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From the Desk of Bud Thoune
Greetings!
It is with great pleasure that I introduce Ann Coffey as UCP's new executive director. Ann was chosen after an extensive nationwide search. She has worked with me for the past decade. When I first met her several years before coming to work here, I was struck by her passion, intelligence, and deep sense of values relating to people in general. But specifically to people with disabilities. Fortunately my instincts were correct, as she has done amazingly well. Since first coming to UCP as Community Services Director, she has taken the reins and deepened our commitment to support people with disabilities with dignity and respect, always with the goal of finding better ways to assist people to become full members of our wider community. She has gained the respect of the DD professional community, and as a result is sought after to be a member of various local and state planning groups. She has increased our business twofold, re-established our emphasis on Supported Employment in 2006, and started our Brokerage last year. Please join me in congratulating and supporting Ann as you supported me all these years. |
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Sincerely,
Bud Thoune Executive Director United Cerebral Palsy of Oregon & SW Washington
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Saying Goodbye to Bud
By Jennifer Gwin
About this time last year Bud told me he would be retiring at the end of 2011 and we began discussing how to go about finding UCP's next Executive Director. As the time has neared, I've come to realize how much I have enjoyed working for Bud and how much I will miss him as both a boss and a person. Bud has always encouraged me to be true to myself and my values. He is above all else, an ethical and caring human being.
Bud practices something he calls managing by walking around, in which he does just that - walks around and talks to employees about their jobs, lives, people we support, or whatever else is on their mind. He meets every new employee in person shortly after they are hired. He cares about our employees just as much as the people we support, recognizing that we don't have one without the other.
I've worked for Bud the past 9 years and have learned and grown more during that time than at any other point in my working life. Bud has taught me how to be a better professional and supervisor, always promoting the virtues of transparency and honesty. He has laughed at my groan-worthy puns and shared his own corny jokes. We've celebrated and commiserated together over achievements and setbacks.
Not only has Bud been an excellent boss and leader, he has been an almost tireless advocate for people with disabilities. Back in 1979 we opened the first group home in Oregon for people with orthopedic disabilities, a big transition from living in an institution. Bud oversaw the addition of the Family Support department to UCP in 1985 so that families raising kids with disabilities would be supported, too. By 1992 we had closed our group homes and transitioned to supporting adults in their own homes. Bud kept pushing our mission further, and in 1996 we closed the Sheltered Workshop that provided segregated employment services and began the long journey towards true Supported Employment. Bud saw us finish the transition to individualized services when we committed to 1:1 supports in our Choices (community inclusion) program in 2001. And if that weren't a lot for one career, Bud also celebrated the opening of Oregon's most recent support services brokerage, UCP Connections at the end of 2010.
At the end of this year, Bud will begin a wh ole new adventure. Many staff and people UCP supports will miss him greatly. But his legacy will live on. We will continue to seek better ways to provide support, advocate for the civil rights of people with disabilities, and strive to be the employer of choice within our field. It won't be the same without Bud at the helm, but his vision and values will continue to drive us forward.
To laugh often and much; to win the respect of intelligent people; to appreciate beauty; to find the best in others; to leave the world a bit better, whether by a healthy child, a garden patch, or a redeemed social condition; to know even one life has breathed
easier because you have lived. This is to have succeeded!
-- Ralph Waldo Emerson
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Employment Solutions Employment Solutions Hosts AbilityAware Night By Nicholas Von Pless
On Thursday, October 20th, UCP's Employment Solutions team took over the event space at the Ace Hotel in downtown Portland to honor the employers who have hired people with developmental disabilities through our office. Each employer was given an AbilityAware recognition award. This award honors community businesses that are committed to hiring people with developmental disabilities, and markets that mission to their customers. Over 20 employers were honored, and the event included presentations from four area employers. Hippocrates' Secrets owners Dave & Anna Roussette discussed the important role Jacque has played in filing paperwork, and how their eyes were opened to the level of ability Jacque presents despite any disability. The job coaching of Sheila Forget was described as pivotal in fostering a long-term placement for Jacque. Local-business-unifier Supportland presented on the boost in efficiency they saw as a result of hiring Renea to package thousands of rewards cards, and how the simple networking of Job Developer Nicholas Von Pless connected Supportland to a qualified job seeker. Jude Kirstein of Sugar Wheel Works described the immediate bond she felt when she hired Dan in her custom bicycle wheel shop, and how the work of Employment Specialist Xochil Springer has made Dan's placement a success. Soon, Dan will be working without the supervision of a job coach, which we all applaud.
Finally, Phillip spoke about his job at Whole Foods Market with Human Resources Manager Kimberli Zonker. Phillip is deaf, and Melissa Miller, Employment Solutions' Program Manager, worked with the entire staff of Whole Foods to learn some basic sign language, as well as a list of Phillip's job duties accompanied by the appropriate sign. This has been incredibly successful, and Phillip shared with the night's audience how happy he is having a job and being surrounded by such a supportive staff. The event was hosted by Jerry Pattee, Secretary of UCP's Board of Directors. We thank Jerry as well as the following sponsors for making this event a huge success: Whole Foods, Gradient Productions, Hip Chicks Do Wine, Full Sail Brewing, QFC, Ingallina's Deli, and Art From The Heart. Employment Solutions now has a Facebook page - "like" us to stay up-to-date on new hires and advocacy articles for individuals with disabilities. Visit the site here. For more information about Employment Solutions, contact Melissa Miller at mmiller@ucpaorwa.org. |
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Family Support Services
A Sister's Perspective
By Hailey Reeves
Below is a story written by a 12 year old girl about her older sister who had cerebral palsy. The story was for a school assignment and has been left in its original form. We wanted to share the insightful and touching perspective she shares of her short time with her sister.
My older sister Alyssa was two years old when I was born. I knew all my life that my sister had a disability called, Cerebral Palsy. She was different in a lot of ways. Alyssa couldn't talk, walk, or taste delicious food like us.
When I was four and Alyssa was six, my little brother Tyler was born. Tyler loved to play with Alyssa, but the sad thing was that; he was too young to understand that she wasn't playing back. Tyler loved to crawl all over Alyssa. He was like a little monster. Tyler also loved to drive his toy monster trucks over her legs.
Tyler was too young to understand what was going on with Alyssa. He still was a baby. Now that Tyler is older he wants to learn more and more about Alyssa. Tyler is always saying that he misses Alyssa and he wishes that he could of known her better. That makes me and my mom and dad very sad. It is very hard to know that Tyler didn't know Alyssa that well, but Tyler still loves her.
It made me cry every time I had to hear, "Alyssa is done with the surgery now." I had to hear that so many times. Alyssa couldn't walk, sit or move her muscles very well, so she had to have tons of surgeries. She also had a hard time breathing sometimes. Alyssa was in a wheel chair all her life until she passed away.
It's been four years since Alyssa passed away on July, 12, 2007. It was very hard to know that my sister was dead. I cried for three days strait. Well at her funeral my mom said, "Even though she's gone, it doesn't mean we will never see her again. We all know she is with us inside of our hearts." That touched all of us. All of my sister's family and friends were there to support us in losing Alyssa. So even though she was different on the outside I know she will always be the same inside of my heart. I miss my sister like crazy, but I still love her.
My sister taught me to love every one. So every time I see a person in a wheel chair I don't think, "Wow that person is so stupid". Instead I think, "Wow, that family must be blessed with that child, but I understand the difficulties that they might have once in a while." If you know someone with a disability don't judge them. Try to get to know them. I believe that anyone can see, hear, walk and talk inside of their own body.
As me and my brother get older it hurts us less and less to know that she is gone. Now we know that she can walk and talk and even fly with God. I am so blessed to have Alyssa in my life and Tyler is too.
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Adult Services Travel Done Your Way
by Kerry Pinney
 Everyone loves and dreams of going on a trip and exploring new destinations. Even with that desire, it can be difficult to make that dream a reality and it can be especially difficult for a person with a disability to fulfill that desire. Luckily there are travel companies out there that specialize in arranging travel for people with disabilities and Sheryl, an Assistant Team Leader in Supported Living here at UCP, has some of those resources at her fingertips.
Meet Beverly (or Bev as most people call her), who has been receiving support from Sheryl and others in the Supported Living Program here at UCP since 2007. Bev probably takes 1-2 trips a year and LOVES to travel. It is a pretty impressive list of places that Bev has visited. Memorable places that Bev has visited were Nashville, Las Vegas, Baja Mexico, and Branson, where she was kissed by Elvis! Her favorite was the most recent, an Alaskan cruise.
It was not Bev's first cruise, but it ranks as her favorite trip so far! She experienced a lumberjack show in Ketchikan, viewing glaciers at Glacier Bay, a train ride through White Pass, her first whale sighting, good music and shows, numerous trips to the on board casino and a chocolate buffet! As Bev put it, the food was excellent and probably her favorite part of the trip. With the second favorite part of her trip being her travel companion, Sandy Silveria.
Meet Sandy, who runs and operates We're Outta Here! Travel. Sandy was part of the Clark County Developmental Disabilities Parent Coalition before the idea of taking people with developmental disabilities on vacation came to her. It was during a conversation with a friend that the idea of her travel business took form. They were talking about hopes and dreams and he happened to have a goal of visiting Disneyland. She realized that she could help with that! The feeling she got from seeing the joy in his eyes as he experienced all the wonders of Disneyland cannot easily be put in words.
Sandy feels very fortunate to have had this opportunity for a career happen for her. She really feels that this was the job meant for her and in talking with her, you get that same feeling! A unique aspect to taking a trip with Sandy is that it is just you and Sandy. She meets with you and finds out what you are wanting to do and then makes it happen. Sandy took her initial trip with a client in 2003 and with frequenting some places multiple times she has built up a large knowledge base and some very nice relationships with establishments. Her clients are greeted with genuine enthusiasm after years of developing contact. It is also helpful when special needs are required for certain clients.
Bev and Sandy have taken many trips together and when I asked Bev what it is that she like about her trips with Sandy she replied, "She is fun. She lets me do what I want." Bev told me that Sandy always says "It is your money. You can do what you want with it." Sometimes the trips Sandy takes someone on can be as simple as a car ride to the beach to sit and listen to the waves. It might not sound that exciting, but to that person, it was exactly what they wanted!
So, it is safe to say that a nice relationship has formed between Sandy and Bev. Sandy really enjoys her travels with Bev, as she is a very social person. Bev recently had a visit from a mother and daughter she had met on a trip, as they traveled through Portland. Thanks to Sandy taking pictures while on their trips and then putting them together in an album for Bev, she has many hours worth of memories to look through and dream of her next adventure!
Sandy Silveria can be contacted by email at:
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United Cerebral Palsy of Oregon & Southwest Washington
11731 NE Glenn Widing Dr, Portland, OR 97220
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UCP Connections Garrett Gets Out!
By David Tom
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Before entering brokerage services with UCP Connections, Garrett felt a bit cooped up in his rural family home in Damascus, with no access to public transportation. He often found himself longing to be more active, especially wanting to get out and hear some live music, and just maybe get inspired to play that electric guitar of his gathering dust under the bed. Some health-related challenges meant that Garrett wouldn't be seeking another job after a nine-year stint at Safeway, and it became clear through the individualized planning process that community inclusion would be his first priority as a brokerage customer.
Through one of UCP Connections' "Mix and Mingle" events, Garrett was able to interview several support services providers (the folks that work directly with customers to get the extra help they need and want), but that's all history. These days, Garrett can be found hiking at Forest Park with his chosen provider, checking out the pumpkin patches popping up this time of year, and oh yes, poring over the Portland Mercury, looking for good live music around town. Smaller shows are best to meet people and make new friends, don'tcha know! Guitar lessons to follow soon...
For further information about UCP Connections, contact Sarah Knight at (503) 546-2991 x70 or sarahk@ucpconnections.org
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Community Partner Spotlight
Our Partnership with Whole Foods Market
The partnership we share with Whole Foods Market goes well beyond their being an AbilityAware employer through our Employment Solutions department -- although, that was where the relationship began!
We have been fortunate to have had the support of Whole Foods Market for several event/functions here at UCP. Kimberli Zonker, the Human Resources Manager at the Fremont location, has graciously spoken about her experience working with Phillip and his support staff from UCP at multiple functions. It is an inspiring story to hear and she never hesitates to share it!
We have also had the pleasure of having their marketing staff work with us at our annual Walk, Roll 'n' Run. Whole Foods Market joined us for the second year this last September, offering up fruit, energy bars and other goodies to the hungry walk, roll and runners that visited their booth. They also played a big role in helping to make the event a bit more "green" this year by providing the bins needed to collect recyclables, compost and trash.
Thank you Kimberli and the rest of the staff at Whole Foods Market, for the ongoing support you provide to us at UCP. |
Employee Spotlight: Nicholas Von Pless
By Kerry Pinney | |
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If you find yourself in a conversation about ghost ramps, you might just possibly be talking to Nicholas Von Pless, an Employment Solutions job developer, (and go-to person if you enjoy random information!).
Nicholas grew up and went to college in Syracuse, New York and upon finishing college moved to Alaska for a couple of years. He has called Portland home since 2007 and joined the Employment Solutions team here at UCP in September of 2009. Networking, developing employer relationships and the ability to support his clients to become independent through competitive employment are aspects of his job that Nicholas really enjoys.
You could say that some of the passion Nicholas brings to his job stems from growing up with an older sister with a moderate cognitive disability. He watched his sister as she went through a job development program and brings the insight gained during that time to his job. He takes pride in the work he does and you can tell as you listen to him talk to his clients that certain things like patience, just come naturally to him.
Nicholas has dived into all that Portland offers, making it seem as though he was a native Portlandian! He loves the outdoors, especially enjoying his time rafting local rivers. He bikes all over town, exploring new routes as time permits. He writes music and plays the guitar doing solo shows as well as performing with his band Holy Tentacles. Home brewing is another interest along with volunteering. Currently he volunteers time with Phame and My Voice Music.
"I enjoy how Portland fosters creativity", says Nicholas, along with the "entrepreneurial spirit" and the support shown for local businesses. This can be seen in the job placements he has secured for his clients. His clients benefit from the support of Nicholas and one could say that Portland (and UCP) benefit from his support as well!
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