MAY 2012 

METS MATTERS

INFORMATION FOR WOMEN LIVING WITH METASTATIC BREAST CANCER 

In This Issue
NBCC's Advocate Summit
Support Groups & Hotline
Amazon Heart
Upcoming Programs/Conferences
Friends & Family
Take SHARE to your Doctor

Quick Links

Doc_man_woman

Bring SHARE to your Doctor 

Does your doctor know about the support groups and educational programs at SHARE? Are you able to bring SHARE materials with you to your next doctor's appointment?  Why not help spread the word?

 

Contact Christine Benjamin at 212-937-5586  

 


 VOLUNTEER INFO 

Breast Cancer Hotline
212-382-2111 
 


HABLA CON UNA SOBREVIVIENTE


Llame a la Línea de Auxiliode Cáncer de Seno de SHARE al

(866) 891-2392. Usted podrá hablar con una sobreviviente que tiene cáncer de seno metastático.

 

 

Additional Resources 

Transportation Assistance

ACS Road to Recovery

888-227-6333

 

Medication Assistance

Medication Health Wellness Foundation

800-675-8416

 

Medicare Fundamentals Video 

 

Call The Breast Cancer Hotline For Additional Resources

1-866-891-2392 

 

Join Our Mailing List 
Need Trials?

BreastCancerTrials.org is

a non-profit service that

is dedicated to providing accurate information  

about breast cancer  

clinical trials. Our patient-centered website  includes trials funded by the National Cancer Institute, public research foundations, and the pharmaceutical/

biotechnology industry.

Our goal is to help you gain insight into the clinical trials process and make it easier and faster for you to find the clinical trials that are right for you.

 

The Group Room

Vital Options International produces The Group Room, Advocacy in Action and other media projects. Vital Options is a not-for-profit cancer communications, support, and advocacy organization with a mission, to facilitate a global cancer dialogue. Click on the above link and scroll down to "advocacy in action" to see what leading metastatic advocates are doing and saying. 

NBCC's ANNUAL ADVOCATE SUMMIT  

WHAT DO YOU STAND FOR?   

Christine Benjamin, LCSW, Metastatic Program Coordinator   

Stand For

Someone once gave me a T-Shirt emblazoned with this question on the front of it:

 

WHAT DO YOU STAND FOR?

 

The question was surrounded by words like courage, justice, equality, giving and caring. Did I STAND for these things, I asked myself? And if so, how firmly did I stand, or what would I actually do for what I believe in?

 I got an answer to this question in graduate school when I stood up for something I believed in. At first, there was a large number of students behind the cause, but in the end it was just two of us. We got what we wanted...information about certain marginalized groups integrated into the curriculum, and I learned what advocacy was all about.   

 

Standing up for what you believe in may seem like a no-brainer for some. For others though, we come into advocacy because of our personal experiences.   I'm not sure how many advocates were advocating for breast cancer before their diagnosis. But often, because of the injustices faced during "the journey," or the need to help others, or for a number of varied reasons, advocates abound in the world of breast cancer.

 

These advocates descend annually upon Washington, DC, to attend the NBCC Annual Advocate Summit, to learn, educate, and lobby and most recently, to support NBCC in The Breast Cancer Deadline 2020. Advocates from around the globe come together to support the agenda set forth by NBCC to eradicate breast cancer by the year 2020. NBCC is not in this alone; it is supported by other organizations with representatives on NBCC's board who rally their organizations to help.

 

Read more HERE 

Groups

METASTATIC SUPPORT GROUPS AND HOTLINE INFO

 

ONE-TO-ONE SUPPORT: speak with another woman living with metastatic disease.  Call the SHARE Hotline @ 212-382-2111.

 

TELEPHONE SUPPORT GROUP:  Every Monday, 4-5 PM Click HERE 

 

IN PERSON DAYTIME SUPPORT GROUP:  First 3 Thursdays of the month.  12-1:30 PM  Click HERE for more information. 

 

IN PERSON EVENING GROUP: LIVING WITH UNCERTAINTY  

Monthly on Wednesdays, 6-7:30 PM.   June 20, July 18, Aug 15 Click HERE

 

You must register.  Call the Hotline to register in advance for support groups.   

 

In Person groups meet at the SHARE office.  1501 Broadway. Suite 704A, New York, NY 10036.  Broadway between 43rd & 44th Street.  

 

Click HERE  to see additional SHARE programs.   

TNBCAMAZON HEART: ADVENTURES FOR WOMEN WITH WOMEN'S CANCERS
SHARE recipient of funds raised
 
Amazon Heart was started in 2004 by two young breast cancer survivors. Amazon Heart adventures were created to provide a unique and inspiring peer support opportunity for under-served groups of breast cancer survivors, particularly the young. These events themselves create a broader social impact for women with breast cancer by funding projects that fill other needs, creating advocacy and awareness around breast cancer issues, and also provide volunteers and funding for local community social action projects.

Today, Amazon Heart provides adventures for women with women's cancers.  The signature adventure is a 9-day motorcycle ride in California.  You must have been personally affected by a woman's cancer to participate, and you can participate as a motorcycle rider or a van driver.   Check out www.amazonheart.org

 

ProgramsConferencesUPCOMING PROGRAMS & CONFERENCES

 

Call 212-382-2111 to register for all programs. 

 

Good Health While Aging: A Nutritional Approach
A program of Wise Women's Circle, for women of retirement age
SHARE Main Office, 1501 Broadway, #704A (bet. W. 43 & 44)
Tuesday-June 5  2:30-4:00 PM

Cook For Your Life (Advanced registration required by May 29th)
A program for young women affected by breast cancer.  Ann Ogden Gaffney will teach you to cook tasty, healthy balanced meals in this hands-on professional kitchen.
City Cookhouse, 1325 Fifth Ave at 111th Street
Tuesday June 12 6:00 - 9:30 PM

Want to Help End Breast Cancer?
NBCC has set a dealine to end breast cancer by January 1, 2020.  Learn how you can be a part of the effort to meet this deadline.
SHARE Main Office, 1501 Broadway, #704A (bet. W. 43 & 44)
Thursday - Jun 14   6:00-7:30 PM

Report from ASCO
Dr. Anne Moore is the Medical Director of the Weill Cornell Breast Center. She is Professor of Clinical Medicine at the Weill Medical College of Cornell University and  Attending Physician at The New York Presbyterian Hospital. Dr. Moore will provide an update from ASCO 2012.  (Refreshments provided)
Weill Greenberg Conference Center, 1305 York Ave @ 70th
Room B & C
Thursday June 21 6:00 - 7:30 PM
Click HERE for SHARE's website. 

Getting Fit After Breast or Ovarian Cancer
Joan Pagano will offer tips on sneaking exercise into your regular daily routine. 
SHARE Main Office, 1501 Broadway, #704A
Wednesday June 27  6:00 - 7:30 PM

The new SHARE calendar is available.  Click HERE to see calendar online.

VolunteerVOLUNTEERS
WHAT METASTATIC VOLUNTEERS ARE DOING AT SHARE

Volunteers are always needed for the hotline and peer matches.  Contact Donna Faranda for more information:  212-937-5577 
Friendsfamily

FRIENDS & FAMILY 

   

African American Couple
Did you know there is a Men's Group to support men as they support their wives, partners, daughters, friends and significant others?   Call the Hotline 212-382-2111 for more information and to register. 

 

 

TakeshareTAKE SHARE TO YOUR DOCTOR
Referral by Word of Mouth
At a recent visit to my oncologist's office, I was delighted to find the SHARE literature right there in the exam room.  Want to let others know about the benefits of SHARE?  Take SHARE to your doctor.  Ask me how by giving me a call at 212-937-5586 or email me at cbenjamin@sharecancersupport.org
 

Mission ABOUT SHARE 

SHARE's mission is to create and sustain a supportive network and community of women affected by breast or ovarian cancer. We bring these women and their families and friends together with survivors to provide participants with the opportunity to receive and exchange information, support, strength and hope.   

 

SHARE provides telephone support, support groups, educational programs and advocacy opportunities.  All services and programs are free.   


Sincerely,

Christine Benjamin LCSW
Metastatic Program Coordinator

Cbenjamin@sharecancersupport.org  

212-937-5586

  

SHARE