The Technical Assistance Centers are a partnership between
Family Caregiver Alliance and the ARCH National Respite Network and Resource Center.
The Centers provide technical assistance to the Aging and Lifespan Respite Networks on
caregiver and lifespan respite program development.

Volume III, Number 9
May 2012

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In this issue


American Occupational Therapy Association, Inc.


Founded in 1917, the American Occupational Therapy Association (AOTA) represents the interests and concerns of more than 140,000 occupational therapists, assistants and students nationwide. Based in Bethesda, MD, the Association educates the public and advances the profession of occupational therapy by providing resources, setting standards including accreditations and serving as an advocate to improve health care. Occupational therapy enables people to live life to its fullest by helping them promote health, prevent-or live better with-injuries, illnesses, or disabilities. Occupational therapists and occupational therapy assistants focus on "doing" whatever occupations or activities are meaningful to the individual. These activities may be adaptations for how to do a task, changes to the surroundings, or helping individuals to alter their own behaviors. Strategies and modifications are customized for each individual to resolve problems, improve function, and support everyday living activities. Katie Riley, AOTA's Media Relations Manager, responded to these following questions . . . [Read More] 



Upcoming Events - 2012 



The theme for Older Americans Month 2012, "Never Too Old to Play," encourages older Americans to stay engaged, active and involved in their own lives and in their communities. In celebration of May as Older Americans Month, the U.S. Administration on Aging (AoA) has a website which offers useful resources and tools to help individuals plan and promote events and activities. Visit the AOA website for more information.       


May 30


The ARCH Webinar: Introduction to a Framework for Sustainability Planning for Lifespan Respite Grantees and their Partners will be held on this day from 3-4:30 pm (EST). The presenter will be Laura Martinez. The goal of the webinar is to introduce a comprehensive approach to sustainability planning for Lifespan Respite grantees and their partners. The interactive webinar will present . . . [Read More]


June 1  


[Early Registration Deadline] - Registration Now Open for the 8th International Respite Conference will be held at Le Meridien King Edward Hotel in Toronto, Ontario, Canada, October 10-12, 2012. Administrator of the Administration for Community Living and Assistant Secretary for Aging Kathy Greenlee at the U.S. Department of Health and Human Services has tentatively accepted an invitation to speak at the conference. [Read more] 



The American Society on Aging has partnered with Senior Helpers and the Alzheimer's Foundation of America in presenting a webinar series that provides resources, techniques, and ideas that helping professionals and caregivers can use with people who are living with Alzheimer's disease and other dementias. The Dementia Care: Eating Strategies & Nutritional Awareness webinar will be held on June 1 at 11:00 am PST (12pm Mtn/1 pm Central/2pm EST). Register here


June 4-6


The 5th International Conference on Patient- and Family-centered Care: Partnerships for Quality and Safety will be held at the Omni Shoreham Hotel in Washington, DC. The conference will offer patient- and family-centered strategies and best practices that address the increasing challenges in health care such as rising costs, delivering safe and quality care for every patient (reducing readmissions, decreasing infections and providing safe care transitions). Register here


June 7 and 14


The 2012 Webinar Series Part II: Tackling the Tough Topics in Ethnogeriatrics is sponsored by Stanford Geriatric Education Center in conjunction with American Geriatrics Society, California Area Health Education Centers, & Natividad Medical Center. Sessions include . . . [Read More] 


June 13 and July 12


The National Institute on Aging and the U.S. Administration on Aging, in partnership with several grantees, are hosting a webinar series with the goal of improving coordination of resources available for people with Alzheimer's disease as well as their family caregivers. [Session information . . .] 


June 21-24


The Hearing Loss Association Convention will be held at the Rhode Island Convention Center, One Sabin Street, Providence, RI, June 21-24. David Myers, Ph.D., a social psychologist at Hope College and author of . . . [Read more]


July 1   

[Application Deadline] - The National Center for Creative Aging is now accepting applications for the Gene D. Cohen Research Award, "designed to recognize and honor the seminal work of Dr. Gene Cohen, whose research has shifted the conceptual focus of the field of creativity and aging from a problem paradigm to one of promise and potential."  The award is for individuals who have produced research demonstrating the benefits of creativity in the arts.  The deadline to apply is July 1, 2012. Visit the Creative Aging website for more info. 


July 10


Join the National Alliance for Caregiving on July 10 in Denver, CO for the Sixth National Conference for Caregiving Coalitions. This one-day event will be held in conjunction with the Annual Conference of n4a (the National Association of Area Agencies on Aging). Register here.  


July 14-19


The Alzheimer's Association International Conference (AAIC) will be held in Vancouver, British Columbia July 14-19, 2012. The AAIC is a forum for reporting and discussion of research and information on the cause, diagnosis, treatment and prevention of Alzheimer's disease and related disorders. To register, go to:


August 17 


[Application Deadline] - With continuing support from The Rosalinde and Arthur Gilbert Foundation, Family Caregiver Alliance (FCA) is pleased to oversee the annual Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards Program which is now in its fifth year. The program stimulates innovation in the field by . . . [Read More]  


Research & Practice
NAC and MetLife Foundation Launch New Grants Program:

Innovations in Caregiving


MetLife Foundation and National Alliance for Caregiving (NAC) recently announced the recipients of the new Innovations in Caregiving Grants Program. Five organizations received grants to replicate family caregiver education and support programs in their local communities. . . .

[Read more] 



Go4Life: Public-Private Effort Led by NIA/NIH Reaches Out to Baby Boomers and Others


Being physically active is vital to maintaining health and independence as individuals age, and a federal campaign for people 50 and older is helping them to become more active and keep going. Introduced by the National Institute on Aging (NIA), the Go4Life campaign encourages sedentary older adults to reap health benefits by making physical activity part of their daily lives. NIA is the component of the National Insitutes on Health (NIH) devoted to research on aging. The Go4Life team, a public-private partnership, is bringing the campaign into communities across the United States. . . . [Read more] 


Nostalgia and Caregiving


In a recent blog posting, Carol Levine, Director of the Families and Health Care Project at the United Hospital Fund in New York City and of the Next Step in Care website, discusses nostalgia and caregiving.  A recent essay about family caregiving prior to Social Security implies that middle-class families no longer have to engage in the "dirty work" of hands on care for parents.  Levine suggests that, in reality, family caregivers are still providing a great deal of hands-on care. . . . [Read More]  


Two Studies and NPR Shed Light on Family Financial Obligations and Decisions


The results of a survey recently released by the Metlife Mature Market Institute show that Americans' sense of financial obligation to family members is strong and born of love and generosity, but does have limits. "Multi-Generational Views on Family Finanical Obligations: A MetLife Survey of Baby Boomers and Members of Generations X and Y" can be viewed at: 


Ameriprise Financial's recent study, Money Across Generations, polled three generations: affluent baby boomers (with $100K or more in investable assets) along with both their parents and children (age 18+). New findings from the study indicate that 'boomers' are holding off on major purchases, and, instead are channeling those savings into retirement accounts to support their Gen X and Gen Y kids and, sometimes, their aging parents. . . . [Read article]

National Public Radio is focusing on three multi-generational households and the decisions they face regarding elder care, paying for college, and retirement. Recent stories include "Discovering The True Cost Of At-Home Caregiving," "Preparing For A Future That Includes Aging Parents," and "Can You Pay For Yourself, Your Kids, Your Parents?"  For more information, visit: NPR: "Family Matters: The Money Squeeze"  



Family Caregiver Interviews and Caregiver Tool Testing


Often there is a personal financial burden to care for a loved one. Family Caregiver Alliance (FCA) is developing an online tool to make it easier for primary family caregivers to receive financial support from siblings, relatives and friends.  Help shape this caregiver tool!  FCA is seeking caregivers who:

  • Currently care for a family member, locally or long-distance
  • Coordinate tasks, care or finances with 2+ family members
  • Spend at least $100/month of personal money on care for loved one
  • Use the internet regularly at home

Phone Interview: One hour. To describe your needs and challenges with care and finances as a family caregiver. $20 gift card mailed to you for your time. Prototype Testing: Two weeks. Provide honest feedback by phone during three calls; total 75-90 minutes. $50 gift card mailed to you for your time. Contact: Please contact Christine at (510) 909-5740 or  For more information, visit FCA's Research Registry.


FCA Blogs!


Executive Director, Kathleen Kelly, and dedicated FCA staff writers continue to cover a range of issues and current trends in the FCA Blog. Current blogs include: The Future of Caregiving,  Mastering the Juggling Act (Work and Caregiving) and Caregiving with Siblings. You are invited to join the discussion and post a comment of your own.


Innovations Clearinghouse on Family Caregiving


For additional research-based information and informed practices, visit FCA's  Innovations Clearinghouse/Online Technical Assistance Center. Search the Clearinghouse to identify best practices, specific tools and policy & advocacy efforts; connect with fellow professionals from the aging networks; and request specialized technical assistance.


Give Us Your Feedback


You can further shape the content of the Newsletter and the activities of the Technical Assistance Centers by telling us about your areas of interest. Please respond to

Lifespan Respite News

State Respite Events: Past, Present and Future


Many State Respite Coalitions or networks have incorporated a yearly Lifespan Respite Summit or other statewide respite event into their ongoing activities. Such events not only enhance collaboration among state and local agencies and community-based programs, but also encourage active family caregiver involvement and education. Two recent events were held in Delaware and Illinois . . . [click to read more on each state.] 


Also, two Lifespan Respite Grantees are Hosting Lifespan Respite Summits this summer in collaboration with ARCH:


Nevada: On June 29, 2012, [Read more on this event].


District of Columbia: The District Lifespan Respite grantee agency, in collaboration with the D.C. Respite Coalition, will host an ARCH sponsored Lifespan Respite Summit on July 11, 2012, location to be announced.


If you have a state respite event you would like to share with the Lifespan Respite Network, please send it to ARCH.



Respite for Individuals with Autism


In early May, ARCH released a new fact sheet, Respite for Individuals with Autism. It came on the heels of new data released by the Centers for Disease Control and Prevention estimating the prevalence of autism among children at 1 in 88, a 23 percent rise over the 2009 estimate of 1 in 110. Autism occurs along a spectrum with increasing severity in symptoms, and the effects on the family can be substantial. New issues arise for the family as the child transitions to adulthood. Many adults with autism can live independently. However, living independently can pose a challenge with limited housing options and too few post-secondary educational activities or employment options. . . . [Read More]



Building a National Agenda for Supporting Families with an Individual with Developmental or Intellectual Disabilities


More than 75% of the 4.7 million citizens with intellectual and developmental disabilities (I/DD) in the United States live in their communities without formal disability services and rely on their families for varying levels of support. Of the 25% receiving services, over 56% live with their families; in some states, the figure is as high as 80%. Long waiting lists for services and the increased lifespan of individuals with I/DD have contributed to a growing number of individuals with I/DD in households where the primary caregivers are themselves aging. A 2011 survey of nearly 5,000 caregivers of individuals with intellectual and developmental disabilities conducted by The Arc found that . . . [Read more] 



State Lifespan Respite News You Can Use


State Respite Coalitions and State Lifespan Respite programs and projects are busy promoting respite, raising respite funds, expanding services to more family caregivers, and advocating for new respite policies. Here are just a few examples:


Pennsylvania: The Pennsylvania Department of Aging, the state's Lifespan Respite grantee, recently announced the recipients of a Lifespan Respite small grant opportunity. Funding went to Pennsylvania's UCP/Class, Access Services, and Allegheny Lutheran Social Ministries.  The grant program was developed and will be administered by the Lifespan Respite Advisory Council in conjunction with the Department of Aging and the Aging and Disability Resource Center Program. . . . [more on Pennsylvania]


Or jump to:





For additional Lifespan Respite tools and news, check out the other topics on Lifespan Respite Tools page . Many of the grantees and coalitions have generously shared tools and products that they have developed to date as part of their Lifespan Respite projects. ARCH has posted them on the Tools Page where you can see state examples of respite registries, caregiver surveys, service delivery tools and more. We will be periodically highlighting state Lifespan Respite tools, including training curricula, in the newsletter. If you have a tool or news to share, please send it to Jill Kagan at ARCH  


Give ARCH your Feedback


We Need Your Input! The AoA funded Lifespan Respite Training and Technical Assistance Project of the ARCH National Respite Network and Resource Center would greatly appreciate your input in planning its training and TA activities. Please take a moment to respond to our  online questionnaire.


Family Caregiver Alliance  |  National Center on Caregiving
785 Market Street, Suite 750
San Francisco, CA 94103
(800) 445-8106

ARCH National Respite Network and Resource Center
4016 Oxford Street
Annandale, VA 22003
(703) 256-2084

This project is supported, in part, under a grant from the U.S. Department of Health and Human Services, Administration on Aging. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions.  These contents, however, do not necessarily represent the policy of the U.S. Department of Health and Human Services and endorsement by the Federal Government should not be assumed.

2012 Family Caregiver Alliance. All rights reserved.

The National Center on Caregiving at Family Caregiver Alliance works to advance the development of high-quality and cost-effective policies and programs for caregivers in every state in the country. The National Center is a central source of information and technical assistance on family caregiving for policymakers, health and service providers, program developers, funders, media and families. For questions or further information about the National Center on Caregiving, visit the Family Caregiver Alliance website at

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The Newsletter of the Technical Assistance Centers is a publication of the National Center on Caregiving at Family Caregiver Alliance, 785 Market Street, Suite 750, San Francisco, CA 94103.