PSCKY logo smallParkinson Support Center of Kentuckiana Newsletter
April 12-18
The mission of the Parkinson Support Center of Kentuckiana is to provide support services that improve the quality of life for the Parkinson's community, to promote public awareness; to contribute to the local and national efforts to raise funds for support, and to accelerate the research for a cure.
PSCKY
 
Executive Director: Jinn Fuller Renfro (jinn@pscky.org)
 
Director of Support Services: Katherine Autin (support@pscky.org)

Director of Outreach & Training: Adina Cook (training@pscky.org)
 
Call us!502.426.0888
 
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Dear Friends:

We've got a lot of good info in this weeks' e-news. So I'll keep this brief and mention that last week marked the launch of three new programs:
  1. In partnership with Frazier Rehab, we launched the "Even Bigger" LSVT BIG Community Practice group on Wednesday nights at 7pm. Though this class is just about full, we are still taking names for the program, as we hope to start a second group after this pilot project is up and running.
  2. In partnership with Norton Audubon's Music Therapy Department, we launched a "Music and Wellness" music therapy group on Monday mornings at 9am. This class has openings; please email us ASAP if you'd like to participate in the mix of singing, breathing and music making!
  3. We started our "Sit, Stroll or Stride" walking and hiking club and went on two great walks: Anchorage Trail and Iroquois Park.
We are also tremendously pleased to announce that the Floyd County Support Group has officially affiliated with PSCKY! We look forward to expanding our services in Southern Indiana!

I'd also like to draw your attention to our calendar of events for this week; it is the first week we're literally offering a support event every day of the week! Now, that's exciting!

Wishing you well this week,

Jinn Fuller Renfro

Executive Director

PS: Here's some pictures from the launch of the "EVEN BIGGER" group!
even bigger 1even bigger 2even bigger 3
THE MOVEMENT DISORDERS PROGRAM
Frazier Rehab Institute

Groundbreaking research and milestones occur daily at Frazier Rehab Institute and the Movement Disorder Program is no exception. The Movement Disorder Program at Frazier Rehab treats such conditions as:
  • Parkinson Disease
  • Progressive Supranuclear Palsy
  • Corticobasal Degeneration
  • Dementia with Lewy Bodies
  • Multiple System Atrophy
  • Frontotemporal Dementia
  • Creutzfeldt-Jakob Disease
  • Vascular Dementia
  • Tremor Disorders - such as Essential Tremor
  • Dystonic Disorders
  • Myoclonic Disorders
  • Tic Disorders
  • Cerebellar Ataxia
  • Stiff Person Syndrome
The Movement Disorder program features an interdisciplinary team of experts, bringing a wide range of experience to serve patients.  Areas of expertise include neurology, neurosurgery, speech language pathology, physical therapy, occupational therapy, neuropsychology, psychology, case management and genetic counseling.  Every patient visiting the Movement Disorder Program at Frazier Rehab receives an individualized treatment plan which includes details such as:
  • Medications
  • Clinical trial opportunities
  • Therapy such as physical and occupational therapy, speech and swallowing therapy and aquatic therapy
  • Psychology services
  • Genetic counseling
  • Surgical consultation
  • Case management services
Frazier Rehab Institute remains the site of Kentucky's only Parkinson Center of Excellence and home to the groundbreaking movement disorders research that is occurring with Dr. Irene Litvan and other University of Louisville researchers.  There are only 43 medical centers around the globe that have earned this distinguished recognition and the University of Louisville Movement Disorders Program, whose lead site is Frazier Rehab, is proud to be one of these leading medical centers.  

If you or a loved one is interested in learning more about the Movement Disorders Program at Frazier Rehab Institute, they would welcome the opportunity to share with you what makes Frazier Rehab a level above the rest. The team does quarterly symposiums to educate physicians, patients and the general public about movement disorders and our services.  Additional information about these symposiums or their services in general can be gained by visiting www.frazierrehab.org or calling Diane Stretz-Thurmond at 502-582-7469.
SIT, STROLL or STRIDE WALKING & HIKING CLUB
New walks this week! For complete info about the "Sit, Stroll or Stride" Club, please visit our support groups page.

UPCOMING WALK SCHEDULE:

Friday, 16 April: Thurman Hutchins Park (Kentucky)
3734 River Rd., 40207 (River Road and Indian Hills Trail)   
Meet at 9:15am   
Walk at 9:30am   
Meet at the parking lot near the restrooms.
Level: Sit or Stroll
Bathrooms Available? Yes
Benches Available? Yes

Sunday, 18 April: Blackacre State Nature Preserve and Historic Homestead (Kentucky)
3200 Tucker Station Road Louisville, Kentucky 40299   
Meet at 8:15am   
Walk at 8:30am   
Meet at the Visitors' Parking Lot between the homestead & the horse pasture.
Level: Sit, Stroll or Stride
Bathrooms Available? Yes
Benches Available? Yes
NOTE: No dogs allowed. No paved trail, but some easy walks.

Friday, 23 April: Falls of the Ohio State Park (Indiana)
The Falls of the Ohio State Park is located at the end of West Riverside Drive, Clarksville, Indiana. Take Exit 0 on Interstate 65 and follow the signs.   
Meet at 9:15am   
Walk at 9:30am   
Meet in the parking lot behind the Falls of the Ohio Interpretive Center.
Level: Sit or Stroll
Bathrooms Available? Yes
Benches Available? Yes
NOTE: $2 requested for parking, supports the Center. If you want to visit the Museum while you're here, the $5 admission INCLUDES parking.

Sunday, 25 April: Mt. Saint Francis Center (Indiana)
101 St. Anthony Drive Mt. St. Francis, IN  47146   
Meet at 8:15am   
Walk at 8:30am   
Meet in the parking lot by the Post Office.
Level: Sit, Stroll or Stride
Bathrooms Available? Yes
Benches Available? Yes
NOTE: No dogs allowed

Here's a few pictures from our first walk on Friday, April 9th!
walk club 3walk club 1walk club 2
MORE ON MOVEMENT & EXERCISE: MOVE BETTER WITH YOUR EYES SHUT? WITH CUES?
Our friends at NWPF shared an interesting article on a study that looked at sensory and perceptual issues and the role they may play in freezing. Basically, the patients performed specific exercises with their eyes closed to retrain their bodies in certain movement. One group in the study did the exercises with their eyes closed, and other group with open eyes. "The group that had done everything with their eyes closed was much better off," said researcher Quincy Almeida.

Other studies of interest look at how sensory cues (such as a rhythmic beat, auditory or visual cues) can be combined with exercise to improvement movementfor people with PD.

One such cue-based therapy is Interactive Metronome therapy. The IM program challenges you to synchronize a range of hand and foot exercises to a precise, computer-generated tone heard through headphones. Local person with PD Karen deGraaf has participated in IM therapy with local occupational therapist Laura Carnes Kane and said that it's very helpful. If you'd like to learn more about Interactive Metronome Therapy directly from Laura, please feel free to call her at 502-777-0809 or send her an e-mail.
WORLD PARKINSON CONGRESS VIDEO CONTEST
Video Competition is NOW Open for Submissions

The WPC 2010 is hosting a video competition to raise awareness about PD and to put a face on the disease. Submission link is now open.

ANYONE touched by Parkinson's is invited to submit a video. The sky is the limit on the video as long as it's about PD. Learn more on the submission link above. Prizes will be given out for the the top videos and one lucky winner will have his/her video shown at the WPC 2010 Opening Ceremony.
ON THE WORLD WIDE WEB
FacebookPSCKY is now on Facebook! Please "become a fan."Thanks to everyone who's joined up so far!We now have over 250 "fans"...and we welcome your pictures, posts and conversations on our Facebook site.

If you're our "fan" on Facebook, please check out the 30 Days of PD Awareness 2010 campaignwe're running! Each day, we bring you information about PD from a variety of different viewpoints. If you're not yet a "fan", please register for Facebook and join us!
IN OUR COMMUNITY
The "Rollin' on the River" 2010 Derby Seniors Dance will be held Friday, April 16th from 11:30am-2:30pm at the Crowne Plaza (830 Phillips Ln). Tickets are $9. The event includes the Robbie Bartlett Band, box lunches, door prizes, Derby hat contest and a health fair. Call 502-583-8012 for more info.

Peterson-Dumesnil House Antiques Appraisal Day- Sunday, April 18th 1-5 PM; doors open at 12:30. Scott Nussbaum, nationally known antiquarian & certified appraiser, will offer verbal appraisals of your antiques. $10 per item or 3 items for $25. All proceeds benefit the PDH Foundation. For more information, contact Suzanne Ward 897-7819.

St. Matthews United Methodist Church will host a Tranquility Tea for Caregivers, Sunday, April 18th from 2-4pm. The theme is "A Mad Hatter's Tea" with Alice in Wonderland inspired refreshments and a hat-making demonstration by a retired milliner. Contact Kathy Nugent at 502-479-7412 or Eileen James at 502-671-7767 to reserve a spot or to recommend a caregiver to receive an invitation.

The Marshall Women's Health and Education Center at Norton Suburban Hospital will present Parenting the Parent Dealing with Dementia: Signs and How to Cope on Tuesday, April 20th from 6-8pm. For more info or to register, call 502-629-1234.
 
Giant Spring Yard Sale at the Peterson-Dumesnil House- Saturday, April 24th 8:00 - 1:00 PM- "Rain or Shine" - Come shop or call Cabrina at 897-6413 to rent a 12'x 12' space for $20 (proceeds go to the PDH Foundation). You may also donate an item to the PDHF White Elephant Sale on front porch.

The Kentucky Association for Gerontology invites you to a Celebration of Aging--Endless Possibilities on April 25-27th. Sessions will focus on physical and mental health, strategizing for the future, active aging and aging in place. For more info, visit their website.
dontforget
DON'T FORGET!

MONDAY, APRIL 12th

9am: Music & Wellness Group(Norton Audubon Hospital; 6th Floor Joint Care Gym). Music & Wellness is a free weekly class that uses music-based activities to accomplish individualized goals in a therapeutic setting led by a certified music therapist. There is no cost for this group, which is open to people with Parkinson's disease. This class still has openings: call 502.426.0888 to register!

9:30am: Jinn meeting with Norton Healthcare

1:30pm: Lexington Area Support Group(Chalice Hall at Crestwood Christian Church, 1882 Bellefonte Dr, Lexington KY). Today's speaker will be Dr. G.A. Gerhardt, Director, Morris K. Udall Parkinson's Disease Research Center of Excellence. Dr. Gerhardt will be speaking about research. For more info: Tess at 859-278-2193.

5:30pm: Sure Steps for Care Partners (Home Instead Senior Care, 4610 Taylorsville Rd, Louisville KY). Today's speaker is Dr. John Hubbard, The Hubbard Clinic, speaking about InterStim, an implanted device for urinary difficulties. For more information and to RSVP, please call Debbie Buckler at 502-599-9461 or email her.

6pm: Denim & Diamonds Committee Meeting (Ewald Design Associates). Jinn will attend. If you are a resident of Southern Indiana and are interested in soliciting donations of items for the auction portion of our annual fundraiser, please call Jinn at 502-426-0888. We need your help!

6:30pm: Shelbyville "Moving On" Exercise Group (Jewish Hospital ShelbyvilleCommunity Room (rear of hospital); Hospital Drive off Hwy 60). There is no cost for this group. For more information: call Dyna at 502.377.7562 or e-mail her at dynazehn@myway.com.

TUESDAY, APRIL 13th
9am: Nazareth Home Support Group (Chapel, Nazareth Home, 2000 Newburg Rd, Louisville KY). This group is presently open to family members and people with PD who reside at Nazareth Home. For more info, please contact Kim Hobson at 502-459-9681.

10:30am: Adina Cook leading a presentation about and screening for PD at the Kling Center.

11:30am: PSCKY staff attending the TRIAD meeting.

Noon: Louisville Chair Yoga Group (Yoga at Crescent Hill; 201 S Peterson Avenue, 40206; lower level). To register: email support@pscky.org or call 502.426.0888. A $10 donation is requested, but all people with Parkinson's disease and their partners are welcome to attend.

WEDNESDAY, APRIL 14th

11am: Katherine Autin training new host for Elizabethtown Support Group.

11:45am: Adina Cook speaking about PD to seniors at Brown Memorial CME.

3pm: Elizabethtown Support Group(HealthSouth Lakeview Rehab Hospital, 134 Heartland Dr, Elizabethtown KY). This group normally meets on the third Thursday of each month, however, in April, the meeting is on a Wednesday. The group is open to care partners & people with PD. Today's speaker is Ken Jones, an attorney, who will be talking about living wills, power of attorney and other important health care documents. For more information, call Kim Jones at 270-769-3100, ext. 305. Katherine will attend today's meeting.

6pm: Jinn attending PSCKY Board Meeting

7pm: "Even Bigger!" LSVT Big Practice Group(Masonic Homes of Louisville). This group meets weekly under the direction of trained LSVT Big therapists from Frazier Rehab to practice BIG exercises as a community. Participants must have completed at least 8 sessions of LSVT Big therapy and pre-register. Our special thanks to Masonic Homes of Louisville for offering space for this group! Today's leaders: Krista and Angela. We have one space left in this group and are taking a wait list for a second group; please call PSCKY at 502.426.0888. Adina Cook will attend today's program.

THURSDAY, APRIL 15th

8:30am: Jinn meeting with Frazier Rehab.

9am: "MOVE IT OR LOSE IT!" Exercise Group (Norton Audubon Hospital, Joint Care Gym, 6th floor). Weekly mobility and movement (dance, yoga & Pilates) group led by certified instructor Amy Robinson and medically supervised by Zorre' Kimura. To register, email support@pscky.org or call 426-0888. You may join in at any time, but pre-registration is requested. There is no cost & special parking has been arranged.

11:15am: Jinn attending a community grants award ceremony.

11:30am: Adina Cook attending the monthly meeting of HSPN (Louisville Health and Service Professionals Network)

11:30am: "LET'S DANCE!" Exercise Group (Dance Louisville; 8023 Catherine Ln, 40242). Weekly dance therapy support group led by students of Bellarmine's Physical Therapy department. This group is full.

6:30pm: Shelbyville "Moving On" Exercise Group (Family Activities Center at Clear Creek Parks (717 Burks Branch Rd)). There is no cost for this group. For more information: call Dyna at 502.377.7562 or e-mail her at dynazehn@myway.com

FRIDAY, APRIL 16th

9:15am: Sit, Stroll or Stride Walking & Hiking Club (Thurman Hutchins Park, 3734 River Rd) Meet at 9:15am. Walk at 9:30am. Meet at parking lot near restrooms. Level: Sit or Stroll. Bathrooms Available? Yes. Benches Available? Yes. Jinn will attend today's walk.

Noon: Deadline for next week's e-newsletter and the May print newsletter. If you have a question, article or musing you'd like to share, it's more than welcome! Please email to info@pscky.org. Thanks!

Friday Evening: Adina Cook speaking about Parkinson's disease at Mid West Church of Christ.

SATURDAY, APRIL 17th

2pm: Oldham County Support Group (La Grange Family Care Doctors; 501 Parker Pl, second floor lobby, LaGrange). This is the first meeting of a new support group for care partners and people living with PD. For more information, call Katherine at 502-314-8307. This first meeting will be open discussion. Katherine Autin will attend.


8:15am: Sit, Stroll or Stride Walking & Hiking Club (Blackacre State Nature Preserve and Historic Homestead, 3200 Tucker Station Rd, Louisville). Meet at 8:15am. Walk at 8:30am. Meet at the visitor's parking lot between the homestead and the horse pasture. Level: Sit, Stroll or Stride. Bathrooms Available? Yes. Benches Available? Yes. NOTE: No dogs allowed at this site! Jinn will attend.


Katherine Autin, Director of Support Services
Adina Cook, Director of Outreach & Training
Jinn Fuller Renfro, Executive Director
Proud Sponsors and Partners of PSCKY 2010 Programs & Services:
Frazier Rehab Institute