help Explain Fetal Alcohol Spectrum Disorders. ScienceDaily (May 18, 2011) - Individuals with fetal alcohol spectrum disorders (FASD) have numerous motor, behavioral, and cognitive difficulties. Investigation of deep gray matter structures, the brain's "relay" stations, may play a key role in understanding alcohol-related brain injuries. A recent analysis of differences in deep gray matter volumes of children and adolescents with FASD compared to children without FASD has found significant volume reductions throughout the deep gray matter structures of those with FASD. Click here to read more
- A lack of "deep grey matter" in the brain could help explain why children with fetal alcohol syndrome suffer problems with behaviour, learning and memory, new research suggests. Click here to read more.
- David Boulding is a former criminal court lawyer who travels around the world to speak about Fetal Alcohol Spectrum Disorder (FASD) and Fetal Alcohol Syndrome (FAS)... how this disorder affects families and society... and how we can begin to address it. This series of short videos is from a Fetal Alcohol presentation given to the Queensland government in 2008. Click here to see his videos - nine are from his presentation and then check out the two most recent. Fetal Alcohol and the Law parts I and II.
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Technology
- The World's First eBook App Signing is over...and it was a blast! The live performance of The Going to Bed Book with Sandra Boynton on the NOOK Color, Billy J. Kramar on vocals, and Michael Ford on piano was magical and enchanting. It was really captivating to watch the app literally come to life as a performance. Click here to see video and read more.
- From Abbe Gates:
- 1. Dance party zoo-motor skills development
2. Earn it stars- helps with setting goals
3. IDress- independence and appropriate choices
4.iPacs-speech and communication
5.iPrompts- scheduling and time management
6. Model Me Kids- social stories
7. Talking Flashcards-general knowledge and memory
8. Read me stories- word development
9. How to Draw- motor skills development
10. Kids can Spell- Spelling
11. Simon Says- vocal memory
12. Word Magic- spelling and sight words
13. Learn sight words- spelling and recognizing words
14. Popmath Basic Math- math games for basic math development
15. Math Bingo- fun way to do math
16. Fish School- letters, numbers and shape development
17. Build a Zoo- spelling, memory and matching
18. Cookie Doodle- cooking skills
19. Color and Draw- Motor-Skills
20. The cat in the hat- language development
21. Super Why- sentence completion, rhyming and spelling
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Ministry Information
- Community Living British Columbia:Responsible for delivering services and supports for adults with developmental disabilities
- Community Living BC and The Family Support Institute invite you to join us in celebrating the release of our new resource book: The Power of Knowing Each Other: Stories about Informal Safeguards told by BC Families. This book contains 12 stories plus a forward and concluding story about the creative and unique connections families have built and nurtured with their family members who live with a developmental disability. These relationships offer many things, all of which contribute to people living good and safe lives in welcoming communities. This resource is meant to inspire and stimulate people's thinking on informal safeguards. The stories bring to the reader, wonderful ideas and ways to build supportive networks. These personal stories, told by families, demonstrate the incredible strength and love family members have for each other and how families have built informal safeguards in community, with their loved ones.
June 17, 2010
Drop in between 2:30 to 4:30 pm - Brief Program at 3:00 pm
New West Quay Hotel
900 Quayside Drive
New Westminster, BC V3M 6G1
Refreshments will be served - All attendees will receive a free copy of the book
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Workshops and Training
- Each year, the BC Epilepsy Society hosts Speaking of Epilepsy, a series of lectures on a wide variety of epilepsy related topics. In recent years topics have been as diverse as treatments, active living, epilepsy and learning, stress management, siblings of children with epilepsy, surgery, women's health, employment, and human rights issues. The 2010-2011 Speaking of Epilepsy lecture series includes:
- June TBA Epilepsy Research in BC
All lectures are held at the Chan Auditorium in the Education and Research Building at the Children's and Women's Health Centre of BC located on 4480 Oak Street at 28th Avenue. Lectures run from 7-9 pm. Please contact us at 604-875-6704 or at info@bcepilepsy.com to reserve your seat and confirm dates.
Admission is free to current members of our Society and only $10 for each lecture if you are not a member. You can take out a membership at the start of any lecture and receive free attendance
- DRN Conference 2011
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Join us for the Disability Resource Network of BC Forum 2011
" Mission Possible: Syncing New Technology with Current Practices"
Monday and Tuesday, May 30 and 31, 2011
Vancouver Museum 1100 Chestnut Street, Vancouver, BC
- NeuroDevNet Second Annual Brain Development Conference June 19 - 21, 2011. Vancouver, BC Hyatt Regency Vancouver
655 Burrard Street
Make sure to book these dates in your calendar now. Detailed program and registration information will be made available closer to the event.
Visit the Brain Development Conference page for updates.
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BCACL is happy to be hosting Dave Hingsburger on Thursday June 16, from 9:00 am - 4:00 pm.
Dave will be presenting "Communication: Who's Listening?":
Effective communication with people with disabilities begins with an evaluation of attitude, power and prejudice. This session will have the participants examine the role that power plays in their interactions with those with disabilities and will give each an opportunity to practice new ways of understanding, listening and relating to people with intellectual disabilities. Click here for more information
- Save the date! Speaking of Kids 2011, Friday Oct 21
Speaking of Kids annual conference will take place in Vancouver on Friday October 21, 2011.
This one-day event will feature a celebrity guest speaker plus other engaging and knowledgeable speakers.
Tickets will go on sale starting in March, 2011; and ticket prices have been kept at the minimal fee of $55! Out of town conference attendees will also be offered lowered hotel rates.
LDAV conference committee members are fast at work obtaining 'goodie-bag' items and a raffle draw prize. This year's event will be the best one yet!
Stay tuned as we'll be announcing our celebrity speaker in February.
(info and pictures from past conferences...)
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Seasonal -
Hi All, this years access day at the greater vancouver zoo is June 21.
Special rates for people with disabilities is:
$5.00 which includes admission for attendant, $2.00 for train ride including attendant, $5.00 parking all day
Call the zoo 604-856-6825 x28 to book a spot. Trains are now only available after 2:30
- BC Easter Seals Camps provides free overnight camping experiences for children and teens with physical and/or mental disabilities residing in British Columbia. All children with disabilities living in British Columbia are eligible to attend one week at Easter Seals Camps: Camp Winfield, Camp Shawnigan, or Camp Squamish.Click here for more information
- BC Fraser Valley Autism Society is offering a summer camp for children with ASD. Check it out:HERE
- The Cerebral Palsy Association of BC is excited to be able to offer a Special Needs Summer Camp Subsidy to assist children, teens and adults with Cerebral Palsy, across BC, in attending a summer camp. Money is available to help pay the camp fee and/or transportation charges. Applications must be received, at our office, no later than June 13, 2011. Camp Subsidy Committee will review applications and recipients will be notified by July 18, 2011. For more information contact Feri at (604) 408-9484 or toll free at 1-800-663-0004.
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Other - Community Living BC and The Family Support Institute invite you to join us in celebrating the release of our new resource book:
The Power of Knowing Each Other: Stories about Informal Safeguards told by BC Families
. This book contains 12 stories plus a forward and concluding story about the creative and unique connections families have built and nurtured with their family members who live with a developmental disability. These relationships offer many things, all of which contribute to people living good and safe lives in welcoming communities. This resource is meant to inspire and stimulate people's thinking on informal safeguards. The stories bring to the reader, wonderful ideas and ways to build supportive networks. These personal stories, told by families, demonstrate the incredible strength and love family members have for each other and how families have built informal safeguards in community, with their loved ones.
June 17, 2010
Drop in between 2:30 to 4:30 pm - Brief Program at 3:00 pm
New West Quay Hotel
900 Quayside Drive
New Westminster, BC V3M 6G1
Refreshments will be served - All attendees will receive a free copy of the book
- Update - Sibling Jam will be held on one day only, Saturday, June 11 from 10:00 to 4:00 at the same location: #260-3665 Kingsway, Vancouver. For more information: sylvie.rousseau@gmail.com or kbromley@plan.ca
- TED TALKS! Terry Moore found out he'd been tying his shoes the wrong way his whole life. In the spirit of TED, he takes the stage to share a better way. (Historical note: This was the very first 3-minute audience talk given from the TED stage, in 2005.) Click here to see the video
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Submissions or Questions?
To submit for our newsletter or have a question for Pam to research please contact her at
Parent Network
or 604-946-6622 ext 359.
You can sign up at the Reach Child and Youth Development Society website to receive this newsletter directly.
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Reach | danl@reachdevelopment.org | delta, BC |
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