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June 2011

All Wheels 4 Fibromyalgia kicks off Race Across the West - June 15 

From the Rockies to the Alps, AW4F raises awareness   

NFA AW4F on the beach
AW4F kicks off June 15 at Oceanside, CA

 

"We are so grateful to the team members for raising awareness of the NFA and fibromyalgia across the U.S. and now for the first time in Europe! These dedicated team members are not professional cyclists, but they are involved in research for FM in their professional lives. Their record breaking performances have personalized what the race means to our patient population." --Lynne Matallana, NFA President & Founder  Read more  

 

 

NIAMS Celebrates 25th Anniversary

Scientific Symposium: "Improving Lives Through Discovery"

 

NIAMS logoCongratulations to the NIAMS (National Institutes of Arthritis, Muscoloskeletal and Skin) which will be hosting its 25th Anniversary Scientific Symposium: Improving Lives Through Discovery, on June 13. The Symposium will feature scientific advances made possible with NIAMS support, highlight how these advances have improved patients' lives, and address the future directions for NIAMS research. Read more


Connecticut State Senate Passes Bill Limiting Step Therapy  

U.S. Pain Foundation shines media spotlight 

 

Paul Gileno on FOX
Paul Gileno, U.S. Pain Foundation and SB 1083 on FOX News. Click to watch segment

The U.S. Pain Foundation is shining the media spotlight on living with chronic pain, through their efforts in the recent passage of SB 1083 in the CT Senate which prohibits "step therapy." Watch Paul Gileno's TV interview and learn how he and the Foundation are working on similar bills in other states.  

 

STUDY: Direct medical costs in patients with fibromyalgia twice than non-FM patients

Cost of illness and impact of a brief multidisciplinary treatment program

 

Medical costPatients with clinically diagnosed fibromyalgia incur direct medical costs about twice that of their matched controls, according to a study by the Department of Physical Medicine and Rehabilitation at the Mayo Clinic College of Medicine in Rochester, Minnesota. Those with increased symptom severity averaged $2,034 higher direct medical costs during the 4-yr period. Read more  

 

My Fibro Story, by Jeannie Hughes

Traumatic event leads to new life with "Rosie"  

 

Jeannie and Rosie
The author with Rosie

I could find peace and hope through the love and positive energy I channeled to this dog and the love she returned.  I thought less about the traumatic event that happened to me. I saw my dog as my new life partner, a new best friend that I could rebuild my life with when everyone else was busy or could not be there for me. We could bond and find joy in each other like no other.Read more  

 


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The National Fibromyalgia Association (NFA) welcomes the support of many community organizations and individuals who want to help advance our mission of developing and executing programs dedicated to improving the quality of life for people with fibromyalgia. As a nonprofit 501(c)3 organization, we are also grateful for the support of our advertisers, which better enables the NFA to fulfill our mission. Without these advertisers, we would not be able to offer the global fibromyalgia community the educating, encouraging and empowering programs that are so vital. The NFA does not endorse any company, product or treatment modality that may be mentioned in this newsletter, our website, Facebook and Twitter pages and blog.