|Volume III, Number 12|
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American Foundation for the Blind's Center on Vision Loss and Vision Aware Website
The American Foundation for the Blind (AFB), headquartered in New York, is a non-profit organization that expands possibilities for people with vision loss. AFB's priorities include broadening access to technology; elevating the quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing them and their families with relevant and timely resources. The organization has been at the forefront of advocating for the rights of people who are blind or visually impaired for over 90 years.
AFB has several offices throughout the country devoted to carrying out specific parts of its mission. The Center on Vision Loss in Dallas, TX and Vision Aware, AFB's new website, expand the possibilities for individuals with vision loss to live as independently as possible. During a recent interview, Judy Scott, Director of AFB's Center on Vision Loss and Priscilla Rogers, VisionAware Director, responded to the following questions about AFB and two of its programs . . .
Upcoming Events - 2012
Nominations for the 2012 Rosalynn Carter Leadership in Caregiving Award are open until August 31, 2012. This award recognizes leadership in implementing innovative partnerships between community agencies and caregiving researchers that bridge the gap between science and practice. The award winning team will be announced at the RCI's 25th Anniversary Gala Awards Banquet on October 25, 2012 (see below). In addition to a statuette executed by sculptor Frank Eliscu, designer of the Heisman Trophy, former First Lady Rosalynn Carter will present the team with a cash award of $20,000. This special cash award is to support the team's efforts in implementing effective caregiver interventions at the community level. Visit the Rosalynn Carter website for details.
September 14 (Extended Application Deadline)
With support from The Rosalinde and Arthur Gilbert Foundation, Family Caregiver Alliance (FCA) in San Francisco, CA oversees the Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards program which is now in its fifth year. Three awards of $20,000 each will be awarded to nonprofit organizations, government agencies or universities responding to a community need with a program or project which focuses primarily on family/informal caregivers of adults with Alzheimer's disease and/or related dementias. Only agencies operating within the continental United States are eligible to apply. One award will be granted in each of these categories: Creative Expression, Diverse/Multicultural Communities, and Policy and Advocacy. The deadline to apply has been extended to September 14, 2012. For more information, visit the following links:
Gerontological Advanced Practice Nurses Association's 31st Annual Conference, September 19-22, Las Vegas, NV. For details, visit the GAPNA website.
TASH is sponsoring the Fall 2012 Webinar Series: The Art Of Fostering Relationships And Networks Of Support For People With Disabilities that will focus on the art of fostering relationships and networks of support for people with disabilities. The webinar series is intended for community support professionals and agencies interested in organizational change or finding innovative service approaches. Topics include "Choreographing Your Way through the Community," "Get Out! What It's Like to Leave Center-Based Practices, "So You Think You Can Dance? Taking Your Show on the Road: A Summary and Call to Action!" The series costs $35 for TASH members and $55 for non-TASH members, and the webinars are recorded and can be replayed.
American Society of Law, Medicine & Ethics Public Health Law Conference: Practical Approcaches to Critical Changes, October 10-12, Atlanta, GA. For details, visit the ASLME website.
The 8th International Respite Conference will be held this year at the Le Meridien King Edward Hotel in Toronto, Ontario, Canada. Edwin Walker, Principal Deputy Assistant Secretary for Aging in the Administration for Community Living at the U.S. Department of Health and Human Services will be speaking. In addition to emerging information on innovative respite approaches worldwide, the conference will offer numerous Lifespan Respite workshops through a Lifespan Respite Track. US respite programs and research will also be highlighted. ARCH, a member of the ISBA, is sponsoring the conference and serves on the conference planning committee. Register here
The American Society for Bioethics 14th Annual Meeting will be held October 18-21, 2012 in Washington, DC. Theme: Representing Bioethics. More information
The Rosalynn Carter Institute for Caregiving will celebrate 25 years of supporting those who care for others this October at Georgia Southwestern State University in Americus, GA. The RCI's 25th Anniversary National Summit & Training Institute will provide practical tools to help community leaders, agencies and citizens work collaboratively to build quality long-term, home, and community- based supports for family caregivers across the lifespan. A special rate of $75 is good until August 15, and includes a special pre-summit reception, summit registration, and 1 ticket to the 25th Anniversary Awards Banquet. More information/Registration
The APHA's 140th Annual Meeting and Exposition , October 27-31, 2012, San Francisco, CA. Theme: Prevention and Wellness Across the Life Span. More information
The Aging and Society: An "Interdisciplinary Conference will be held November 5-6, 2012 in Vancouver, Canada. More information
The Gerontological Society of America's 65th Annual Scientific Meeting, Charting Frontiers in Aging, will be held November 14-18, 2012 in San Diego, CA. More information
Research & Practice
Survey Finds Older Adults are Uncertain about Long-Term Outlook for their Health and Finances
A new survey from the National Council on Aging (NCOA), United Healthcare, and USA TODAY finds that most older Americans feel their best years are still to come, but not all are prepared for the health and financial challenges of aging. Penn Schoen Berland with the support of United Healthcare, NCOA, and USA TODAY surveyed 2,250 Americans ages 60 and older for the inaugural United States of Aging Survey to examine seniors' outlook and preparedness for aging. The survey focused both on individual readiness for aging as well as seniors' perceptions of their community's ability to meet their needs as they age. The survey was conducted as part of an ongoing partnership between United Healthcare and NCOA to help older adults as well as their families and caregivers to identify and overcome the challenges they might face as they age. . . . [Read more]
GAO Report: Allowing Caregivers To ContributeTo IRA May Alleviate Some Financial Pressures For Women
The New York Times Bucks blog recently highlighted a new report from the Government Accounting Office (GAO) which focused on the larger financial challenges that women face in retirement. The report included analysis of two national surveys, a literature review, and interviews with retirement experts. Policy options to address financial security for women includes allowing caregivers to contribute to their IRAs based on their adjusted gross income in the year before they became a caregiver. Caregiver credits in Social Security are also cited as a possible option, though the authors note that these credits may not benefit lower-income women who are unable to stop working in order to provide care. Read full blog post
Resources for Family Caregivers:
AARP and Ad Council Help Increase Awareness About Caregivers
AARP and the Ad Council have teamed up to raise awareness about the 42 million Americans who care for a loved one This campaign is designed to help family caregivers find the quality information, resources and support that they desperately need. A new poll released in conjunction with the AARP and Ad Council public service announcement (PSA) campaign found that many caregivers say caring for their loved ones is difficult, two-thirds of them care for those with chronic illnesses, and one-third are caring for those with dementia. . . [Read more]
United Hospital Fund's "Next Step in Care" Website
The United Hospital Fund's Next Step in Care website has guides for family caregivers on many aspects of transitions, including medication management, discharge checklists, hospice and palliative care. The guides are free and available in English, Spanish, Chinese and Russian.
KCET's "Your Turn To Care" Website
KCET in California, has launched Your Turn To Care , a website designed to serve as a resource for families, caregivers and seniors across the country who are faced with the challenge of taking care of ailing or aging loved ones or dealing with aging-related issues. Developed by KCET as a companion to its original television series with the same name (hosted by Holly Robinson Peete), the enhanced Your Turn to Care website encourages visitors to 'Watch, Explore and Connect' through more than 60 original videos featuring expert advice on topics ranging from caregiving and finance to health and wellness, dementia and Alzheimer's disease. . . . [Read more]
New Book on Caregiving Experiences
Joan Lunden, a sandwich generation and long-distance caregiver for her mother, and host of "Taking Care with Joan Lunden," has co-authored a book on caregiving, Chicken Soup for the Soul - Family Caregivers: 101 Stories of Love, Sacrifice and Bonding.This collection offers support and encouragement in its 101 stories for family caregivers of all ages, and also includes stories by those on the receiving end of the care. Her website provides information on caregiver burnout, questions to ask aging parents, planning a family caregiving meeting, and home safety for seniors. Visit JoanLunden.com for more information.
Guiding Lights Caregiver Support Center was designed solely with caregivers in mind. Located in Raleigh, NC, it currently serves Wake, Orange, and Durham Counties. The Center provides a lending library with Caring Matters videos, Caring Connections radio show, training on dementia issues, CPR, first aid and intensive skills, information and referral, and support groups. Visit the link above or call (919) 371-2062.
Executive Director, Kathleen Kelly, FCA staff writers and caregivers cover a range of issues and current trends in the FCA Blog. Recent blogs include:
You are invited to join the discussion and post a comment of your own.
Innovations Clearinghouse on Family Caregiving
For additional research-based information and informed practices, visit FCA's Innovations Clearinghouse/Online Technical Assistance Center. Search the Clearinghouse to identify best practices, specific tools and policy & advocacy efforts; connect with fellow professionals from the aging networks; and request specialized technical assistance.
You can further shape the content of the Newsletter and the activities of the Technical Assistance Centers by telling us about your areas of interest. Please respond to
|Lifespan Respite News|
Getting to Know the Lifespan Respite Grantees and Stakeholders
The 30 Lifespan Respite Program grantees are moving forward with their proposed objectives. Twelve programs were funded in 2009, 12 in 2010 and 6 in 2011. The 2009 grantees are exploring means to continue their efforts beyond the 3 year funding cycle. Among the 30 funded states, seven received additional funding in 2011 to expand their programs to include direct services. This month we will focus on the State of Utah, one of the 2010 grantees.
State of Utah
Lead Agencies and Primary Collaborators: The Utah Division of Aging and Adult Services, Utah Aging and Disability Resource Center (ADRC), Veteran's Administration, Developmental Disabilities Council, National Alliance on Mental Illness Utah, Alzheimer's Association and other agencies of the Utah Coalition for Caregiver Support (UCCS) are initiating efforts to create a coordinated statewide lifespan respite care program. The goal of the project is to improve access to information and lifespan respite. The project objectives are to institute a comprehensive lifespan respite care program with a single port of entry for caregivers seeking information, support, and respite, with a telephone line and supported by web-based access to information. A second objective . . . [Read more]
Lifespan Respite Grantees Invited to Participate in the Administration for Community Living's Learning Symposium
Lifespan Respite grantees and their partners have been invited to attend a Learning Symposium being hosted by the Administration for Community Living/Administration on Aging on September 10, 2012, in Crystal City, VA, one day before the Home and Community-Based Services Conference sponsored by the National Association of States United for Aging and Disabilities (NASUAD). Also attending the Learning Symposium will be state and program staff involved in ADRC, Options Counseling Standards, Evidence-Based Care Transitions, Systems Integration, and Alzheimer's Disease Supportive Services Programs. An updated Draft Learning Symposium Agenda is now available. . . . [Read more]
Call for Better Respite Data Use and Funding
In July, the AARP Public Policy Institute with support from The SCAN Foundation and The Commonwealth Fund, released The State of Measurement of Respite Care by Ari Houser and Kathleen Ujvari. This report was produced by the AARP as a follow-on piece to Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers, and describes the main sources of publicly funded respite care and presents data for the year 2007. The data were not complete, accurate, or comparable enough to include in the Scorecard, and AARP cautions that the data should not be used for comparative purposes. [Read more]
New ARCH Resources
Fact Sheet: Respite for Individuals with Neurological Conditions
In August, ARCH released its 59th Fact Sheet. The topic is Respite for Individuals with Neurological Conditions. Respite for this group of individuals is difficult for family caregivers to find and to access due to limited respite options and funding sources. Millions of adults in the United States live with various neurological conditions, including epilepsy, Alzheimer's disease and other dementias, cerebrovascular disease including stroke and headache, Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), Parkinson's Disease, infections, brain tumors, and acquired (ABI) or traumatic brain injury (TBI). Many, depending on the severity or progression of their condition, rely on family members, friends, or other volunteers to help them throughout the day. [Read more]
Archived ARCH Webinar: Funding Sustainability for Lifespan Respite Grantees, Part II: Examples from the States
As federal, state, and even private funding sources remain extremely limited, state Lifespan Respite grantees and their partners will have to work creatively to maximize and more efficiently identify and use available resources to ensure the viability of their Lifespan Respite systems once their Lifespan Respite grants are expended. Meaningful and well-established partnerships are central to this effort.
Representatives affiliated with State Lifespan Respite programs provided examples of funding sustainability plans, public and private funding sources leveraged to help families pay for respite, and ways to support the ongoing infrastructure of Lifespan Respite systems. [Read more]
Give ARCH your Feedback
We Need Your Input! The AoA funded Lifespan Respite Training and Technical Assistance Project of the ARCH National Respite Network and Resource Center would greatly appreciate your input in planning its training and TA activities. Please take a moment to respond to our online questionnaire.
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This project is supported, in part, under a grant from the U.S. Department of Health and Human Services, Administration on Aging. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. These contents, however, do not necessarily represent the policy of the U.S. Department of Health and Human Services and endorsement by the Federal Government should not be assumed. ©2012 Family Caregiver Alliance. All rights reserved.
The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, visit the Family Caregiver Alliance website at www.caregiver.org.
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The Newsletter of the Technical Assistance Centers is a publication of the National Center on Caregiving at Family Caregiver Alliance, 785 Market Street, Suite 750, San Francisco, CA 94103.