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 United Cerebral Palsy of Michigan

Newsletter November/December 2011 

In This Issue
Building a Better Homelife
New Grants Awarded to UCP
Testers Needed!
Michigan Victory Games: Helping Athletes
Upcoming Events

Please Contribute to UCP Michigan's Year End Fundraising Campaign  

 

25,000 Michigan children and adults with cerebral palsy urgently need your help...

 
Reminder:
You Can Give at Work!
 

If you are a federal or state employee, or you work for a corporation that provides a workplace giving program such as the Combined Federal Campaign or your local United Way, you have available to you a very simple and convenient way to support United Cerebral Palsy.

 

See your human resource manager or payroll department to see how you can designate UCP Michigan to receive your charitable gift through your workplace. It's easy, and it's a great way to show your support throughout the year.

 

If you have any questions, please contact us by

 e-mail or call  

(800) 828-2714.

 

Designate UCP Michigan in the Combined Federal Campaign - #39880

State Campaign - #8551

 
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2011 Board of Directors

Officers

President Jackie Doig 
Center for Civil Justice

Chairperson John Peck
Grand Valley State University

Vice President Dan Vivian
Michigan Protection & Advocacy Service, Inc.

Vice President Judy Cerano
White Lake

Secretary Lou Reinwasser
Office of the Attorney General

Treasurer Charlie Hawes
Yeo & Yeo, Lansing

Directors at Large

Mickey Hirten
Lansing State Journal

Andrea Sarto
North Country Community Mental Health

J.J. Jackson
Okemos

John Lawton

Lansing

Seth Warschausky, PhD
University of Michigan

David Miller
Comerica Bank
UCP Michigan Staff Contacts 

Executive Director
Kathleen Brockel
 
brockel@ucpmichigan.org

Glenn Ashley
Grants Manager/Project Coordinator

ashley@ucpmichigan.org

Sara Stech
Community Work Incentives Coordinator

stech@ucpmichigan.org

Anne Shell
Communications Coordinator

shell@ucpmichigan.org

Sara Menzel
AT Center Manager

menzel@ucpmichigan.org

Lynn Ross
WIPA Coordinator

ross@ucpmichigan.org

Jack Anderson
Community Work Incentives Coordinator

anderson@ucpmichigan.org

Michele Seybert
Loan Funds Manager

seybert@ucpmichigan.org

Tisha Robinson
Secretary, I & R

robinson@ucpmichigan.org

Lisa Bucher
Community Work Incentives Coordinator

bucher@ucpmichigan.org

 

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Issue: VNovember/December 2011

Building a Better Homelife

UCP grant helps Menominee man regain independence

 Tearlach Sinclair looks on as volunteers build a ramp to his Menominee home

For the past 20 years, Tearlach Sinclair never felt quite comfortable at his own home.

 

Sinclair, an incomplete paraplegic, typically uses a wheelchair or braces to get around. He needed help getting in and out of his Menominee home, a job that usually rested with his wife, Siubhan.

 

But getting into and out of his home independently is now possible for Sinclair, now that he has had a ramp installed with the help of United Cerebral Palsy's Elsie S. Bellows Fund - and after 20 years of his wife's prodding.

           

"I finally realized she was telling the truth," he recalled with a laugh. "I couldn't get the chair in and out of the house; my wife had to do it. If she was at work, I was stuck. It didn't make her happy, and it didn't make me happy."

 

It was finally clear to Sinclair he needed a ramp - and he needed some help, too.

 

Sinclair, 60, immediately started looking for grant money, and came across the Bellows fund online. Working with staff from the UCP Michigan Assistive Technology Center in Marquette, Sinclair applied for a grant from the Bellows Fund and received $900 toward the cost of materials for a ramp. When he heard that the grant had been approved, he was thrilled. "I was like, wow!" he said. "I was absolutely astounded."

 

Check in hand, he set off to purchase the materials at a local hardware store. "I got the check and immediately converted it from one kind of paper to another kind of paper," Sinclair said with a laugh. "I traded the $900 for wood, screws, nails, etc." At first he was told that the materials would cost $1,800, twice the amount of his grant. "I said, 'I need wood, not gold blocks,' " he laughed. He took a piece of scrap paper and drew out what he needed. "I told them I'm basically building Ramp 101," he said.

 

Habitat for Humanity and local church volunteers did most of the installation, although Sinclair said he ended up doing some of the work himself since the Habitat volunteers were simultaneously working on a home-building project. "I was out of the chair, screwing on boards," he explained.

 

Sinclair also said that in addition to two coats of primer and paint, he applied an anti-slip coat on top, much needed due to the Menominee winters. He enjoyed testing it out, as well. "I went to the top of the ramp and went down to the first turn and stopped- no squealing, no slipping, I just stopped," he said.

 

He's not the only one who enjoys the ramp: he said when he was recently handing out candy on Halloween, the trick-or-treaters made use of it as well. "Every kid that came had to run up and down the ramp - they didn't make the turn, they

just jumped off the end," he said with a laugh. "It was fun to see."

 

In addition to making his own home accessible, Sinclair is an advocate for making his town more accessible, as well, working with local politicians and committees to try to improve sidewalks and make curb cuts on the corners. "Moms pushing strollers, the elderly ... universal design helps everyone," he explained. "I'm trying to make things better."  

 

United Cerebral Palsy established the Bellows Fund in 1995 to provide assistive technology equipment to financially challenged individuals with disabilities. Assistive technology includes ramps, adaptable lifts for vehicles, communications tools, mobility aids and home modifications. The Bellows Fund provides funds to UCP affiliates across the country to purchase such equipment.

  

UCP Michigan also offers the Assistive Technology Loan Fund, which helps people with disabilities enhance their quality of life by providing low-cost access to assistive technology they might not otherwise be able to afford.

 

Sinclair is extremely happy with the new ramp: "For the first time in many years, I have absolute liberty and control over when I enter and exit my home," he said. "I don't have to run my schedule based on my wife's schedule. She doesn't have to feel bad if I want to go somewhere and she's not home. It takes the burden off her. To me, that's worth all the time and money that was spent."

 

 

United Cerebral Palsy of Michigan's Assistive Technology Loan Fund (MATLF)

The Michigan Assistive Technology Loan Fund is a program that allows people with disabilities to borrow money at low interest rates to purchase assistive technology devices that allow them greater access, increased mobility, and enhanced communication and job opportunities. For more information, please visit our website.

New Grants Awarded to UCP Michigan

UCP Michigan has been awarded new grants for Regional Coordination in the Northern Lower Peninsula, Central and Eastern Michigan. The grants from the Michigan Developmental Disabilities Council total $150,000 per year for five years.

 

The Regional Coordinators will focus on the six to eight RICCs (Regional Interagency Consumer Committees) in the region, along with other advocacy groups.

 

The goals of the project are to:

  • Improve the effectiveness of RICCs in defining and achieving their goals, through training, supports and connection to other resources.
  • Guide the RICC members in creating personal network maps as a base for RICC work in the community and outreach for new, diverse members and people with high/complex support needs.
  • Help RICCs develop and use their skills for policy advocacy.
  • Coordinate regional events to build skills and promote peer learning among RICCs.
  • Build collaborations with community groups, among RICCs in the region, with the Council, its workgroups, committees and new training grants.
  • Support development of peer leader networks, including new leaders and helping those leaders connect to RICCs or emerge from RICCs.

 

UCP Michigan will hire additional staff for the project, preferably emerging disability leaders. In Northern Michigan, UCP will hire a full time Regional Coordinator from the region. In the East Central region, UCP will hire a part time Regional Coordination Specialist. See our Employment page to apply.

Testers Needed! 

Testers needed of all ages, to investigate civil rights violations in Ingham, Jackson, Lenawee, Livingston, Monroe and Washtenaw Counties.

Tester
The Fair Housing Center of Southeastern Michigan is seeking women and men to assist in the investigation of housing discrimination complaints ("testing"). "Testers" pose as home seekers in a variety of housing rental situations. Testers will be paid a per-test stipend or may choose to volunteer. Hours are flexible and attention to detail is a must. Access to personal transportation is helpful, but not required.


The FHC currently needs women and men from all racial, ethnic, and religious backgrounds.


The Fair Housing Center of Southeastern Michigan is a private, non-profit agency that provides investigative services (testing), advice, advocacy, conciliation, attorney referral, and community education. State and federal law prohibits housing discrimination based on race, color, religion, gender, national origin, family status, disability, marital status, age, sexual orientation, source of income, and student/non-student status.


If you would like more information on becoming a tester, or if you think you have been the victim of illegal housing discrimination, please call the Fair Housing Center using our toll free number: 1-877-979-FAIR. Fair Housing: It's not an option. It's the law.

Michigan Victory Games: Helping Athletes With Disabilities Move Off the Sidelines And Into The Game

By Matthew W., courtesy of the Michigan Victory Games    

 

Growing up with an older brother that was both a high school and Matthewcollegiate basketball player meant I've been part of the cheering section at many, many games. I loved it, rooting for my favorite team, and I remember how cool it was knowing that guy who just deflected that jump shot was my brother. Sure, sitting in the bleachers watching was fun, but I wanted to be part of the action. Most of all, I wanted to compete.  

        

Sounds easy enough: pick a sport, find a team and practice hard. One minor obstacle to becoming the next great athlete in the family was that I have Cerebral Palsy (CP), which makes me dependent on a power wheelchair to get around. CP may keep me from doing a windmill dunk from the free throw line or posting up the big man in the key, but I knew there was something out there for me. So, my mom and I started asking around. After much digging, we found the Grand Rapids Eagles Disabled Sports Team. It would be a long drive - we lived 70 miles away -- but we had to check it out.      

    

After my first practice over 10 years ago, I knew a couple of things for sure: 1) I loved it and 2) I had found my venue for competition. Eagles' practice runs from October until mid-May, and the season culminates with the Michigan Victory Games (MVG), which is held annually in mid-May at Michigan State University. It is where athletes with a primary physical diagnosis come to compete against other athletes of similar ability levels in many different sports, which include Track & Field, Boccia Ball, Swimming, and Wheelchair Obstacle Courses, to name a few. Doing well there could qualify me for National, World, or Paralympic competition. Okay, I probably wasn't going to the Olympics, but knowing that I could was pretty cool.     

     

Rolling in to register my first year at the Michigan Victory Games so many years ago was a memorable experience to say the least -- seeing the lobby busy with other athletes and coaches checking in, seeing power chairs zip through the lobby, and hand cycles being wheeled through the parking lot. It was pretty cool to see so many wheelchairs in the same place. I wasn't alone anymore. Competition was a blast. Meeting people and playing well made the long days of competing seemingly fly by. Adding to my excitement was my team winning the overall event.     

     

MVG added equity to my life by offering athletic competition, the opportunity to socialize with my true peers, and set the ball in motion for a very neat form of recognition. Upon entering high school I was an individual state champion athlete multiple times over and had helped lead my team to numerous championships. I sought my recognition and was recognized as a student athlete within my community. After letters being written on my behalf and some phone calls with the Athletic Director, I was given the same awards as any able-bodied athlete at my school, which in the end resulted in me receiving my Varsity letter.     

     

Being involved with the disabled sports community and taking part in the MVG has and continues to offer so much to me and all the athletes it touches. From winning an event that you've been practicing for all year, to being able to wear your varsity jacket loud and proud through the halls at school, these athletes have earned this honor. Or maybe it's dancing the night away at the annual closing ceremony dance -- it has something for everybody. So come check it out yourself. You can earn your Varsity letter at your school, too!

 

  

Matthew W. is 22 years old. He graduated from Paw Paw High School in 2008, where he received his Varsity letter. He has been an athlete with the Grand Rapids Eagles Sports Team for over 10 years. He currently is a senior at Davenport University in Grand Rapids, and is studying computer programming.

 

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Michigan Victory Games will run May 17-20, 2012 at Michigan State University, East Lansing. For more information, go to www.MichiganVictoryGames.org.

Upcoming Events

View upcoming events around the state on the UCP Michigan website!

We hope you have enjoyed this newsletter. Please forward on to friends, family, and colleagues who may be interested in reading it. We appreciate your support!

 

Wishing you a wonderful holiday season!

 

Kathleen Brockel

Executive Director

United Cerebral Palsy of Michigan