The Technical Assistance Centers are a partnership between
Family Caregiver Alliance and the ARCH National Respite Network and Resource Center.
The Centers provide technical assistance to the Aging and Lifespan Respite Networks on
caregiver and lifespan respite program development.

Volume III, Number 10
June 2012


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In this issue


American Speech-Language-Hearing Association  


The American Speech-Language-Hearing Association (ASHA) in

ASLH Association logo
Rockville, MD is the professional, scientific, and credentialing association for more than 150,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language, and hearing scientists in the United States and internationally. Support personnel in audiology and speech-language pathology are also affiliated with ASHA. The organization's vision is to make effective communication a human right, accessible and achievable for all. ASH's mission is to empower and support speech-language pathologists, audiologists, and speech, language, and hearing scientists by: (1) advocating on behalf of persons with communication and related disorders; (2) advancing communication science; and (3) promoting effective human communication. During a recent interview, Greg Weimann, Public Relations Manager, and other ASHA staff answered the following questions . . .[Read more] 



Upcoming Events - 2012 


July 27-29


The American Brain Tumor Association's Patient and Family Conference will take place July 27-79 in Chicago, IL.  In addition to discussing the latest brain tumor research and treatment options, sessions will also include tumor-specific workshops, caregiving strategies, and post-treatment wellness. Information & Registration   


August 1 (Application Deadline)


The U.S. Administration for Community Living has announced a grant opportunity that will focus on the emergence of managed care in the long-term services and supports systems, and how the aging and disability networks can play strong leadership roles. Applications for the $250,000 Building the Business Capacity of Aging and Disability Community-Based Networks for Managed Long-Term Services and Supports grant must be submitted by August 1, 2012.  Information & Registration  


August 17 (Application Deadline)

 FCC NCC Weblogo - Teal    

With support from The Rosalinde and Arthur Gilbert Foundation, Family Caregiver Alliance (FCA) in San Francisco, CA oversees the Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards program which is now in its fifth year. Three awards of $20,000 each will be awarded to nonprofit organizations, government agencies or universities responding to a community need with a program or project which focuses primarily on family/informal caregivers of adults with Alzheimer's disease and/or related dementias. Only agencies operating within the continental United States are eligible to apply. One award will be granted in each of these categories: Creative Expression, Diverse/Multicultural Communities, and Policy and Advocacy. The deadline to apply is August 17, 2012.   


October 18-21


The American Society for Bioethics 14th Annual Meeting will be held October 18-21, 2012 in Washington, DC. Theme: Representing Bioethics. More Information



October 27-31


The American Public Health Association's 140th Annual Meeting and Exposition, October 27-31, 2012, San Francisco, CA. Theme: Prevention and Wellness Across the Life Span. More information


November 5-6


The Aging and Society Conference will be held November 5-6, 2012 in Vancouver, Canada. More information


November 14-18


The Gerontological Society of America's 65th Annual Scientific Meeting, Charting Frontiers in Aging, will be held November 14-18, 2012 in San Diego, CA. More information

Research & Practice

Early Results Give Hope for Drug to Stabilize Alzheimer's Disease


For the first time, researchers are reporting that a treatment might help stabilize Alzheimer's disease for as much as three years, although the evidence is weak and in only four patients. The drug, Gammagard, is made by Baxter International, Inc. Doctors say that four patients who have been receiving the highest dose for three years showed no decline on memory and cognition tests. . . [Read more]  


Gene Mutation Offers Clue for Drugs to Ward Off Alzheimer's Disease


According to a study from researchers in Iceland, some people may carry a genetic mutation that greatly reduces their risk of getting the disease. The mutation also seems to protect people who do not have Alzheimer's disease from the cognitive decline that typically occurs with age. The mutation is very rare, but its discovery is generating fresh optimism about experimental drugs that act on the same system in the brain. More information >  


New Data on Elder Care


A recent New Old Age blog reported on new data from the 2011 American Time Use Survey, which suggests that over a three month-period, 39.8 million people (aged 15 and older) provided unpaid care.  The survey began in 2003, includes 12,5000 respondents who are asked how they spent their previous 24 hours . . . [Read more] 

More Caregivers Use Online Resources for Home Health Care


Thirty percent of U.S. adults help a loved one with personal needs or household chores, managing finances, arranging for outside services, or visiting regularly to see how they are doing. Most are caring for an adult, such as a parent or spouse, but a small group cares for a child living with a disability or long-term health issue. . . . [Read more]


Report on Paying for Assisted Living


Stratford Retirement in Seattle, WA has published a report, "Paying for Assisted Living ," to help caregivers and others make informed decisions about the costs of assisted living facilities in the United States.The report covers the multitude of payment options available to families. It includes advice on applying to government-sponsored programs and explains what health insurance options may reduce the cost of moving into a new home. 


Practice Standards in Development for Working with Veterans and Their Families


The National Association of Social Workers (NASW) is committed to supporting the health and well-being of our nation's service members, veterans, their caregivers and other family members. To better meet their needs, NASW is developing Standards for Practice and a Professional Credential for Social Work with Veterans and Military Families. More information 


Book on Caregiver Family Therapy Available Soon


A new book to help therapists and other service providers meet the diverse needs of caregiving families will become available in October 2012. Caregiver Family Therapy: Empowering Families to Meet the Challenges of Aging by Sara Honn Qualls, PhD and Ashley A. Williams, PhD, presents Caregiver Family Therapy (CFT), a systems approach to treating families that care for an aging, and will include clinical examples. 


Resources for Family Caregivers:
(Caregiver Relief  Fund, Eldercare Mediation & VA Caregiver Support Program)


The Caregiver Relief Fund. The Fund seeks to address two major problems for caregivers, limited time and chronic exhaustion, by providing vouchers for at-home respite care. The Caregiver Relief Fund selects individuals who have been in a caregiving role for a chronically ill individual, elderly or disabled person for 12 months or longer. Applicants must not have an annual income that exceeds $80,000.  . . . [Read more]  


NFCA Announces New CEO


The National Family Caregivers Association (NFCA) recently named John Schall as the organization's new Chief Executive Officer. Schall is a public policy and communications professional with noted expertise in a wide range of policy fields, including healthcare, labor, education, economic development, taxation, and budget policy. In 2011, Suzanne Mintz, co-founder and CEO of NFCA since its inception, decided to transition to a new role at NFCA in order to contribute more to the field of family caregiving through writing, speaking and advocacy. Her new title will be Co-Founder and CEO Emeritus. More information 




FCA Blogs!


Executive Director, Kathleen Kelly, and dedicated FCA staff writers continue to cover a range of issues and current trends in the FCA Blog. Recent blogs include:









You are invited to join the discussion and post a comment of your own.


Innovations Clearinghouse on Family Caregiving


For additional research-based information and informed practices, visit FCA's  Innovations Clearinghouse/Online Technical Assistance Center. Search the Clearinghouse to identify best practices, specific tools and policy & advocacy efforts; connect with fellow professionals from the aging networks; and request specialized technical assistance.



Give Us Your Feedback


You can further shape the content of the Newsletter and the activities of the Technical Assistance Centers by telling us about your areas of interest. Please respond to

Lifespan Respite News

Lifespan Respite Grantees Hold Successful  Summits


Two current Lifespan Respite Grantees held ARCH sponsored Lifespan Respite Summits in the past month to strengthen their partnerships, engage family caregivers, and seek input on enhancement of and sustainability of their programs. At both events, ARCH provided the training and background on the Lifespan Respite program followed by working meetings which actively engage participants in discussion to identify unmet needs and new resources, to help the program identify future goals, and to develop next steps in program implementation. Greg Link, Lifespan Respite Program Officer with the Administration for Community Living, Administration on Aging, provided remarks at both sessions.



On June 29, 2012, the Nevada Lifespan Respite Program and the Nevada Lifespan Respite Coalition hosted a statewide Lifespan Respite Summit to expand the reach of the program to new partners and family caregivers, to strengthen their respite coalition, and to gather input into the future direction of the program. To enhance participation statewide, videoconferencing sites were used in Elko, Reno and Las Vegas. Over 120 individuals from all over the state participated. . . .[Read more] 



Lifespan Respite Grantees and Partners Invited to Administration for Community Living Learning Symposium


Lifespan Respite grantees and partners have been invited to attend the one-day Learning Symposium convened by the Administration for Community Living (ACL) on September 10, 2012. The National Association of States United for Aging and Disabilities is hosting ACL grantees the day before their National Home and Community-Based Services Conference begins. The Learning Symposium is designed for . . . [Read more]  


Lifespan Respite State Tools: Spotlight on Data Collection Tools


As states move forward with their implementation activities and with funding sustainability in mind, data collection is paramount. The Administration for Community Living (ACL), Administration on Aging (AoA) and ARCH have convened a data work-group to work collaboratively with experts in the public and private arenas to develop guidance on data collection and performance measurement. . . . [Read more]  


Upcoming Events


ARCH Webinar: Funding Sustainability for Lifespan Respite Programs, Part II: Examples from the States, on August 14, 2012, at 3-4:30 pm EDT.


As federal, state, and even private funding sources remain extremely limited, state Lifespan Respite grantees and their partners will have to work creatively to maximize and more efficiently identify and use available resources to ensure the viability of their Lifespan Respite systems once their Lifespan Respite grants are expended. Meaningful and well-established partnerships are central to this effort. ARCH will hold the second webinar on Funding Sustainability on August 14, 2012, at 3-4:30 pm EDT. . . . [Read more]


Give ARCH your Feedback


We Need Your Input! The AoA funded Lifespan Respite Training and Technical Assistance Project of the ARCH National Respite Network and Resource Center would greatly appreciate your input in planning its training and TA activities. Please take a moment to respond to our  online questionnaire.


Family Caregiver Alliance  |  National Center on Caregiving
785 Market Street, Suite 750
San Francisco, CA 94103
(800) 445-8106

ARCH National Respite Network and Resource Center
4016 Oxford Street
Annandale, VA 22003
(703) 256-2084

This project is supported, in part, under a grant from the U.S. Department of Health and Human Services, Administration on Aging. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions.  These contents, however, do not necessarily represent the policy of the U.S. Department of Health and Human Services and endorsement by the Federal Government should not be assumed.

2012 Family Caregiver Alliance. All rights reserved.

The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, visit the Family Caregiver Alliance website at

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The Newsletter of the Technical Assistance Centers is a publication of the National Center on Caregiving at Family Caregiver Alliance, 785 Market Street, Suite 750, San Francisco, CA 94103.